what are qualitative research topics

Home » 500+ Qualitative Research Titles and Topics

500+ Qualitative Research Titles and Topics

Table of Contents

Qualitative research is a methodological approach that involves gathering and analyzing non-numerical data to understand and interpret social phenomena. Unlike quantitative research , which emphasizes the collection of numerical data through surveys and experiments, qualitative research is concerned with exploring the subjective experiences, perspectives, and meanings of individuals and groups. As such, qualitative research topics can be diverse and encompass a wide range of social issues and phenomena. From exploring the impact of culture on identity formation to examining the experiences of marginalized communities, qualitative research offers a rich and nuanced perspective on complex social issues. In this post, we will explore some of the most compelling qualitative research topics and provide some tips on how to conduct effective qualitative research.

Qualitative Research Titles

Qualitative research titles often reflect the study’s focus on understanding the depth and complexity of human behavior, experiences, or social phenomena. Here are some examples across various fields:

“Understanding the Impact of Project-Based Learning on Student Engagement in High School Classrooms: A Qualitative Study”
“Navigating the Transition: Experiences of International Students in American Universities”
“The Role of Parental Involvement in Early Childhood Education: Perspectives from Teachers and Parents”
“Exploring the Effects of Teacher Feedback on Student Motivation and Self-Efficacy in Middle Schools”
“Digital Literacy in the Classroom: Teacher Strategies for Integrating Technology in Elementary Education”
“Culturally Responsive Teaching Practices: A Case Study in Diverse Urban Schools”
“The Influence of Extracurricular Activities on Academic Achievement: Student Perspectives”
“Barriers to Implementing Inclusive Education in Public Schools: A Qualitative Inquiry”
“Teacher Professional Development and Its Impact on Classroom Practice: A Qualitative Exploration”
“Student-Centered Learning Environments: A Qualitative Study of Classroom Dynamics and Outcomes”
“The Experience of First-Year Teachers: Challenges, Support Systems, and Professional Growth”
“Exploring the Role of School Leadership in Fostering a Positive School Culture”
“Peer Relationships and Learning Outcomes in Cooperative Learning Settings: A Qualitative Analysis”
“The Impact of Social Media on Student Learning and Engagement: Teacher and Student Perspectives”
“Understanding Special Education Needs: Parent and Teacher Perceptions of Support Services in Schools

Health Science

“Living with Chronic Pain: Patient Narratives and Coping Strategies in Managing Daily Life”
“Healthcare Professionals’ Perspectives on the Challenges of Rural Healthcare Delivery”
“Exploring the Mental Health Impacts of COVID-19 on Frontline Healthcare Workers: A Qualitative Study”
“Patient and Family Experiences of Palliative Care: Understanding Needs and Preferences”
“The Role of Community Health Workers in Improving Access to Maternal Healthcare in Rural Areas”
“Barriers to Mental Health Services Among Ethnic Minorities: A Qualitative Exploration”
“Understanding Patient Satisfaction in Telemedicine Services: A Qualitative Study of User Experiences”
“The Impact of Cultural Competence Training on Healthcare Provider-Patient Communication”
“Navigating the Transition to Adult Healthcare Services: Experiences of Adolescents with Chronic Conditions”
“Exploring the Use of Alternative Medicine Among Patients with Chronic Diseases: A Qualitative Inquiry”
“The Role of Social Support in the Rehabilitation Process of Stroke Survivors”
“Healthcare Decision-Making Among Elderly Patients: A Qualitative Study of Preferences and Influences”
“Nurse Perceptions of Patient Safety Culture in Hospital Settings: A Qualitative Analysis”
“Experiences of Women with Postpartum Depression: Barriers to Seeking Help”
“The Impact of Nutrition Education on Eating Behaviors Among College Students: A Qualitative Approach”
“Understanding Resilience in Survivors of Childhood Trauma: A Narrative Inquiry”
“The Role of Mindfulness in Managing Work-Related Stress Among Corporate Employees: A Qualitative Study”
“Coping Mechanisms Among Parents of Children with Autism Spectrum Disorder”
“Exploring the Psychological Impact of Social Isolation in the Elderly: A Phenomenological Study”
“Identity Formation in Adolescence: The Influence of Social Media and Peer Groups”
“The Experience of Forgiveness in Interpersonal Relationships: A Qualitative Exploration”
“Perceptions of Happiness and Well-Being Among University Students: A Cultural Perspective”
“The Impact of Art Therapy on Anxiety and Depression in Adult Cancer Patients”
“Narratives of Recovery: A Qualitative Study on the Journey Through Addiction Rehabilitation”
“Exploring the Psychological Effects of Long-Term Unemployment: A Grounded Theory Approach”
“Attachment Styles and Their Influence on Adult Romantic Relationships: A Qualitative Analysis”
“The Role of Personal Values in Career Decision-Making Among Young Adults”
“Understanding the Stigma of Mental Illness in Rural Communities: A Qualitative Inquiry”
“Exploring the Use of Digital Mental Health Interventions Among Adolescents: A Qualitative Study”
“The Psychological Impact of Climate Change on Young Adults: An Exploration of Anxiety and Action”
“Navigating Identity: The Role of Social Media in Shaping Youth Culture and Self-Perception”
“Community Resilience in the Face of Urban Gentrification: A Case Study of Neighborhood Change”
“The Dynamics of Intergenerational Relationships in Immigrant Families: A Qualitative Analysis”
“Social Capital and Economic Mobility in Low-Income Neighborhoods: An Ethnographic Approach”
“Gender Roles and Career Aspirations Among Young Adults in Conservative Societies”
“The Stigma of Mental Health in the Workplace: Employee Narratives and Organizational Culture”
“Exploring the Intersection of Race, Class, and Education in Urban School Systems”
“The Impact of Digital Divide on Access to Healthcare Information in Rural Communities”
“Social Movements and Political Engagement Among Millennials: A Qualitative Study”
“Cultural Adaptation and Identity Among Second-Generation Immigrants: A Phenomenological Inquiry”
“The Role of Religious Institutions in Providing Community Support and Social Services”
“Negotiating Public Space: Experiences of LGBTQ+ Individuals in Urban Environments”
“The Sociology of Food: Exploring Eating Habits and Food Practices Across Cultures”
“Work-Life Balance Challenges Among Dual-Career Couples: A Qualitative Exploration”
“The Influence of Peer Networks on Substance Use Among Adolescents: A Community Study”

Business and Management

“Navigating Organizational Change: Employee Perceptions and Adaptation Strategies in Mergers and Acquisitions”
“Corporate Social Responsibility: Consumer Perceptions and Brand Loyalty in the Retail Sector”
“Leadership Styles and Organizational Culture: A Comparative Study of Tech Startups”
“Workplace Diversity and Inclusion: Best Practices and Challenges in Multinational Corporations”
“Consumer Trust in E-commerce: A Qualitative Study of Online Shopping Behaviors”
“The Gig Economy and Worker Satisfaction: Exploring the Experiences of Freelance Professionals”
“Entrepreneurial Resilience: Success Stories and Lessons Learned from Failed Startups”
“Employee Engagement and Productivity in Remote Work Settings: A Post-Pandemic Analysis”
“Brand Storytelling: How Narrative Strategies Influence Consumer Engagement”
“Sustainable Business Practices: Stakeholder Perspectives in the Fashion Industry”
“Cross-Cultural Communication Challenges in Global Teams: Strategies for Effective Collaboration”
“Innovative Workspaces: The Impact of Office Design on Creativity and Collaboration”
“Consumer Perceptions of Artificial Intelligence in Customer Service: A Qualitative Exploration”
“The Role of Mentoring in Career Development: Insights from Women in Leadership Positions”
“Agile Management Practices: Adoption and Impact in Traditional Industries”

Environmental Studies

“Community-Based Conservation Efforts in Tropical Rainforests: A Qualitative Study of Local Perspectives and Practices”
“Urban Sustainability Initiatives: Exploring Resident Participation and Impact in Green City Projects”
“Perceptions of Climate Change Among Indigenous Populations: Insights from Traditional Ecological Knowledge”
“Environmental Justice and Industrial Pollution: A Case Study of Community Advocacy and Response”
“The Role of Eco-Tourism in Promoting Conservation Awareness: Perspectives from Tour Operators and Visitors”
“Sustainable Agriculture Practices Among Smallholder Farmers: Challenges and Opportunities”
“Youth Engagement in Climate Action Movements: Motivations, Perceptions, and Outcomes”
“Corporate Environmental Responsibility: A Qualitative Analysis of Stakeholder Expectations and Company Practices”
“The Impact of Plastic Pollution on Marine Ecosystems: Community Awareness and Behavioral Change”
“Renewable Energy Adoption in Rural Communities: Barriers, Facilitators, and Social Implications”
“Water Scarcity and Community Adaptation Strategies in Arid Regions: A Grounded Theory Approach”
“Urban Green Spaces: Public Perceptions and Use Patterns in Megacities”
“Environmental Education in Schools: Teachers’ Perspectives on Integrating Sustainability into Curricula”
“The Influence of Environmental Activism on Policy Change: Case Studies of Grassroots Campaigns”
“Cultural Practices and Natural Resource Management: A Qualitative Study of Indigenous Stewardship Models”

Anthropology

“Kinship and Social Organization in Matrilineal Societies: An Ethnographic Study”
“Rituals and Beliefs Surrounding Death and Mourning in Diverse Cultures: A Comparative Analysis”
“The Impact of Globalization on Indigenous Languages and Cultural Identity”
“Food Sovereignty and Traditional Agricultural Practices Among Indigenous Communities”
“Navigating Modernity: The Integration of Traditional Healing Practices in Contemporary Healthcare Systems”
“Gender Roles and Equality in Hunter-Gatherer Societies: An Anthropological Perspective”
“Sacred Spaces and Religious Practices: An Ethnographic Study of Pilgrimage Sites”
“Youth Subcultures and Resistance: An Exploration of Identity and Expression in Urban Environments”
“Cultural Constructions of Disability and Inclusion: A Cross-Cultural Analysis”
“Interethnic Marriages and Cultural Syncretism: Case Studies from Multicultural Societies”
“The Role of Folklore and Storytelling in Preserving Cultural Heritage”
“Economic Anthropology of Gift-Giving and Reciprocity in Tribal Communities”
“Digital Anthropology: The Role of Social Media in Shaping Political Movements”
“Migration and Diaspora: Maintaining Cultural Identity in Transnational Communities”
“Cultural Adaptations to Climate Change Among Coastal Fishing Communities”

Communication Studies

“The Dynamics of Family Communication in the Digital Age: A Qualitative Inquiry”
“Narratives of Identity and Belonging in Diaspora Communities Through Social Media”
“Organizational Communication and Employee Engagement: A Case Study in the Non-Profit Sector”
“Cultural Influences on Communication Styles in Multinational Teams: An Ethnographic Approach”
“Media Representation of Women in Politics: A Content Analysis and Audience Perception Study”
“The Role of Communication in Building Sustainable Community Development Projects”
“Interpersonal Communication in Online Dating: Strategies, Challenges, and Outcomes”
“Public Health Messaging During Pandemics: A Qualitative Study of Community Responses”
“The Impact of Mobile Technology on Parent-Child Communication in the Digital Era”
“Crisis Communication Strategies in the Hospitality Industry: A Case Study of Reputation Management”
“Narrative Analysis of Personal Stories Shared on Mental Health Blogs”
“The Influence of Podcasts on Political Engagement Among Young Adults”
“Visual Communication and Brand Identity: A Qualitative Study of Consumer Interpretations”
“Communication Barriers in Cross-Cultural Healthcare Settings: Patient and Provider Perspectives”
“The Role of Internal Communication in Managing Organizational Change: Employee Experiences”

Information Technology

“User Experience Design in Augmented Reality Applications: A Qualitative Study of Best Practices”
“The Human Factor in Cybersecurity: Understanding Employee Behaviors and Attitudes Towards Phishing”
“Adoption of Cloud Computing in Small and Medium Enterprises: Challenges and Success Factors”
“Blockchain Technology in Supply Chain Management: A Qualitative Exploration of Potential Impacts”
“The Role of Artificial Intelligence in Personalizing User Experiences on E-commerce Platforms”
“Digital Transformation in Traditional Industries: A Case Study of Technology Adoption Challenges”
“Ethical Considerations in the Development of Smart Home Technologies: A Stakeholder Analysis”
“The Impact of Social Media Algorithms on News Consumption and Public Opinion”
“Collaborative Software Development: Practices and Challenges in Open Source Projects”
“Understanding the Digital Divide: Access to Information Technology in Rural Communities”
“Data Privacy Concerns and User Trust in Internet of Things (IoT) Devices”
“The Effectiveness of Gamification in Educational Software: A Qualitative Study of Engagement and Motivation”
“Virtual Teams and Remote Work: Communication Strategies and Tools for Effectiveness”
“User-Centered Design in Mobile Health Applications: Evaluating Usability and Accessibility”
“The Influence of Technology on Work-Life Balance: Perspectives from IT Professionals”

Tourism and Hospitality

“Exploring the Authenticity of Cultural Heritage Tourism in Indigenous Communities”
“Sustainable Tourism Practices: Perceptions and Implementations in Small Island Destinations”
“The Impact of Social Media Influencers on Destination Choice Among Millennials”
“Gastronomy Tourism: Exploring the Culinary Experiences of International Visitors in Rural Regions”
“Eco-Tourism and Conservation: Stakeholder Perspectives on Balancing Tourism and Environmental Protection”
“The Role of Hospitality in Enhancing the Cultural Exchange Experience of Exchange Students”
“Dark Tourism: Visitor Motivations and Experiences at Historical Conflict Sites”
“Customer Satisfaction in Luxury Hotels: A Qualitative Study of Service Excellence and Personalization”
“Adventure Tourism: Understanding the Risk Perception and Safety Measures Among Thrill-Seekers”
“The Influence of Local Communities on Tourist Experiences in Ecotourism Sites”
“Event Tourism: Economic Impacts and Community Perspectives on Large-Scale Music Festivals”
“Heritage Tourism and Identity: Exploring the Connections Between Historic Sites and National Identity”
“Tourist Perceptions of Sustainable Accommodation Practices: A Study of Green Hotels”
“The Role of Language in Shaping the Tourist Experience in Multilingual Destinations”
“Health and Wellness Tourism: Motivations and Experiences of Visitors to Spa and Retreat Centers”

Qualitative Research Topics

Qualitative Research Topics are as follows:

Understanding the lived experiences of first-generation college students
Exploring the impact of social media on self-esteem among adolescents
Investigating the effects of mindfulness meditation on stress reduction
Analyzing the perceptions of employees regarding organizational culture
Examining the impact of parental involvement on academic achievement of elementary school students
Investigating the role of music therapy in managing symptoms of depression
Understanding the experience of women in male-dominated industries
Exploring the factors that contribute to successful leadership in non-profit organizations
Analyzing the effects of peer pressure on substance abuse among adolescents
Investigating the experiences of individuals with disabilities in the workplace
Understanding the factors that contribute to burnout among healthcare professionals
Examining the impact of social support on mental health outcomes
Analyzing the perceptions of parents regarding sex education in schools
Investigating the experiences of immigrant families in the education system
Understanding the impact of trauma on mental health outcomes
Exploring the effectiveness of animal-assisted therapy for individuals with anxiety
Analyzing the factors that contribute to successful intergenerational relationships
Investigating the experiences of LGBTQ+ individuals in the workplace
Understanding the impact of online gaming on social skills development among adolescents
Examining the perceptions of teachers regarding technology integration in the classroom
Analyzing the experiences of women in leadership positions
Investigating the factors that contribute to successful marriage and long-term relationships
Understanding the impact of social media on political participation
Exploring the experiences of individuals with mental health disorders in the criminal justice system
Analyzing the factors that contribute to successful community-based programs for youth development
Investigating the experiences of veterans in accessing mental health services
Understanding the impact of the COVID-19 pandemic on mental health outcomes
Examining the perceptions of parents regarding childhood obesity prevention
Analyzing the factors that contribute to successful multicultural education programs
Investigating the experiences of individuals with chronic illnesses in the workplace
Understanding the impact of poverty on academic achievement
Exploring the experiences of individuals with autism spectrum disorder in the workplace
Analyzing the factors that contribute to successful employee retention strategies
Investigating the experiences of caregivers of individuals with Alzheimer’s disease
Understanding the impact of parent-child communication on adolescent sexual behavior
Examining the perceptions of college students regarding mental health services on campus
Analyzing the factors that contribute to successful team building in the workplace
Investigating the experiences of individuals with eating disorders in treatment programs
Understanding the impact of mentorship on career success
Exploring the experiences of individuals with physical disabilities in the workplace
Analyzing the factors that contribute to successful community-based programs for mental health
Investigating the experiences of individuals with substance use disorders in treatment programs
Understanding the impact of social media on romantic relationships
Examining the perceptions of parents regarding child discipline strategies
Analyzing the factors that contribute to successful cross-cultural communication in the workplace
Investigating the experiences of individuals with anxiety disorders in treatment programs
Understanding the impact of cultural differences on healthcare delivery
Exploring the experiences of individuals with hearing loss in the workplace
Analyzing the factors that contribute to successful parent-teacher communication
Investigating the experiences of individuals with depression in treatment programs
Understanding the impact of childhood trauma on adult mental health outcomes
Examining the perceptions of college students regarding alcohol and drug use on campus
Analyzing the factors that contribute to successful mentor-mentee relationships
Investigating the experiences of individuals with intellectual disabilities in the workplace
Understanding the impact of work-family balance on employee satisfaction and well-being
Exploring the experiences of individuals with autism spectrum disorder in vocational rehabilitation programs
Analyzing the factors that contribute to successful project management in the construction industry
Investigating the experiences of individuals with substance use disorders in peer support groups
Understanding the impact of mindfulness meditation on stress reduction and mental health
Examining the perceptions of parents regarding childhood nutrition
Analyzing the factors that contribute to successful environmental sustainability initiatives in organizations
Investigating the experiences of individuals with bipolar disorder in treatment programs
Understanding the impact of job stress on employee burnout and turnover
Exploring the experiences of individuals with physical disabilities in recreational activities
Analyzing the factors that contribute to successful strategic planning in nonprofit organizations
Investigating the experiences of individuals with hoarding disorder in treatment programs
Understanding the impact of culture on leadership styles and effectiveness
Examining the perceptions of college students regarding sexual health education on campus
Analyzing the factors that contribute to successful supply chain management in the retail industry
Investigating the experiences of individuals with personality disorders in treatment programs
Understanding the impact of multiculturalism on group dynamics in the workplace
Exploring the experiences of individuals with chronic pain in mindfulness-based pain management programs
Analyzing the factors that contribute to successful employee engagement strategies in organizations
Investigating the experiences of individuals with internet addiction disorder in treatment programs
Understanding the impact of social comparison on body dissatisfaction and self-esteem
Examining the perceptions of parents regarding childhood sleep habits
Analyzing the factors that contribute to successful diversity and inclusion initiatives in organizations
Investigating the experiences of individuals with schizophrenia in treatment programs
Understanding the impact of job crafting on employee motivation and job satisfaction
Exploring the experiences of individuals with vision impairments in navigating public spaces
Analyzing the factors that contribute to successful customer relationship management strategies in the service industry
Investigating the experiences of individuals with dissociative amnesia in treatment programs
Understanding the impact of cultural intelligence on intercultural communication and collaboration
Examining the perceptions of college students regarding campus diversity and inclusion efforts
Analyzing the factors that contribute to successful supply chain sustainability initiatives in organizations
Investigating the experiences of individuals with obsessive-compulsive disorder in treatment programs
Understanding the impact of transformational leadership on organizational performance and employee well-being
Exploring the experiences of individuals with mobility impairments in public transportation
Analyzing the factors that contribute to successful talent management strategies in organizations
Investigating the experiences of individuals with substance use disorders in harm reduction programs
Understanding the impact of gratitude practices on well-being and resilience
Examining the perceptions of parents regarding childhood mental health and well-being
Analyzing the factors that contribute to successful corporate social responsibility initiatives in organizations
Investigating the experiences of individuals with borderline personality disorder in treatment programs
Understanding the impact of emotional labor on job stress and burnout
Exploring the experiences of individuals with hearing impairments in healthcare settings
Analyzing the factors that contribute to successful customer experience strategies in the hospitality industry
Investigating the experiences of individuals with gender dysphoria in gender-affirming healthcare
Understanding the impact of cultural differences on cross-cultural negotiation in the global marketplace
Examining the perceptions of college students regarding academic stress and mental health
Analyzing the factors that contribute to successful supply chain agility in organizations
Understanding the impact of music therapy on mental health and well-being
Exploring the experiences of individuals with dyslexia in educational settings
Analyzing the factors that contribute to successful leadership in nonprofit organizations
Investigating the experiences of individuals with chronic illnesses in online support groups
Understanding the impact of exercise on mental health and well-being
Examining the perceptions of parents regarding childhood screen time
Analyzing the factors that contribute to successful change management strategies in organizations
Understanding the impact of cultural differences on international business negotiations
Exploring the experiences of individuals with hearing impairments in the workplace
Analyzing the factors that contribute to successful team building in corporate settings
Understanding the impact of technology on communication in romantic relationships
Analyzing the factors that contribute to successful community engagement strategies for local governments
Investigating the experiences of individuals with attention deficit hyperactivity disorder (ADHD) in treatment programs
Understanding the impact of financial stress on mental health and well-being
Analyzing the factors that contribute to successful mentorship programs in organizations
Investigating the experiences of individuals with gambling addictions in treatment programs
Understanding the impact of social media on body image and self-esteem
Examining the perceptions of parents regarding childhood education
Analyzing the factors that contribute to successful virtual team management strategies
Investigating the experiences of individuals with dissociative identity disorder in treatment programs
Understanding the impact of cultural differences on cross-cultural communication in healthcare settings
Exploring the experiences of individuals with chronic pain in cognitive-behavioral therapy programs
Analyzing the factors that contribute to successful community-building strategies in urban neighborhoods
Investigating the experiences of individuals with alcohol use disorders in treatment programs
Understanding the impact of personality traits on romantic relationships
Examining the perceptions of college students regarding mental health stigma on campus
Analyzing the factors that contribute to successful fundraising strategies for political campaigns
Investigating the experiences of individuals with traumatic brain injuries in rehabilitation programs
Understanding the impact of social support on mental health and well-being among the elderly
Exploring the experiences of individuals with chronic illnesses in medical treatment decision-making processes
Analyzing the factors that contribute to successful innovation strategies in organizations
Investigating the experiences of individuals with dissociative disorders in treatment programs
Understanding the impact of cultural differences on cross-cultural communication in education settings
Examining the perceptions of parents regarding childhood physical activity
Analyzing the factors that contribute to successful conflict resolution in family relationships
Investigating the experiences of individuals with opioid use disorders in treatment programs
Understanding the impact of emotional intelligence on leadership effectiveness
Exploring the experiences of individuals with learning disabilities in the workplace
Analyzing the factors that contribute to successful change management in educational institutions
Investigating the experiences of individuals with eating disorders in recovery support groups
Understanding the impact of self-compassion on mental health and well-being
Examining the perceptions of college students regarding campus safety and security measures
Analyzing the factors that contribute to successful marketing strategies for nonprofit organizations
Investigating the experiences of individuals with postpartum depression in treatment programs
Understanding the impact of ageism in the workplace
Exploring the experiences of individuals with dyslexia in the education system
Investigating the experiences of individuals with anxiety disorders in cognitive-behavioral therapy programs
Understanding the impact of socioeconomic status on access to healthcare
Examining the perceptions of parents regarding childhood screen time usage
Analyzing the factors that contribute to successful supply chain management strategies
Understanding the impact of parenting styles on child development
Exploring the experiences of individuals with addiction in harm reduction programs
Analyzing the factors that contribute to successful crisis management strategies in organizations
Investigating the experiences of individuals with trauma in trauma-focused therapy programs
Examining the perceptions of healthcare providers regarding patient-centered care
Analyzing the factors that contribute to successful product development strategies
Investigating the experiences of individuals with autism spectrum disorder in employment programs
Understanding the impact of cultural competence on healthcare outcomes
Exploring the experiences of individuals with chronic illnesses in healthcare navigation
Analyzing the factors that contribute to successful community engagement strategies for non-profit organizations
Investigating the experiences of individuals with physical disabilities in the workplace
Understanding the impact of childhood trauma on adult mental health
Analyzing the factors that contribute to successful supply chain sustainability strategies
Investigating the experiences of individuals with personality disorders in dialectical behavior therapy programs
Understanding the impact of gender identity on mental health treatment seeking behaviors
Exploring the experiences of individuals with schizophrenia in community-based treatment programs
Analyzing the factors that contribute to successful project team management strategies
Investigating the experiences of individuals with obsessive-compulsive disorder in exposure and response prevention therapy programs
Understanding the impact of cultural competence on academic achievement and success
Examining the perceptions of college students regarding academic integrity
Analyzing the factors that contribute to successful social media marketing strategies
Investigating the experiences of individuals with bipolar disorder in community-based treatment programs
Understanding the impact of mindfulness on academic achievement and success
Exploring the experiences of individuals with substance use disorders in medication-assisted treatment programs
Investigating the experiences of individuals with anxiety disorders in exposure therapy programs
Understanding the impact of healthcare disparities on health outcomes
Analyzing the factors that contribute to successful supply chain optimization strategies
Investigating the experiences of individuals with borderline personality disorder in schema therapy programs
Understanding the impact of culture on perceptions of mental health stigma
Exploring the experiences of individuals with trauma in art therapy programs
Analyzing the factors that contribute to successful digital marketing strategies
Investigating the experiences of individuals with eating disorders in online support groups
Understanding the impact of workplace bullying on job satisfaction and performance
Examining the perceptions of college students regarding mental health resources on campus
Analyzing the factors that contribute to successful supply chain risk management strategies
Investigating the experiences of individuals with chronic pain in mindfulness-based pain management programs
Understanding the impact of cognitive-behavioral therapy on social anxiety disorder
Understanding the impact of COVID-19 on mental health and well-being
Exploring the experiences of individuals with eating disorders in treatment programs
Analyzing the factors that contribute to successful leadership in business organizations
Investigating the experiences of individuals with chronic pain in cognitive-behavioral therapy programs
Understanding the impact of cultural differences on intercultural communication
Examining the perceptions of teachers regarding inclusive education for students with disabilities
Investigating the experiences of individuals with depression in therapy programs
Understanding the impact of workplace culture on employee retention and turnover
Exploring the experiences of individuals with traumatic brain injuries in rehabilitation programs
Analyzing the factors that contribute to successful crisis communication strategies in organizations
Investigating the experiences of individuals with anxiety disorders in mindfulness-based interventions
Investigating the experiences of individuals with chronic illnesses in healthcare settings
Understanding the impact of technology on work-life balance
Exploring the experiences of individuals with learning disabilities in academic settings
Analyzing the factors that contribute to successful entrepreneurship in small businesses
Understanding the impact of gender identity on mental health and well-being
Examining the perceptions of individuals with disabilities regarding accessibility in public spaces
Understanding the impact of religion on coping strategies for stress and anxiety
Exploring the experiences of individuals with chronic illnesses in complementary and alternative medicine treatments
Analyzing the factors that contribute to successful customer retention strategies in business organizations
Investigating the experiences of individuals with postpartum depression in therapy programs
Understanding the impact of ageism on older adults in healthcare settings
Examining the perceptions of students regarding online learning during the COVID-19 pandemic
Analyzing the factors that contribute to successful team building in virtual work environments
Investigating the experiences of individuals with gambling disorders in treatment programs
Exploring the experiences of individuals with chronic illnesses in peer support groups
Analyzing the factors that contribute to successful social media marketing strategies for businesses
Investigating the experiences of individuals with ADHD in treatment programs
Understanding the impact of sleep on cognitive and emotional functioning
Examining the perceptions of individuals with chronic illnesses regarding healthcare access and affordability
Investigating the experiences of individuals with borderline personality disorder in dialectical behavior therapy programs
Understanding the impact of social support on caregiver well-being
Exploring the experiences of individuals with chronic illnesses in disability activism
Analyzing the factors that contribute to successful cultural competency training programs in healthcare settings
Understanding the impact of personality disorders on interpersonal relationships
Examining the perceptions of healthcare providers regarding the use of telehealth services
Investigating the experiences of individuals with dissociative disorders in therapy programs
Understanding the impact of gender bias in hiring practices
Exploring the experiences of individuals with visual impairments in the workplace
Analyzing the factors that contribute to successful diversity and inclusion programs in the workplace
Understanding the impact of online dating on romantic relationships
Examining the perceptions of parents regarding childhood vaccination
Analyzing the factors that contribute to successful communication in healthcare settings
Understanding the impact of cultural stereotypes on academic achievement
Exploring the experiences of individuals with substance use disorders in sober living programs
Analyzing the factors that contribute to successful classroom management strategies
Understanding the impact of social support on addiction recovery
Examining the perceptions of college students regarding mental health stigma
Analyzing the factors that contribute to successful conflict resolution in the workplace
Understanding the impact of race and ethnicity on healthcare access and outcomes
Exploring the experiences of individuals with post-traumatic stress disorder in treatment programs
Analyzing the factors that contribute to successful project management strategies
Understanding the impact of teacher-student relationships on academic achievement
Analyzing the factors that contribute to successful customer service strategies
Investigating the experiences of individuals with social anxiety disorder in treatment programs
Understanding the impact of workplace stress on job satisfaction and performance
Exploring the experiences of individuals with disabilities in sports and recreation
Analyzing the factors that contribute to successful marketing strategies for small businesses
Investigating the experiences of individuals with phobias in treatment programs
Understanding the impact of culture on attitudes towards mental health and illness
Examining the perceptions of college students regarding sexual assault prevention
Analyzing the factors that contribute to successful time management strategies
Investigating the experiences of individuals with addiction in recovery support groups
Understanding the impact of mindfulness on emotional regulation and well-being
Exploring the experiences of individuals with chronic pain in treatment programs
Analyzing the factors that contribute to successful conflict resolution in romantic relationships
Investigating the experiences of individuals with autism spectrum disorder in social skills training programs
Understanding the impact of parent-child communication on adolescent substance use
Examining the perceptions of parents regarding childhood mental health services
Analyzing the factors that contribute to successful fundraising strategies for non-profit organizations
Investigating the experiences of individuals with chronic illnesses in support groups
Understanding the impact of personality traits on career success and satisfaction
Exploring the experiences of individuals with disabilities in accessing public transportation
Analyzing the factors that contribute to successful team building in sports teams
Investigating the experiences of individuals with chronic pain in alternative medicine treatments
Understanding the impact of stigma on mental health treatment seeking behaviors
Examining the perceptions of college students regarding diversity and inclusion on campus.

About the author

Muhammad Hassan

Researcher, Academic Writer, Web developer

200+ Funny Research Topics

500+ Sports Research Topics

300+ American History Research Paper Topics

500+ Cyber Security Research Topics

500+ Environmental Research Topics

500+ Economics Research Topics

Tips on how to choose good qualitative research topics

Writing a research paper or a college assignment with success solely depends on your ability to choose suitable qualitative research topics. It’s essential to carefully examine and explore the field with all the challenges before you start writing to identify the key factors and aspects of your assignment. Here are a few tips on how to do that to get good research paper ideas.

Align your research topic with your field of interest

Your assignment topic should be something that interests you deeply so that you can completely get into it and make the most out of your efforts. More importantly, your topic should allow you to develop your personal skills and learn new things.

Make sure you have all the right research on the topic

If you choose a topic that has little to no supporting research available, you’ll end up getting stuck. You must properly research the topic before you start writing. This research will also help you shortlist unrelated topics and narrow down your scope so that you can focus on the information that matches your exact needs.

Follow your university guidelines!

Consulting with your professors and going through the assessment guidelines is paramount to writing a top-class paper. Follow your university guidelines to make sure your efforts get approved by your supervisor.

List of qualitative research topics examples

Long-term planning methods for better project management
How to deal with issues during a project implementation program
The best practices for dealing with tight project deadlines
Why time management is essential for goal setting
Flexibility in management: How to improve decision-making as a manager
Top professional techniques for developing management skills
Healthcare in low-income societies: How to achieve affordable medical care
Dealing with a loss and the process of recovery
How to make eco-friendly facemasks
Preventing flu during cold seasons: The most effective preventative methods
The importance of developing community-based sanitization programs
The best practices for quitting alcohol and cigarettes
Helping the young manage their obesity: The most effective obesity management strategies
Promoting healthcare during COVID-19: Strategies for expanding the health sector
Guide to collecting resources for building a centralized community
How academic and social practices can help uplift a society
Professional practices for building a one-on-one relationship between teachers and students
The science behind consumer motivations and appraisals
Reshaping the traditional form of virtual ethnography
Are homeschooling programs as efficient as they should be?
The importance of developing healthy eating habits
The best strategies for getting ahead of the prospective market
How to track the dynamics of real estate investments
How effective are modern newsgathering technologies?
Developing introvert behavior and its key effects
Can sharing help an individual overcome addictions?
Guide to creating a one-people community
The most effective methods for dealing with cyberbullying
The best way to bringing social equity to patriarchal societies
How quarantine prevents the spread of infectious diseases
The aging populations and the trends they follow
The latest digital media trends
Methods for mitigating communicable diseases
How governments work on protocol observance
Practices for preventing the spread of the coronavirus in crowded places
Alleviating pain during childbirth
Maternal healthcare in developing countries
Can pop music change erratic youth behavior?
The best therapies for recovering from brain surgery
How alcohol changes normal behavior
Depression management among school-going children
Strategies for avoiding a viral disease
Ways to influence the eating habits of children
How and when to engage in sporting activities
How low socioeconomic background impacts self-esteem
The importance of parenting for shaping children’s morals
The impact of poor market completion on supply and demand
Do children under four years need preschool education?
Single-gender schools vs. mixed schools
How the world would benefit from the same education system
How virtual reality helps reshape the world
The hottest destinations for traveling at the moment
How fast does the ozone layer deplete?
Is it possible to predict natural disasters before they occur?
The effects of digital marketing on modern businesses
Physical learning vs. online learning
How related are Windows and Apple products?
Study cases of bullying in schools
The effect of stress on human behavior
Patient behavior and the influence of social processes

If you’re looking for the best way to choose some of the most suitable qualitative research paper topics for your college assignment, these 60 topics should help you get ahead of your task and write an engaging paper. All topics above are for your personal education and motivation. If you still need help with your assignment, our professional paper writing services are available 24/7.

Readers also enjoyed

WHY WAIT? PLACE AN ORDER RIGHT NOW!

Just fill out the form, press the button, and have no worries!

We use cookies to give you the best experience possible. By continuing we’ll assume you board with our cookie policy.

How It Works
PhD thesis writing
Master thesis writing
Bachelor thesis writing
Dissertation writing service
Dissertation abstract writing
Thesis proposal writing
Thesis editing service
Thesis proofreading service
Thesis formatting service
Coursework writing service
Research paper writing service
Architecture thesis writing
Computer science thesis writing
Engineering thesis writing
History thesis writing
MBA thesis writing
Nursing dissertation writing
Psychology dissertation writing
Sociology thesis writing
Statistics dissertation writing
Buy dissertation online
Write my dissertation
Cheap thesis
Cheap dissertation
Custom dissertation
Dissertation help
Pay for thesis
Pay for dissertation
Senior thesis
Write my thesis

131 Interesting Qualitative Research Topics For High Scoring Thesis

Qualitative research topics are undoubtedly not easy. While statistics enthralls some students, others don’t like the subject. That’s because qualitative assignments entail cognitive analysis, which complicates them. But apart from the hardships of completing the projects, selecting topics for qualitative research papers is also a challenge.

This article presents a list of 130-plus qualitative research topic ideas to help learners that struggle to get titles for their papers. It is helpful because many learners have difficulties picking titles that will make their essays impressive to educators. But before presenting the topics, this article defines qualitative research.

What Is Qualitative Research?

Qualitative research is an investigative and innovative abstract data analysis. When writing a qualitative research paper, a learner analyzes intangible data. Qualitative researchers code the data after or during collection. Therefore, having top-notch research topics is necessary for a first-class essay.

Knowing how to write a qualitative research paper is vital because it helps the student deliver a copy that provides a clear picture of an event or situation. A researcher can achieve this via practical experience, reliable reporting, and conversations. Gathering raw data is the initial step in qualitative research. A researcher can gather raw data by conducting reviews, observations, and surveys. Also, researchers can use creative methods to collect data.

Best Examples Of Qualitative Research Topics

Qualitative research covers many things. Here are examples of topics that learners can explore in their qualitative study.

What causes stigma around some health challenges?
Stigma facing the people living with disabilities- What is the cause?
Can Pro Bono legal assistance improve the criminal justice system?
How the less privileged can benefit from Pro Bono services
The educational challenges facing rural children- Are there ways to help them?
Child labor causes- How to mitigate the practice
Substance and drugs- What are young people abusing more?
How alcohol affects college students
Can food insecurity interfere with children’s performance in school?
Food banks intricacies- Understanding the challenge in low-income areas
Free education- Does it have socioeconomic benefits?
Culture and female harm- What’s the connection?
The impact of social media on physical and social engagement among teens in urban areas
Using medication to treat depression- What are the health benefits?
Investigating peer educators’ efficiency in creating awareness of health and social issues
Gender-based violence- What causes it in rural areas, and how does it affect victims?
Sexual reproductive health challenges of child brides- Are there ways to control it?
Investigating the causes of school dropout among teenagers
How to address school dropout among young adults
Investigating the deteriorating academic pursuit in Third-World countries
Social activities- Do they have benefits for depressed people?
Investigating cerebral palsy and the stigma that people associate with it.
Living with disabilities- Are there social implications?
The impact of ableism on disabled people
Exploring the promotion and benefits of feminist values
Why should society promote free education in all learning environments?
What causes food insecurities among low-income earners?
Food and housing insecurity- What are the root causes?
What are the effects of displacement- Investigating the homeless people’s mental health

These are good examples of qualitative research topics. However, a student that picks a title in this category should research it extensively to impress the educator with their work.

Qualitative Nursing Research Topics

Professors ask students to write about qualitative topics when pursuing nursing studies. Here are issues to consider in this category.

How does the nurse-patient relationship affect health outcomes?
How can nurses deal with complex patients?
How can nurses provide culturally competent care?
How do personal beliefs affect nursing practice?
What is the impact of spirituality on nursing care?
How does the nurse’s role change when working with terminally ill patients?
What challenges do nurses face when providing end-of-life care?
How can nurses best support families whose members have serious illnesses?
What are the unique challenges of caring for elderly patients?
How does the nurse’s role change when working in a hospice setting?
Health outreach programs- What are the most effective ways to execute them?
Effective methods of curbing drug abuse
Effective ways to help rape survivors
How can nurses administer care to female genital mutilation victims?
How to care for special needs individuals
Anxiety and depression symptoms
Methods of administering care to Dyslexia patients
How to help individuals dealing with mental disorders
Signs of Alzheimer’s disease in older people
How to provide primary patient care

These are good qualitative research topics for students pursuing nursing studies. Nevertheless, learners must research any of these titles before writing their papers.

Qualitative Research Topics In Education

Most topics spring up from the education niche despite fitting other specifications. Here are examples of qualitative research topics that include the education niche.

Are guidance and counseling essential in schools?
How computer literacy affects education
Why governments in developing schools should encourage adult education
Autistic children’s education- Which learning style suits them?
Is mental health education relevant in the modern school curriculum?
Exploring the learning conditions for kids in third world countries
Child education and food insecurity- What is the connection?
The impact of virtual learning on high school students
How does alcoholism affect a student and their education?
Homeschooling- What are its advantages and disadvantages?
How do teachers’ beliefs about intelligence affect their teaching?
What is the teacher’s role in developing a student’s self-concept?
Does race or ethnicity play a role in how teachers treat their students?
What are the teachers’ experiences with teaching students with special needs?
What methods do effective teachers use to motivate their students?
What are the most effective ways to teach reading and writing?
How does technology use affect how teachers teach, and students learn?
What are the challenges faced by teachers in rural areas?
What are the challenges faced by teachers in urban areas?
How do charter schools differ from traditional public schools?

Many topics and issues in the education system allow learners to find subjects to investigate and cover in their papers quickly. And this is not an exhaustive qualitative research topic list in this field. Nevertheless, it covers the most exciting ideas to explore.

Qualitative Research Topics In Public Health

Educators ask students to write academic papers while studying the public health sector. And this provides insights into crucial and relevant aspects of this sector. Here are qualitative research topics examples in this category.

How does the public health sector manage epidemics?
The role of public health in disaster management
Evaluating the effectiveness of public health campaigns
An analysis of the factors that hinder effective public health delivery
Access to healthcare: A study of rural and urban populations
Health needs assessment of refugees
Mental health support within the public health sector
The role of technology in public health
Understanding and addressing health disparities
Sexual and reproductive health rights in the public health discourse
How immunization benefits people in rural areas
What causes water-borne diseases, and how can society mitigate them?
Symptoms of high blood pressure among young people
How antenatal care helps pregnant women
How to boost breast cancer awareness

These are excellent qualitative research paper topics in the public health sector. Nevertheless, learners need sufficient time and resources to investigate their preferred titles in this category to write winning papers.

Qualitative Research Topics In Project Management

Project management writing focuses on ways to achieve results and goals while basing the achievement on the process. This subject covers planning, structuring, proffering, and controlling ways to execute plans to accomplish desired goals. Here are research topics for qualitative research in project management.

How effective communication strategies can impact the outcome of a project
How different leadership styles affect team productivity during a project
The role of conflict management in ensuring successful project outcomes
Gender differences in the perception and understanding of project risk
The impact of organizational culture on a project’s likelihood of success
How different project management methodologies affect its outcome
The effect of stakeholder involvement on project success
How to manage virtual teams effectively to ensure successful project outcomes
What motivates project managers to achieve successful results?
How can project managers create a positive work environment that leads to successful outcomes?
What challenges do project managers face when trying to achieve successful outcomes?
How can project management be used to achieve social change?
What are the ethical implications of project management?
What are the global impacts of project management?
Ways to achieve sustainable development through project management

These are topics to explore in project management. Nevertheless, learners need adequate time to investigate their chosen titles and write winning essays.

Qualitative Research Topics In Political Science

Qualitative research can also cover political science. Investigating this field enables people to understand it better and can be broad. Here are sample titles to consider in for your scientific thesis .

How do social media affect the way people engage with politics?
What motivates people to vote?
How does voting behavior change over time?
What are the consequences of gerrymandering?
How does campaign finance influence elections?
Interest groups- What is their role in politics?
How do the media cover politics?
What are the effects of political scandals?
How does public opinion influence policymakers?
How feminism enhanced the American politics
The adverse effects of misrepresentation
The American democracy- A look into its dimensions
Colorism, racism, and classism- How the American ideologies differ
What causes an election crisis?
Two-party system- What challenges does it face in America?
Black women’s inclusion in the American politics
Should America have a multi-party system?
Why mass media matters in politics’ scrutiny and promotion

While political science is a broad field, these narrow topics help learners handle their research effectively. Pick any of these ideas to write a winning essay.

Topics For Ethnography Qualitative Research

Ethnographic research entails studying and paying attention to society and describing it. Here are topics to consider for a research paper in this field.

Studying a subculture: Reasons people join and stay in gangs
How does social media use vary by culture?
An ethnographic study of a homeless shelter or soup kitchen
Understanding the lives of sex workers through ethnography
The impact of religion on family life
How does parenting vary between cultures?
How do children learn and socialize in different cultures?
What is the effect of migration on family life?
What are the experiences of refugees?- An explorative case study
What is the impact of poverty on family life?
How do people in different cultures understand and experience mental illness?
What is the role of the family in other cultures?
What are the end-of-life experiences and beliefs around death in different cultures?

This article has presented easy qualitative research topics. However, some need time and resources to investigate and write quality papers. Therefore, pick your paper title carefully to write an essay that will earn you an excellent grade.

Get Quality Writing Help Online

Maybe you have a title for your paper but not time for writing a unique, top-notch thesis. In that case, get the best dissertation services from our writers. We’re educated, native ENL writers with a proven track record of exceeding customers’ expectations. Our team helps university, college, and high school learners complete their writing and editing assignments. Whether writing a research paper is a requirement for a degree or a diploma course, we can help you. Contact us to get quality, custom, and cheap help from qualified experts in your study field.

The Oxford Handbook of Qualitative Research (2nd edn)

Patricia Leavy Independent Scholar Kennebunk, ME, USA

Cite Icon Cite
Permissions Icon Permissions

The Oxford Handbook of Qualitative Research, second edition, presents a comprehensive retrospective and prospective review of the field of qualitative research. Original, accessible chapters written by interdisciplinary leaders in the field make this a critical reference work. Filled with robust examples from real-world research; ample discussion of the historical, theoretical, and methodological foundations of the field; and coverage of key issues including data collection, interpretation, representation, assessment, and teaching, this handbook aims to be a valuable text for students, professors, and researchers. This newly revised and expanded edition features up-to-date examples and topics, including seven new chapters on duoethnography, team research, writing ethnographically, creative approaches to writing, writing for performance, writing for the public, and teaching qualitative research.

Signed in as

Institutional accounts.

GoogleCrawler [DO NOT DELETE]
Google Scholar Indexing

Personal account

Sign in with email/username & password
Get email alerts
Save searches
Purchase content
Activate your purchase/trial code
Add your ORCID iD

Institutional access

Sign in with username/password
Recommend to your librarian
Institutional account management
Get help with access

Access to content on Oxford Academic is often provided through institutional subscriptions and purchases. If you are a member of an institution with an active account, you may be able to access content in one of the following ways:

IP based access

Typically, access is provided across an institutional network to a range of IP addresses. This authentication occurs automatically, and it is not possible to sign out of an IP authenticated account.

Sign in through your institution

Choose this option to get remote access when outside your institution. Shibboleth/Open Athens technology is used to provide single sign-on between your institutionâ€™s website and Oxford Academic.

Click Sign in through your institution.
Select your institution from the list provided, which will take you to your institution's website to sign in.
When on the institution site, please use the credentials provided by your institution. Do not use an Oxford Academic personal account.
Following successful sign in, you will be returned to Oxford Academic.

If your institution is not listed or you cannot sign in to your institutionâ€™s website, please contact your librarian or administrator.

Enter your library card number to sign in. If you cannot sign in, please contact your librarian.

Society Members

Society member access to a journal is achieved in one of the following ways:

Sign in through society site

Many societies offer single sign-on between the society website and Oxford Academic. If you see â€˜Sign in through society siteâ€™ in the sign in pane within a journal:

Click Sign in through society site.
When on the society site, please use the credentials provided by that society. Do not use an Oxford Academic personal account.

If you do not have a society account or have forgotten your username or password, please contact your society.

Sign in using a personal account

Some societies use Oxford Academic personal accounts to provide access to their members. See below.

A personal account can be used to get email alerts, save searches, purchase content, and activate subscriptions.

Some societies use Oxford Academic personal accounts to provide access to their members.

Viewing your signed in accounts

Click the account icon in the top right to:

View your signed in personal account and access account management features.
View the institutional accounts that are providing access.

Signed in but can't access content

Oxford Academic is home to a wide variety of products. The institutional subscription may not cover the content that you are trying to access. If you believe you should have access to that content, please contact your librarian.

For librarians and administrators, your personal account also provides access to institutional account management. Here you will find options to view and activate subscriptions, manage institutional settings and access options, access usage statistics, and more.

Our books are available by subscription or purchase to libraries and institutions.

About Oxford Academic
Publish journals with us
University press partners
What we publish
New features
Open access
Rights and permissions
Accessibility
Advertising
Media enquiries
Oxford University Press
Oxford Languages
University of Oxford

Oxford University Press is a department of the University of Oxford. It furthers the University's objective of excellence in research, scholarship, and education by publishing worldwide

Copyright © 2024 Oxford University Press
Cookie settings
Cookie policy
Privacy policy
Legal notice

This Feature Is Available To Subscribers Only

This PDF is available to Subscribers Only

For full access to this pdf, sign in to an existing account, or purchase an annual subscription.

Write my thesis
Thesis writers
Buy thesis papers
Bachelor thesis
Master's thesis
Thesis editing services
Thesis proofreading services
Buy a thesis online
Write my dissertation
Dissertation proposal help
Pay for dissertation
Custom dissertation
Dissertation help online
Buy dissertation online
Cheap dissertation
Dissertation editing services
Write my research paper
Buy research paper online
Pay for research paper
Research paper help
Order research paper
Custom research paper
Cheap research paper
Research papers for sale
Thesis subjects
How It Works

Qualitative Research Topics & Ideas For Students

The Best Qualitative Research Topics For Students

Do you have difficulty finding a qualitative research title for your project? If you are, you need not worry because you are not alone. However, there are many unique qualitative titles you can explore for your research. You just need a few qualitative research title examples to get you started. Qualitative research is focused on data obtained through a researcher’s first-hand observations, natural setting recording, artifacts, case studies, documents, questionnaires, and interviews. The findings in qualitative research are usually non-numerical. Also, it is common in humanities and social sciences. This post provides over 100 qualitative research topics you can consider.

The Best Qualitative Research Topics That Impress the Teacher

Exceptional Qualitative Research Topics In Social Science

Qualitative research title examples for students, fantastic examples of qualitative research titles, good topics to start for qualitative research, qualitative research topics in education, quick examples of qualitative research topics, qualitative research topics in the philippines, qualitative researches topics about humanity & social science, great choices of qualitative research title examples, qualitative research topics for students to think about, our examples of the best qualitative research topics that impress the teacher.

An excellent research topic will help you earn a good grade. Consider any example of a qualitative research title from the following options:

The impacts of social media on physical social engagement in society
The benefits of treating mental disorders with medication
The effects of Gender-Based Violence on women’s social lives in rural areas
The decline of academic pursuit in third-world countries
Sexual workers: the stigma they experience
How has the promotion of feminist values influenced workplaces?
Free education: its impact in third-world countries
What is the correlation between education and success?
Ableism: its effects on disabled people in society
Food insecurity in third-world nations

The topic of your research paper can influence how easily you can conduct your study and draw conclusions.

Here are fantastic examples of qualitative research titles:

Female harm: how it is influenced by culture
The socioeconomic impacts of free education
The link between food insecurity and poor performance in schools
Alcoholism among college students: a critical study
How to mitigate child labor in our society
The root causes of child labor in Latin America
The stigma of living with transmissive medical conditions
The root cause of the stigma of people living with disabilities
How to identify depression in small children
Signs of autism in kids below two years old

Choosing a qualitative research topic is not a task you should take lightly because it can influence your performance. Here are some noteworthy qualitative research titles examples:

Basic patient care policies in developing nations
The impacts of alcoholism on education
Adult learning: what does it entail?
Homeschooling: Is it the latest trend after the pandemic?
Does computer literacy influence the quality of education kids enjoy?
How to effectively teach students with learning disabilities
The relationship between poor education systems and crime rates in third-world countries
Student bullying: the psychological impacts
Should high school students go through university preparedness programs?
research writing in high schools: its significance

Are you looking for qualitative research topic examples to start your study? Below are some creative examples to consider:

Remote tests: are they as effective as in-class tests?
The value of social activities in academic institutions
Why should healthcare be free in all countries?
The implications of racist laws on society
The reception of COVID-19 vaccines and treatments
What is the difference between foreign policies in first-world and third-world nations?
Racism and Colorism: what is the difference?
Dissecting the causes of low voter turnouts in the 21 st century
The challenges of social media on kid’s brain development
The inclusion of black women in American politics and its impacts

When competing with several brilliant minds, a good research topic can do you greatly. The following qualitative research examples titles are a great place to start:

Should school uniforms be discarded for high schoolers?
The need for equal representation in global politics
The implications of police brutality on politics
The role of parental care in foster kids
The distinction between Islamic values and Christian values
The correlation between political instability and migration
Sex trafficking and violence against women: what is the link?
How can global governments eradicate homelessness?
Fraternities and sororities: are they still relevant?
The role of literature in promoting societal changes

Qualitative research is popular in the education field and other social sciences. Choose a qualitative research title example on the subject of education from the following list:

Effectively introducing foreign languages in the high school curriculum
How can teachers help students with disabilities improve their learning?
The link between social activities and comprehension among students
Research writing in high schools: is it necessary?
How has virtual learning influenced teacher-student relationships?
The implications of allowing smartphones in classes
Should all schools introduce sign language lessons in their curriculum?
Student loans: their impacts on black students
The impacts of race on college acceptance rates
Poverty and education: what is the link?
Ethnic and socioeconomic causes of poor school attendance in developing worlds
Various teaching methods and their efficiency
Efficient teaching methods for children below two years
Why do students perform better in humanities than in sciences?
The difference between college acceptance and completion in most nations
Remote learning in developing countries
What are the best ways of approaching bullying in schools?
How do teachers promote inequality among students?
Does social class influence academic performance negatively or positively?
How do teachers shape their students’ personalities?

Coming up with a qualitative research title can be hard because of the numerous subject areas and the issue of uniqueness. Therefore, we have prepared the following qualitative title examples for you:

How to promote oral learning in classrooms
Political instability in developing countries: its economic impacts
The impacts of weather on social activities
Boredom and poor-decision making: the connection
Exploring the connection between attachment types and love languages
Socioeconomic impacts of instability on a country
How does social media impact the perception of reality
Reality TV shows: are they a true reflection of reality?
How culture applies to different age groups
Is social media influencing the loss of cultural values?

You can base your research topic on a specific region or nation, like the Philippines. A sample qualitative research title can get you started. You can pick a sample qualitative research title from the ideas below:

Why are so many Philippines residents migrating to America?
The impact of politics on migration in the Philippines
How has violence led to food insecurity in rural areas in the Philippines?
The Philippine education system: an overview
How cultural norms influence social activities in the Philippines
Gender roles in the Philippines society
How popular Filipino cultures have served as agents of social change in the nation
The link between male dominance and GBV in the Philippines
Barriers to clean hygiene in health centers in the Philippines
The spread of COVID in rural areas in the Philippines

Most top performers in research subjects attribute their success to choosing the best title for qualitative research. Here are some qualitative research topics about humanities and social science to promote good performance:

The impact of poor market rivalry on supply and demand
The role of parents in shaping kids’ morals
Is social media the root cause of poor societal morals?
How does alcohol impact a person’s normal behavior?
How often should adults engage in sporting activities?
Children’s eating habits and their influences
Low socioeconomic backgrounds and their impacts on self-esteem
The effect of the COVID-19 pandemic on the world’s views on viral diseases
How can school-going kids manage depression
Causes of mental challenges among school-going kids

Finding a good topic for qualitative research is a critical task that requires a lot of thought and research. However, we have simplified the process with the following qualitative topic ideas:

Pop music and erratic youth behavior: is there a link?
How do public figures influence cultures?
Ideas for improving healthcare in developing nations
Possible solutions for alleviating the food crisis in developing nations
New ways of mitigating viral diseases
Social media trends among the elderly
Quarantine as a mitigation approach for infectious diseases
Promoting social justice in patriarchal societies
Worrying trends among the young population
Emerging marketing trends in 2023

Qualitative research for college and high school students helps improve reading, writing, and intellectual skills. Here are some qualitative research examples and topic ideas for students :

How to detect and prevent natural disasters beforehand
Can the whole world have the same education system?
What is the most effective therapy for patients recuperating from brain surgery?
Possible solutions for promoting ethical practices in telehealth
Can addicts overcome addiction without therapy?
The latest technology trends and their impacts?
How can global governments promote mental health awareness?
Have smartphones caused reduced attention spans among users?
Sexual violence in rural areas
The introduction of Islam in African nations

We Are Here for You

Qualitative research is an investigative analysis of intangible or inexact data, mostly non-numerical. The title of qualitative research you choose will guide your entire research process and influence its conclusions. Do you need a paper or an example of a research title qualitative topic? Our expert team is ready to write it for you.

Qualitative Research

What is qualitative research.

Qualitative research is the methodology researchers use to gain deep contextual understandings of users via non-numerical means and direct observations. Researchers focus on smaller user samples—e.g., in interviews—to reveal data such as user attitudes, behaviors and hidden factors: insights which guide better designs.

“ There are also unknown unknowns, things we don’t know we don’t know.” — Donald Rumsfeld, Former U.S. Secretary of Defense

Transcript loading…

See how you can use qualitative research to expose hidden truths about users and iteratively shape better products.

Qualitative Research Focuses on the “Why”

Qualitative research is a subset of user experience (UX) research and user research . By doing qualitative research, you aim to gain narrowly focused but rich information about why users feel and think the ways they do. Unlike its more statistics-oriented “counterpart”, quantitative research , qualitative research can help expose hidden truths about your users’ motivations, hopes, needs, pain points and more to help you keep your project’s focus on track throughout development. UX design professionals do qualitative research typically from early on in projects because—since the insights they reveal can alter product development dramatically—they can prevent costly design errors from arising later. Compare and contrast qualitative with quantitative research here:

Qualitative research

Quantitative Research

You Aim to Determine

The “why” – to get behind how users approach their problems in their world

The “what”, “where” & “when” of the users’ needs & problems – to help keep your project’s focus on track during development

Loosely structured (e.g., contextual inquiries) – to learn why users behave how they do & explore their opinions

Highly structured (e.g., surveys) – to gather data about what users do & find patterns in large user groups

Number of Representative Users

Often around 5

Ideally 30+

Level of Contact with Users

More direct & less remote (e.g., usability testing to examine users’ stress levels when they use your design)

Less direct & more remote (e.g., analytics)

Statistically

You need to take great care with handling non-numerical data (e.g., opinions), as your own opinions might influence findings

Reliable – given enough test users

Regarding care with opinions, it’s easy to be subjective about qualitative data, which isn’t as comprehensively analyzable as quantitative data. That’s why design teams also apply quantitative research methods, to reinforce the “why” with the “what”.

Qualitative Research Methods You Can Use to Get Behind Your Users

You have a choice of many methods to help gain the clearest insights into your users’ world – which you might want to complement with quantitative research methods. In iterative processes such as user-centered design , you/your design team would use quantitative research to spot design problems, discover the reasons for these with qualitative research, make changes and then test your improved design on users again. The best method/s to pick will depend on the stage of your project and your objectives. Here are some:

Diary studies – You ask users to document their activities, interactions, etc. over a defined period. This empowers users to deliver context-rich information. Although such studies can be subjective—since users will inevitably be influenced by in-the-moment human issues and their emotions—they’re helpful tools to access generally authentic information.

Structured – You ask users specific questions and analyze their responses with other users’.

Semi-structured – You have a more free-flowing conversation with users, but still follow a prepared script loosely.

Ethnographic – You interview users in their own environment to appreciate how they perform tasks and view aspects of tasks.

Usability testing

Moderated – In-person testing in, e.g., a lab.

Unmoderated – Users complete tests remotely: e.g., through a video call.

Guerrilla – “Down-the-hall”/“down-and-dirty” testing on a small group of random users or colleagues.

User observation – You watch users get to grips with your design and note their actions, words and reactions as they attempt to perform tasks.

Qualitative research can be more or less structured depending on the method.

Qualitative Research – How to Get Reliable Results

Some helpful points to remember are:

Participants – Select a number of test users carefully (typically around 5). Observe the finer points such as body language. Remember the difference between what they do and what they say they do.

Moderated vs. unmoderated – You can obtain the richest data from moderated studies, but these can involve considerable time and practice. You can usually conduct unmoderated studies more quickly and cheaply, but you should plan these carefully to ensure instructions are clear, etc.

Types of questions – You’ll learn far more by asking open-ended questions. Avoid leading users’ answers – ask about their experience during, say, the “search for deals” process rather than how easy it was. Try to frame questions so users respond honestly: i.e., so they don’t withhold grievances about their experience because they don’t want to seem impolite. Distorted feedback may also arise in guerrilla testing, as test users may be reluctant to sound negative or to discuss fine details if they lack time.

Location – Think how where users are might affect their performance and responses. If, for example, users’ tasks involve running or traveling on a train, select the appropriate method (e.g., diary studies for them to record aspects of their experience in the environment of a train carriage and the many factors impacting it).

Overall, no single research method can help you answer all your questions. Nevertheless, The Nielsen Norman Group advise that if you only conduct one kind of user research, you should pick qualitative usability testing, since a small sample size can yield many cost- and project-saving insights. Always treat users and their data ethically. Finally, remember the importance of complementing qualitative methods with quantitative ones: You gain insights from the former; you test those using the latter.

Learn More about Qualitative Research

Take our course on User Research to see how to get the most from qualitative research.

Read about the numerous considerations for qualitative research in this in-depth piece.

This blog discusses the importance of qualitative research , with tips.

Explore additional insights into qualitative research here .

Answer a Short Quiz to Earn a Gift

What is the primary focus of qualitative research in user experience?

To determine statistical significance of user behavior
To explore user behaviors and motivations in-depth
To quantify user interaction across multiple platforms

How many participants typically participate in qualitative research studies?

About 5 to allow in-depth exploration
Between 30 and 50 for moderate generalization
Over 100 to guarantee statistical reliability

Which method do researchers often use in qualitative research to understand user experiences in their natural environment?

Ethnographic interviews
Laboratory experiments
Online surveys

What characterizes the analysis of data in qualitative research?

Simple tabulation of numeric responses
Statistical analysis of large data sets
Thematic analysis of detailed descriptions

What is a common challenge researchers face when they conduct qualitative research?

The ability to obtain a large enough sample size for statistical analysis.
The ability to remain objective and avoid bias in data interpretation.
The ability to use advanced statistical tools to analyze data.

Better luck next time!

Do you want to improve your UX / UI Design skills? Join us now

Congratulations! You did amazing

You earned your gift with a perfect score! Let us send it to you.

Check Your Inbox

We’ve emailed your gift to [email protected] .

Literature on Qualitative Research

Here’s the entire UX literature on Qualitative Research by the Interaction Design Foundation, collated in one place:

Learn more about Qualitative Research

Take a deep dive into Qualitative Research with our course User Research – Methods and Best Practices .

How do you plan to design a product or service that your users will love , if you don't know what they want in the first place? As a user experience designer, you shouldn't leave it to chance to design something outstanding; you should make the effort to understand your users and build on that knowledge from the outset. User research is the way to do this, and it can therefore be thought of as the largest part of user experience design .

In fact, user research is often the first step of a UX design process—after all, you cannot begin to design a product or service without first understanding what your users want! As you gain the skills required, and learn about the best practices in user research, you’ll get first-hand knowledge of your users and be able to design the optimal product—one that’s truly relevant for your users and, subsequently, outperforms your competitors’ .

This course will give you insights into the most essential qualitative research methods around and will teach you how to put them into practice in your design work. You’ll also have the opportunity to embark on three practical projects where you can apply what you’ve learned to carry out user research in the real world . You’ll learn details about how to plan user research projects and fit them into your own work processes in a way that maximizes the impact your research can have on your designs. On top of that, you’ll gain practice with different methods that will help you analyze the results of your research and communicate your findings to your clients and stakeholders—workshops, user journeys and personas, just to name a few!

By the end of the course, you’ll have not only a Course Certificate but also three case studies to add to your portfolio. And remember, a portfolio with engaging case studies is invaluable if you are looking to break into a career in UX design or user research!

We believe you should learn from the best, so we’ve gathered a team of experts to help teach this course alongside our own course instructors. That means you’ll meet a new instructor in each of the lessons on research methods who is an expert in their field—we hope you enjoy what they have in store for you!

All open-source articles on Qualitative Research

How to do a thematic analysis of user interviews.

1.2k shares
3 years ago

How to Visualize Your Qualitative User Research Results for Maximum Impact

Creating Personas from User Research Results

Best Practices for Qualitative User Research

Card Sorting

Contextual Interviews and How to Handle Them

Understand the User’s Perspective through Research for Mobile UX

11 mths ago

Ethnography

7 simple ways to get better results from ethnographic research.

Semi-structured qualitative studies

Pros and cons of conducting user interviews.

Workshops to Establish Empathy and Understanding from User Research Results

How to Moderate User Interviews

4 years ago

Question Everything

Adding Quality to Your Design Research with an SSQS Checklist

8 years ago

Open Access—Link to us!

We believe in Open Access and the democratization of knowledge . Unfortunately, world-class educational materials such as this page are normally hidden behind paywalls or in expensive textbooks.

If you want this to change , cite this page , link to us, or join us to help us democratize design knowledge !

Privacy Settings

Our digital services use necessary tracking technologies, including third-party cookies, for security, functionality, and to uphold user rights. Optional cookies offer enhanced features, and analytics.

Experience the full potential of our site that remembers your preferences and supports secure sign-in.

Governs the storage of data necessary for maintaining website security, user authentication, and fraud prevention mechanisms.

Enhanced Functionality

Saves your settings and preferences, like your location, for a more personalized experience.

Referral Program

We use cookies to enable our referral program, giving you and your friends discounts.

Error Reporting

We share user ID with Bugsnag and NewRelic to help us track errors and fix issues.

Optimize your experience by allowing us to monitor site usage. You’ll enjoy a smoother, more personalized journey without compromising your privacy.

Analytics Storage

Collects anonymous data on how you navigate and interact, helping us make informed improvements.

Differentiates real visitors from automated bots, ensuring accurate usage data and improving your website experience.

Lets us tailor your digital ads to match your interests, making them more relevant and useful to you.

Advertising Storage

Stores information for better-targeted advertising, enhancing your online ad experience.

Personalization Storage

Permits storing data to personalize content and ads across Google services based on user behavior, enhancing overall user experience.

Advertising Personalization

Allows for content and ad personalization across Google services based on user behavior. This consent enhances user experiences.

Enables personalizing ads based on user data and interactions, allowing for more relevant advertising experiences across Google services.

Receive more relevant advertisements by sharing your interests and behavior with our trusted advertising partners.

Enables better ad targeting and measurement on Meta platforms, making ads you see more relevant.

Allows for improved ad effectiveness and measurement through Meta’s Conversions API, ensuring privacy-compliant data sharing.

LinkedIn Insights

Tracks conversions, retargeting, and web analytics for LinkedIn ad campaigns, enhancing ad relevance and performance.

LinkedIn CAPI

Enhances LinkedIn advertising through server-side event tracking, offering more accurate measurement and personalization.

Google Ads Tag

Tracks ad performance and user engagement, helping deliver ads that are most useful to you.

Share Knowledge, Get Respect!

or copy link

Cite according to academic standards

Simply copy and paste the text below into your bibliographic reference list, onto your blog, or anywhere else. You can also just hyperlink to this page.

New to UX Design? We’re Giving You a Free ebook!

Download our free ebook The Basics of User Experience Design to learn about core concepts of UX design.

In 9 chapters, we’ll cover: conducting user interviews, design thinking, interaction design, mobile UX design, usability, UX research, and many more!

300 Qualitative Research Topics For Easy Academic Victory

You are on the right page if you are looking for a perfect qualitative research topic and have difficulty finding it.

Writing a qualitative research paper is not a piece of cake. Let alone the research and writing; the first and most significant challenge is finding the qualitative research topic that is a perfect fit for you. You have to be sure about a handful of things to decide the best topic for you, and you can ace it. First and most important, you must choose a topic that you find appealing and motivating. If you are not interested in a topic, not only will it tire you, but it will make your research dull and exhausting as well. Two, choose a relevant topic that adds value to the academia. Last but not least, there must be enough data about the theme that you are about to choose. In case of any confusion, concerns, or questions, you can consult for paper writing help from Paper Perk .

Table of Contents

Qualitative Research Topics: Psych, Education, Health, Medicine & More

Wandering around the internet looking for qualitative research topics can be exhausting. We are writing this article to make it a one-stop solution for you. There is enough inspiration to come up with the most suitable topic for you, no matter your academic area.

Psychological Qualitative Research Topics

Emotional Intelligence: Can it be an excellent alternative to IQ?
Oxytocin in autistic children.
Meditation: A means to control emotions
Emotional dependency during pregnancy
Schizophrenia: Causes and treatment
Post-traumatic stress disorder: Causes, symptoms, diagnosis, treatment
Psychology of physical attraction in opposite sexes
What is a borderline personality disorder? Facts and myths
Psychological elements in electronic media: Marketing, persuasion, and propaganda
Psychology in public relations
Psychology in international relations
Causes of depression and what to do to avoid it?
Detailed analysis of speech disorders
Criminal psychology and the origin of serial killers
Psychological aspects of the aging process
The character of NGOs regarding awareness about mental health
How to prevent child abuse with the help of psychology?
Aspects of criminal psychology
Emotional imbalance: Causes, symptoms, and treatment
Memory loss? Is it a neural problem or a psychological problem?
The secrets to well-being
Mental disorders in teens

Read More: Psychology Research Paper Topics

Political Qualitative Research Topics

What role did masons’ living conditions have in forming workers’ political movements ?
How do presidential elections matter?
Political compass: A critical analysis
Is a representative democracy genuinely democratic?
How has Europe evolved in terms of democracy?
Democratic evolution in the United States in the last three centuries
Is democracy a myth or a reality?
Why is voter abstention a danger to democracy?
Role of minorities in the United States politics
Freedom of expression in developing countries
Freedom of expression under Islamist regimes
Misconduct on television: Awareness and Legislation

Read More: Political Science Research Topics

Qualitative Research Topics for Art and Culture

Is history a universally shared concept?
Can a man be indifferent to art?
How do we articulate the link between science and technology?
What is the purpose of art?
What does the artist show us? Expression and symbolism
What is an artist? What does an artist do?
What is an artist?
Is art always transgressive?
Work of art: The proof of the freedom of the spirit
Can art compete with nature?
Does art only have the function of freeing us from our passions?
Passion and emotion in art
Absurd surrealism
Grotesque surrealism
Different movements in art
Progress and evolution of art
The art of the middle ages
The art of the renaissance
Is the work of art necessarily beautiful?
Does art change our relationship with reality?
Does the critic able to regard something as art or not?
Does the experience of beauty necessarily pass through the work of art?
Things that art teaches us, artists, as a technician
Importance of meaning in a work of art
Meaningless art and absurdist existentialism
The need for a model in the production of art
Can we conceive of a society without art?
Different aspects of society are defined and differentiated by art
The fear of industrial production among the artists
Dystopian art: The ability to predict the future among artists
Elements that distinguish the work of art from any object
Why the artists deserve a special place in the world
Rules and regulations in art
Reproduction of art: Plagiarism in art and harm of repetition
Art and escapism
Anachronistic art and the element of satire
Should the artist seek to please the audience
Can we blame a work of art for not being worth anything?
Does every human being understand and appreciate art?
Do you think that, according to Aristotle’s formula, art is an “imitation of nature”?
Why does what we dislike in life please us in a work of art?
Does art seem to be a “revolt against the tyranny of desire”?
Why do we apply the term “creation” to artistic activity?
Sacrosanctity of art and human duty to uphold it

Qualitative Research Topics Involving Environment Issues

Advantages and disadvantages of technology for the environment
Benefits of environmental education in children
Methods to make modern society aware of the environment
Alternative energies
Nuclear energy production: An alternative to the planet’s growing energy demand
X degree care for the environment
Analyze the advantages and disadvantages of the different types of renewable energy
Need to develop environmentally friendly products
Documentation of experience: Protection of nature
Elements involved in environmental deterioration
Environment and strategies for sustainability
Environmental activism in adolescents and young people
Sustainability and security for environmental justice
Raising awareness about the protection of the environment through sports, literature, and culture
Environment influenced by collective and individual actions
Awareness of the advantages and disadvantages of the use of technologies
Effects and causes of acid rain and groundwater
Ways to live sustainably or focus on a specific aspect of sustainability
Recent disasters caused by global warming
Greenhouse effect and melting ice
Importance of renewable energy
Wildlife and endangered species
Air quality and pollution
Water quality in underdeveloped countries
Famines caused by environmental changes
Various recycling programs: Which one is the most effective
Awareness to participate in the initiatives about the protection of the environment
How deforestation has affected animals or how it is related to climate change
Importance of the coral reef, the dangers of its destruction, or preservation strategies

Read More: Best Legal Research Paper Topics

Qualitative Research Topics on Public Relations

Public Relations and socio-productive activity
Organizational Communication and Public Relations
Ethics in the practice of Public Relations
Epistemological foundations of Public Relations.
Factors that limit the practice of Public Relations.
Public Relations is a strategic factor of the company.
Relationship workers and professional practice in the United States
Corporate image and Public Relations
Corporate identity and Public Relations.
Public Relations and social enterprise
Public Relations as an integration factor.
Profile of the teacher of Public Relations.
Legislation of Public Relations in Europe
The free exercise of Public Relations
Public Relations and the labor market
Public Relations and digital communication
History of Public Relations in Europe
History of Public Relations in the United States
History of Public Relations in Canada
Semiology and Public Relations
Linguistics and Public Relations
Indicators to evaluate Public Relations programs
Planning of Public Relations in organizations
Public Relations through radio and television
University teaching in Public Relations

Read More: Criminal Justice Research Paper Topics

Qualitative Research Topics for High School Students

How has technological development helped hospitals?
Benefits of technological advances in the classroom
Advantages and disadvantages of technology in children
How and why are fun activities different during every stage of the educational period, Montessori, school, college, and university?
Most dangerous challenges that must be avoided as students
Challenges made by celebrities: How do future career choices and jobs look for you in the next decade?
The pros and cons of viral challenges from Tiktok and reels
How/what do social networks help?
Disadvantages of social networks
Problems of social network in adolescents
What is the most suitable age for children to have a social media presence?
Toxic behaviors accompanied by social media: Prevention and Solution

Educational Qualitative Research Topics

History of education
How education has changed over time in one place
Importance of sports and games in early childhood education
Possible results of adding playtime to education
Pros and cons of a grading system
Most effective grading methods
How tests affect the success or mental health of students
Assessment methods: Such as standardized tests or open tests
Investigate how dress codes affect student performance
Different schools of learning
Qualities that effective teachers possess
Effects of teaching and lesson planning
Different approaches of public and private schools
Pros or cons of a charter school systems
How class size and number of students affect student performance
Qualities of an Effective Teacher
The length of the school day, or the length of breaks, and how the durations affect the progress of the students
How the start time of school affects performance

Read More: Biology Research Paper Topics

Qualitative Research Topics for Business and Economy

The chartered accountant and the client: what relationship today?
How does the arrival of the low-cost accountant change differentiation practices in accounting?
Law and accounting: how do the new laws impact the profession of a chartered accountant?
Accountants, why are they so difficult to recruit?
How does accounting make it possible to assess the state of health of a company?
Accounting and new technologies: the future or the end of the accountant?
Can inequalities be reduced with new technologies?
What distribution of wealth in France (or other)?
Why do companies relocate?
Protectionism or free trade?
Has the organization of work changed after the pandemic?
Do flexibility and home-working reduce unemployment?
Should we be afraid of financial bubbles?
Financial crises, similar cogs? Are we headed to a new recession?
What is money, and who creates it?
The stock market against growth?
How does economic growth lead to sustainable development?
What is the impact of innovation on growth?
What role does investment play?
What are the keys to productivity?
Is it possible to measure economic growth?
Why do stock markets crash?

Read More Law / Legal Research Paper Topics

Medical Qualitative Research Topics

Current situation of palliative care in health institutions in the United States
Complications of acute diarrheal disease in children under five years of age
Nutritional status of surgical oncology patients and its relationship with postoperative complications
Cost-effectiveness of cervical cancer screening strategies in California
Thyroid cancer and risk factors in patients treated at San Jose Hospital
Communicative processes in American ancestral medicine
Seronegative rheumatoid arthritis in a patient with a pulmonary septic complication
Telemedicine and Tele-health of the inhabitants of Massachusetts
Feasibility study and technical, infrastructure and human sustainability for the implementation of the care model
Epidemiological profile of the general surgery outpatient service
Physical activity and sport as determinants of health
Cost of treatment and follow-up of people with the human immunodeficiency virus (HIV)
National Health System for the formal introduction of the family doctor
How is the social security system in France unsustainable?
Comparative study of health systems in the United States and Europe?
Allergies and intolerances, what are the differences for lactose?
Is gluten intolerance an actual disease?
Social inequalities in health in rural countries
Public health policy or health policy
Public health at the European level, what public policies
Public health in developing countries
Public health and environmental issues through the prism of red meat consumption
Communication of medicines when advertising is prohibited

Related: Medical research paper writing services

Qualitative Research Topics for Law and Crime

Consequences of the death penalty.
Capital offenses: Law, persecution, and penalties
Classic methods used in the death penalty
Arguments for or against this punishment
The stipulation for others and the promise of a stronghold
Consumer protection in the American Law
The social attributions of the captain of the ship
Recent developments in the constitutional justice
Reframing the civil code
Critical analysis of the scope of the principle of free justice
Institutions of the criminal records
Equality of the creditors in collective proceedings
Risk management in expertise
The repressive jurisdiction of the court of peace in the event of insufficiency of the judges
Labor law and the rights of workers
Secularism and labor law: Question of religion in business
The Management of transit migration
The legal framework of bank credit
Legal regime of intellectual rights
Compensation for moral damage
Family criminal law in the relation between parents and children
Unilateral termination of the contract
Role of the military in public prosecution
Critical analysis of the pre-jurisdictional procedure regarding human rights
The fault of the administration in land matters
The subsequent attitude of the victim and compensation for the damages
Action for retrocession in the event of excessive liberalities
The exploitation of child labor under Labor Law
Reflection on the introduction of the system of the dematerialization of bearer shares
Study on the feasibility of a structure for the amicable settlement of consumer disputes
The life insurance contract
Legal liability of the community pharmacist
The legal age of marriage: legislative, jurisprudential, and doctrinal approach
Protection of the unpaid seller in the event of insolvency of the buyer
The renewal of the employment contract
The regulatory framework for outdoor advertising, signs, and pre-sign
Extra-judicial resolution of land disputes

Qualitative Research Topics Concerning Drug Abuse

Drug use in adolescents
Consequences of excessive drug use
Legal and illegal addictive substances
Effects of drugs on the brain
Effects of alcohol and tobacco
Social science research on drugs
Psychological research on drugs
Biomedical research in the field of drugs
Drug addiction treatment
Cannabis in Europe: a study of social research
Drug expectations
Dynamics of drug cartels: Perception, politics, and markets
Sources and uses of methamphetamine
Sensation seeking
Contribution of research in psychology on drugs
Drug research: recent developments
in the field of psychology
Places of cannabis consumption
Drug prevention for the most vulnerable young people
Cannabis retail markets
Cultivation of cannabis at home
Cannabis Dependence and the Strength of Marijuana
Cannabis and youth
Cannabis and schizophrenia

Women Issues and Rights Qualitative Research Topics

How to educate teens about pregnancy
Women’s rights violations in the middle east
Forced-Hijab conflict in Iran
How to live a healthy pregnancy period
Access to health is a fundamental right: what role can parliaments play in ensuring health for women and children?
The wave of feminist movements in the Middle East
The situation of women and children in times of conflict
The role of women parliamentarians in the prevention of national and international terrorism and in the promotion of peace
Promoting women’s participation and gender equality in multilateral negotiations
The contribution of women to the establishment of a new global financial and economic model
Feminism in Egypt
Impact of the media on the status of women and image of women politicians in the media
Poverty and extreme poverty: women as victims of this phenomenon and as key actors in the fight to eradicate it
Complementarity of women’s rights and children’s rights
Health and well-being of older people, especially women
Women in Armed Conflict
Feminism in the South Asian Subcontinent
Violence against women
Role of women in ensuring environmental protection within the framework of development
Women in the informal economic sector and their access to microcredits
Women in economic life and the world of work
Impact of women on the democratic process
Women in the political process
Women’s rights violations in Africa
Financing women’s electoral campaigns
Women’s political and electoral training
Women in political parties
United Nations Initiatives for Women’s Education and the role of Malala Yousafzai
Women in national parliaments
The partnership between men and women in politics

Still feel the need to know more? It is noble to be insatiable about knowledge, so here are 402 More Research Paper Topics for you.

As we said in the beginning, writing a qualitative research paper is not a piece of cake. But after reading all these topics above, you now know that it is not rocket science either. All you need is a little commitment and a pint of inspiration potion that we have above 300 research paper topics.

If you still need professional qualitative research writing services, you can get to know our writers or contact us. We are online 24/7 with immediate responses to offer you research paper help .

Order Original Papers & Essays

Your First Custom Paper Sample is on Us!

Timely Deliveries

No Plagiarism & AI

100% Refund

Try Our Free Paper Writing Service

Related blogs.

Connections with Writers and support

Privacy and Confidentiality Guarantee

Average Quality Score

189+ Most Exciting Qualitative Research Topics For Students

Researchers conduct qualitative studies to gain a holistic understanding of the topic under investigation. Analyzing qualitative? Looking for the best qualitative research topics?

If yes, you are here at the right place. We are discussing here all the topics in every field. Basically, qualitative research is the most valuable approach within the fields of social sciences, humanities, and various other fields.

Qualitative research uses a wide array of methods such as interviews, focus groups, participant observation, content analysis, and case studies. Even among others, to gather and analyze non-numerical data.

In this blog, we will explore the diverse, most interesting qualitative research topics, highlighting their importance. Whether you are a student, a scholar, or a practitioner in your field, these best qualitative research ideas are most helpful for you.

Must Read: 21 Ways To Get Good Grades In College

What Is Qualitative Research

Table of Contents

Qualitative research is a systematic and exploratory approach to research that focuses on understanding and interpreting the complexities of human experiences, behaviors, and phenomena. It aims to provide in-depth insights into the “how” and “why” of various issues by examining them in their natural settings and contexts. Unlike quantitative research, which primarily deals with numerical data and statistical analysis, qualitative research relies on non-numerical data such as interviews, observations, textual analysis, and participant narratives to uncover deeper meanings and patterns.

Key Characteristics Of Qualitative Research

These are the main features of Qualitative research. It is such as;

1. Subjective Understanding

Qualitative research is concerned with subjective aspects of human experiences, such as beliefs, emotions, values, and perceptions. It seeks to understand the world from the perspectives of the individuals being studied.

2. Contextual Exploration

Researchers immerse themselves in the context or environment in which the phenomenon of interest occurs. This contextual understanding is crucial for interpreting the findings accurately.

3. Flexibility

Qualitative research methods are flexible and adaptive, allowing researchers to adjust their approaches as they gain insights during the research process.

4. Small Sample Sizes

Qualitative studies often involve smaller samples compared to quantitative research, but they prioritize depth over breadth, aiming to gain a profound understanding of a particular group or issue.

5. Data Collection Techniques

Qualitative data is gathered through various techniques, including interviews, focus groups, participant observations, document analysis, and open-ended surveys. Researchers often use a combination of these methods to triangulate their findings.

6. Inductive Approach

Qualitative research typically employs an inductive approach, meaning that researchers develop theories or concepts based on the data they collect, rather than testing pre-existing hypotheses.

7. Rich and Detailed Data

The data collected in qualitative research is rich and descriptive, often involving transcripts of interviews, field notes, or coded textual data. Researchers analyze this data to identify themes, patterns, and relationships.

8 Great Tips On How To Choose Good Qualitative Research Topics

Here are some tips to help you select strong qualitative research topics:

1. Personal Interest and Passion: Start by considering what genuinely interests and excites you. Your enthusiasm for the topic will sustain your motivation throughout the research process.

2. Relevance: Ensure that your chosen topic is relevant to your field of study or the discipline you are working within. It should contribute to existing knowledge or address a meaningful research gap.

3. Research Gap Identification: Review relevant literature and research to identify gaps or areas where there is limited qualitative research. Look for unanswered questions or underexplored aspects of a particular subject.

4. Feasibility: Assess whether the topic is feasible within the scope of your research project. Consider factors like available time, resources, and access to potential participants or data sources.

5. Clarity and Specificity: Your research topic should be clear, specific, and well-defined. Avoid overly broad topics that are difficult to explore in depth. Narrow it down to a manageable focus.

6. Significance: Ask yourself why your research topic matters. Consider the potential implications and applications of your findings. How might your research contribute to understanding, policy, or practice?

7. Originality: Aim for a unique angle or perspective on the topic. While you can build on existing research, strive to offer a fresh viewpoint or new insights.

8. Researchable : Ensure that your topic is researchable using qualitative methods. It should allow you to collect relevant data and answer research questions effectively.

137+ Most Exciting Qualitative Research Topics For All Students

These are The following best qualitative research topics are given below for the students.

Qualitative Research Topics In Health and Medicine

Experiences of healthcare workers during the COVID-19 pandemic.
Perceptions of alternative medicine among cancer patients.
Coping mechanisms of individuals with chronic illnesses.
The impact of telemedicine on patient-doctor relationships.
Barriers to mental health treatment-seeking among minority populations.
Qualitative analysis of patient experiences with organ transplantation.
Decision-making processes of families regarding end-of-life care.

Qualitative Research Topics In Education

The role of parental involvement in student academic achievement.
Teacher perceptions of remote learning during a pandemic.
Peer influence on academic motivation and performance.
Exploring the experiences of homeschooling families.
The impact of technology on the classroom environment.
Factors influencing student dropout rates in higher education.

Qualitative Research Topics In Psychology and Mental Health

Understanding the stigma associated with seeking therapy.
Experiences of individuals living with anxiety disorders.
Perceptions of body image among adolescents.
Coping strategies of survivors of traumatic events.
The impact of social support on mental health recovery.
Narratives of individuals with eating disorders.

Qualitative Research Topics In Sociology and Culture

Experiences of immigrants in adapting to a new culture.
The role of social media in shaping cultural identities.
Perceptions of police-community relations in marginalized communities.
Gender dynamics in the workplace and career progression.
Qualitative analysis of online dating experiences.
Narratives of LGBTQ+ individuals coming out to their families.

Qualitative Research Topics In Technology and Society

User experiences with augmented reality applications.
Perceptions of online privacy and data security.
The impact of social media on political activism.
Ethical considerations in artificial intelligence development.
Qualitative analysis of online gaming communities.
Experiences of individuals participating in virtual reality environments.

Qualitative Research Topics In Environmental Studies

Public perceptions of climate change and environmental policies.
Experiences of individuals involved in sustainable living practices.
Qualitative analysis of environmental activism movements.
Community responses to natural disasters and climate change.
Perspectives on wildlife conservation efforts.

Qualitative Research Topics In Business and Economics

Qualitative analysis of consumer behavior and brand loyalty.
Entrepreneurial experiences of women in male-dominated industries.
Factors influencing small business success or failure.
Corporate social responsibility and its impact on consumer trust.
Experiences of employees in remote work settings.

Qualitative Research Topics In Politics and Governance

Perceptions of voter suppression and electoral integrity.
Experiences of political activists in grassroots movements.
The role of social media in shaping political discourse.
Narratives of individuals involved in civil rights movements.
Qualitative analysis of government responses to crises.

Qualitative Research Topics In Family and Relationships

Experiences of couples in long-distance relationships.
Parenting styles and their impact on child development.
Sibling dynamics and their influence on individual development.
Narratives of individuals in arranged marriages.
Experiences of single parents in raising their children.

Qualitative Research Topics In Art and Culture

Qualitative analysis of the impact of art therapy on mental health.
Experiences of artists in exploring social and political themes.
Perceptions of cultural appropriation in the arts.
Narratives of individuals involved in the hip-hop culture.
The role of art in preserving cultural heritage.

Qualitative Research Topics In Crime and Justice

Experiences of formerly incarcerated individuals reentering society.
Perceptions of racial profiling and police violence.
Qualitative analysis of restorative justice programs.
Narratives of victims of cyberbullying.
Perspectives on juvenile justice reform.

Qualitative Research Topics In Sports and Recreation

Experiences of athletes in overcoming career-threatening injuries.
The role of sports in building resilience among youth.
Perceptions of performance-enhancing drugs in professional sports.
Qualitative analysis of sports fandom and its impact on identity.
Narratives of individuals involved in adaptive sports.

Qualitative Research Topics In History and Heritage

Experiences of descendants of historical events or figures.
Perceptions of cultural preservation and heritage conservation.
Narratives of individuals connected to indigenous cultures.
The impact of oral history on preserving traditions.
Qualitative analysis of historical reenactment communities.

Qualitative Research Topics In Religion and Spirituality

Experiences of individuals who have undergone religious conversion.
Perceptions of spirituality and well-being.
The role of religion in shaping moral values and ethics.
Narratives of individuals who have left religious communities.
Qualitative analysis of interfaith dialogue and cooperation.

Qualitative Research Topics In Travel and Tourism

Experiences of solo travelers in foreign countries.
Perceptions of sustainable tourism practices.
Qualitative analysis of cultural immersion through travel.
Narratives of individuals on pilgrimages or spiritual journeys.
Experiences of individuals living in tourist destinations.

Qualitative Research Topics In Human Rights and Social Justice

Narratives of human rights activists in advocating for change.
Experiences of refugees and asylum seekers.
Perceptions of income inequality and wealth distribution.
Qualitative analysis of anti-discrimination campaigns.
Perspectives on global efforts to combat human trafficking.

Qualitative Research Topics In Aging and Gerontology

Experiences of individuals in assisted living facilities.
Perceptions of aging and quality of life in older adults.
Narratives of caregivers for elderly family members.
The impact of intergenerational relationships on well-being.
Qualitative analysis of end-of-life decisions and hospice care.

Qualitative Research Topics In Language and Communication

Experiences of individuals learning a second language.
Perceptions of non-verbal communication in cross-cultural interactions.
Narratives of people who communicate primarily through sign language.
The role of language in shaping identity and belonging.
Qualitative analysis of online communication in virtual communities.

Qualitative Research Topics In Media and Entertainment

Experiences of content creators in the digital media industry.
Perceptions of representation in the film and television industry.
The impact of music on emotional well-being and identity.
Narratives of individuals involved in fan communities.
Qualitative analysis of the effects of binge-watching on mental health.

Qualitative Research Topics In Ethics and Morality

Experiences of individuals faced with ethical dilemmas.
Perceptions of moral relativism and cultural differences.
Narratives of whistleblowers in exposing corporate misconduct.
The role of empathy in ethical decision-making.
Qualitative analysis of the ethics of artificial intelligence.

Qualitative Research Topics In Technology and Education

Experiences of teachers integrating technology in the classroom.
Perceptions of online learning and its effectiveness.
The impact of educational apps on student engagement.
Narratives of students with disabilities using assistive technology.
Qualitative analysis of the digital divide in education.

Qualitative Research Topics In Gender and Sexuality

Experiences of transgender individuals in transitioning.
Perceptions of gender roles and expectations.
Narratives of individuals in same-sex relationships.
The impact of intersectionality on experiences of gender and sexuality.
Qualitative analysis of gender-based violence and advocacy.

Qualitative Research Topics In Migration and Diaspora

Experiences of immigrants in maintaining cultural ties to their home country.
Perceptions of identity among second-generation immigrants.
Narratives of refugees resettling in new countries.
The role of diaspora communities in supporting homeland causes.
Qualitative analysis of immigration policies and their impact on families.

Qualitative Research Topics In Food and Nutrition

Experiences of individuals with specific dietary restrictions.
Perceptions of food sustainability and ethical consumption.
Narratives of people with eating disorders seeking recovery.
The role of food in cultural identity and traditions.
Qualitative analysis of food insecurity and hunger relief efforts.

Qualitative Research Topics In Urban Studies and Community Development

Experiences of residents in gentrifying neighborhoods.
Perceptions of community engagement and empowerment.
Narratives of individuals involved in urban farming initiatives.
The impact of housing policies on homelessness.
Qualitative analysis of neighborhood safety and crime prevention.

Qualitative Research Topics In Science and Technology Ethics

Experiences of scientists in navigating ethical dilemmas.
Perceptions of scientific responsibility in climate change research.
Narratives of whistleblowers in scientific misconduct cases.
The role of ethics in emerging technology development.
Qualitative analysis of the ethics of genetic engineering.

Qualitative Research Topics In Social Media and Online Communities

Experiences of individuals in online support groups.
Perceptions of social media’s influence on self-esteem.
Narratives of social media influencers and their impact.
The role of online communities in social and political movements.
Qualitative analysis of cyberbullying and online harassment.

Qualitative Research Topics in Daily Life

The Impact of Social Media on Personal Relationships and Well-being.
Exploring the Experience of Remote Work during the COVID-19 Pandemic.
Perceptions of Sustainable Living Practices Among Urban Dwellers.
Qualitative Analysis of Food Choices and Eating Habits in a Fast-paced Society.
Understanding the Motivations and Barriers to Physical Activity Among Adults.

Qualitative Research Topics for Students

Student Perceptions of Online Learning: Challenges and Opportunities.
Peer Pressure and Decision-making Among Adolescents.
Exploring the Transition from High School to College: Student Experiences.
The Role of Extracurricular Activities in Student Development.
Motivations and Challenges of Student Entrepreneurs in Starting Their Businesses.

Qualitative Research Topics for STEM Students

Qualitative Analysis of Ethical Dilemmas in Scientific Research.
Women in STEM: Barriers, Challenges, and Strategies for Success.
Understanding the Decision-making Process in Biomedical Research.
Qualitative Exploration of Team Dynamics in Engineering Projects.
Perceptions of Artificial Intelligence and Automation Among STEM Professionals.

Qualitative Research Titles Examples

“Voices of Resilience: Narratives of Cancer Survivors.”
“Exploring Cultural Identity Among Immigrant Communities.”
“From Addiction to Recovery: Life Stories of Former Substance Abusers.”
“Inside the Classroom: Student and Teacher Perspectives on Inclusive Education.”
“Navigating Caregiving: Experiences of Family Members Caring for Alzheimer’s Patients.”

Qualitative Research Topics in Education

Teacher Beliefs and Practices in Culturally Responsive Pedagogy.
Qualitative Study of Bullying Incidents in Elementary Schools.
Homeschooling: Parent and Student Perspectives on Alternative Education.
Evaluating the Impact of Technology Integration in Classroom Learning.
Parental Involvement in Early Childhood Education: A Qualitative Analysis.

Qualitative Research Topics for Nursing Students

Patient Experiences of Chronic Illness Management.
The Role of Empathy in Nursing Practice: A Qualitative Study.
Qualitative Exploration of End-of-Life Care Decision-making.
Perceptions of Nurse-Patient Communication in Intensive Care Units.
Nursing Burnout: Causes, Consequences, and Coping Strategies.

Qualitative Research Topics for Human Studies

Understanding the Impact of Climate Change on Vulnerable Communities.
The Role of Social Support in Mental Health Recovery.
Experiences of First-time Homebuyers in the Real Estate Market.
Exploring the Motivations and Challenges of Volunteering.
Narratives of Trauma Survivors: Coping and Resilience.

Qualitative Research Topics 2023

Emerging Trends in Remote Work: Employee Perspectives.
The Influence of Social Media on Political Engagement in the Post-COVID-19 Era.
Qualitative Study of Mental Health Stigma Reduction Campaigns.
Sustainability Practices in Business: Stakeholder Perceptions and Implementation.
Narratives of Long COVID: The Lived Experience of Survivors.

10 Major Differences Between Qualitative And Quantitative Research

Here are the 10 best differences between qualitative and quantitative research:

Conclusion – Qualitative Research Topics

Consequently, the selection of qualitative research topics is a critical phase in the journey of any researcher or student pursuing qualitative inquiry. The process of choosing the right topic involves a delicate balance of personal passion, research significance, feasibility, and ethical considerations.

As we’ve discussed, it’s essential to choose a topic that not only resonates with your interests but also contributes to the broader academic or practical discourse. Qualitative research offers a unique lens through which to examine the complexities of human experiences, behaviors, and phenomena.

It provides the opportunity to delve deep into the “how” and “why” of various subjects, offering nuanced insights that quantitative methods may not capture. Whether you are investigating personal narratives, cultural dynamics, educational practices, or social phenomena, qualitative research allows you to uncover the rich tapestry of human existence.

What is a good topic for qualitative research?

Self-esteem among people from low socioeconomic backgrounds. The advantages of online learning over physical learning.

What are the five topics of qualitative research?

These are biography, ethnography, phenomenology, grounded theory, and case study.

What is the easiest type of qualitative research?

Content analysis is possibly the most common and straightforward QDA method. At the simplest level, content analysis.

What are the 4 R’s of qualitative research?

Qualitative social research, whether conducted as ethnography, participant observation, or in situ interviewing, fares poorly when examined by the criteria of representativeness, reactivity, reliability, and replicability.

How To Do Homework Fast – 11 Tips To Do Homework Fast

Homework is one of the most important parts that have to be done by students. It has been around for…

How to Write an Assignment Introduction – 6 Best Tips

In essence, the writing tasks in academic tenure students are an integral part of any curriculum. Whether in high school,…

202 Best Choice Qualitative Research Topics for Students 2023

As a college student, you’ll always encounter a series of essays to write while in school. These essays will always be of different types, and they’ll include research essays. There are two important things to know when embarking on research paper writing. First, you have to understand if your research work is to be quantitative or qualitative.

For qualitative research writing, you’ll be required to go through a fundamental research process which entails gathering raw and primary information through field research which can either be done through interviews, surveys, observations, or through any other way of harnessing raw data.

There are so many research topics to look into when preparing for your essay writing. Among these are some of the qualitative research topics ideas to look out for.

Examples of Qualitative Research Topics

There is a wide variety of what qualitative research can cover. Below you’ll find a qualitative research topics list with some initial ideas that can get you started.

How Social media is affecting the physical social engagement of Teenagers in Urban areas
Health benefits of treating depression with medication and some of them realize results
The efficiency of Peer educators in creating social awareness on social and health issues
Understanding the effects of Gender-Based Violence (GBV) in rural areas and how this negatively impacts women in such areas
Challenges of the sexual reproductive health of child brides and how this can be controlled
Social investigation into the cause of dropping out of the school of teenagers and young adults and some of the ways through which it can be addressed
Academic pursuit: is it deteriorating in Third World countries
Benefits of engaging in social activities to depressed people and those struggling with certain mental health challenges
Understanding the learning challenges of dyslexic children and progressive ways to administer help to them
A questioning of the stigma associated with cerebral palsy
The social implications of living with disabilities
How ableism affects disabled people in our society
Understanding the benefits and promotion of feminist values in rural areas
The need to promote free education across every learning environment
Investigating the root causes of food insecurities in low-income neighborhoods
Understanding the challenges of housing insecurity and food insecurity
Displacement and its accompanying effects: a look into the mental health of homeless people
How culture contributes to female harm in the society
Socioeconomic benefits of free education in our society
Understanding the intricacies of food banks in low-income neighborhoods
How food insecurity causes children to perform poorly in school
The effects of alcohol on college students
Drugs & Substance: which do young adults abuse more
The causes of child labor and how to mitigate against such practices
Educational challenges on children in rural areas and ways to proffer help
Benefits of Pro Bono services to the less privileged
How Pro Bono legal aids improve the justice system
Understanding the stigma of living with disabilities
Causes of the stigma that surrounds certain health challenges

Qualitative Nursing Research Topics

Even while your area of specialization in college is in medicine or health care, you’ll still be required to carry out research writing. If your specialization is in nursing, there is still research to embark on. Because nursing itself as a field of study touches across a lot of medical and health care issues which requires research to be paid attention to and brought relevance to. Here are some qualitative research topics examples on nursing to look into.

How to administer care to patients with Dyslexia
How to help patients with mental disorders
Signs and Symptoms of autism and how to extend help to these patients
How to identify Alzheimer’s in older patients
Understanding how to deal with pregnant women and emergencies
Administering antenatal care to pregnant women
Patient care in psychiatric units and a look into that
Identifying and treating Alzheimer’s
Basics of patient care
Difference between workloads of ICU nurses and OR nurses
Care for hypertensive patients with diabetes
First aid treatments for gun victims
Pros & cons of nurses’ drug prescription
The role of nurses in rural healthcare services
Understanding care in nursing homes
Intensive care for visually and verbally impaired patients
Benefits of immunization in rural areas
Outlining and handling the side effects of the COVID-19 vaccine
Why compassion and sensitivity is important for nurses
The role of nurses and healthcare corporations
How nurses can handle cardiovascular challenges
Signs of Depression and anxiety in patients
How to take care of people with special needs
How to take care of elderly
How to administer care to survivors of female genital mutilation
How to assist rape survivors
Bipolar symptoms in young adults
How to curb drug abuse
Effective ways to carry out health outreach programs

Qualitative Research Topics in Education

While there are other topics specific to different other specifications, they all mostly spring up from education. There are so many issues and topics that pertain to the education system which allows for more research to be embarked on this aspect of learning. The one realistic and easy way to evaluate and improve the quality of education is through the carrying out of the research. Here are some good qualitative research topics in education.

Which learning style is efficient for autistic children
Importance of mental health education in the school curriculum
The importance of computer literacy
Learning condition of children in third world countries
Food insecurity and child education
How virtual learning affects high school students
Can students manipulate lockdown browsers?
Effects of alcoholism on education
Understanding adult learning
The need to encourage adult education
Impacts of computer literacy on education
Disadvantages of homeschooling
Importance of guidance and counseling in schools
Significance of school uniform to learning
How to improve oral learning in classrooms
The negative impacts of student loans
How to teach and improve the learning abilities of ADHD students
The importance of sign language learning
Impacts of the poor educational system
The need to include technology into the education system
How smartphones affect students academic performance in the academic system
Psychological impacts of student bullying
Developing connecting through virtual learning
Importance of research writing in schools
The need to improve educational learning for children in low-income neighborhoods
The importance of reading to preschoolers
Importance of social activities in schools
Ways to help children with learning disabilities to improve their learning
Easy ways to master foreign languages for students in high school.

Qualitative Research Topics in Political Science

Writing qualitative research also extends to the field of political sciences. Qualitative research is very important in the political field because it allows people to have a clearer understanding of the field as in most cases, it can easily become broad. Narrowing your research to specific topics will help you handle the research effectively. Here are some qualitative research topics lists in political science.

How COVID-19 impacts low-income neighborhoods
The need for the cancellation of student loans and not the suspension of student loans
Racism as a dividing factor in America
Segregation and racist laws
Effects of capitalism on America’s health system
Why healthcare in America should be free
The abortion regulation bill and its effects
What the return to office move says about American capitalism
The distinction between Liberalism and Conservatism and places where they merge
Understanding neoliberalism and how it impacts our activities in the society
COVID-19: Vaccines and treatments
The importance of independent judiciary and legislation to improve the American legal system
Understanding the effects of American incarceration
Carceral system in America and how it targets mostly people in minority groups
Understanding American foreign policy
The negative impacts of peace war in affected countries
A look into the dimensions of the American democracy
Classism, racism, colorism: understanding the different American ideologies
The need for the cancellation of the American carceral system
Dissecting the causes of the election crisis
The need for a free polling system to encourage free and fair voting practices
The challenges of Americans two-party system
The role of mass media in promoting and scrutinizing politics
Why America needs a multi-party system
The inclusion of black women in American politics
The need for representation in American politics
The negative impacts of misrepresentation
Addressing Police brutality in America
The role of feminism in enhancing American politics

Topics for Ethnography Qualitative Research

Carrying out Ethnographic research requires paying attention and studying society from a descriptive perspective. This form of research writing is usually useful in cultural anthropology. Practically, when you are writing ethnographic research, you’ll be required to carry out a series of research writings. One of the most important researches you’ll be embarking on which in turn becomes primarily beneficial to the essay is qualitative research. With qualitative research writing in ethnography, every single collected raw data is useful information to you that will enable you to pull through with your essay. Listed below are some qualitative research paper topics.

How does Sexual violence in rural areas affect the psychological well-being of the women and girls in such locality
Evaluating the role of parental care and the lack of it thereof in the lives of some foster kids
An insight into the primary causes of the swift migration happening from African to Europe
Examining the distinction between the Sharia laws applicable to Muslims abroad and those in African countries
Explain how political instability in certain countries is often the remote cause of the general instability that arises in any country.
The relationship between political and instability and migration
Exploring the link between violence against women and sex trafficking
Analyzing the socioeconomic impacts of instability on a nation
An overview of the rise of oral literature study in literature
The social implications of American confinement systems on individuals
What are the ways through which sororities impacts the lives of those within it
A study into the ways through which government enables homelessness
A study of the American society and how to reach it is in culture and history
Outlining some of the challenges of Muslims in Africa
Discussing the leniency of the practice of Islam in foreign spaces
A study into the importance of fraternities and sororities
How is the popular culture impacting the psyche of Americans
The impacts of westernization in human perception
How does literature contribute to change the world
Discussing the challenges transgender people undergo within and outside the LGBTQ+ community
How social media distorts the perception of reality
The role of the smartphone in our deteriorating attention span
Understanding culture and how it applies to different American groups
The importance of books in the lives of children in rural areas
How violence breeds housing and food insecurity
The role of capitalism in generating food insecurity
Understanding the effects of female genitalia mutilation in girls
How popular culture serves as an agent of social change
How male dominance breeds male violence

Qualitative Research Topics in Public Health

Even while within the public health sector, you’ll still be required to write qualitative research on your field of study. What this allows is that it gives you the much-needed insight into looking into relevant and crucial aspects of your field of specialty that might need the extra attention. Knowing this while writing research will enable you to broaden your understanding of the intricacies of your course of study as it allows you to gather information firsthand. Here are some research topics for qualitative research on public health.

The benefits of immunization in rural areas
Causes of water-borne diseases in such our society and how this can be mitigated against
The simple signs and symptoms on how to indicate high blood pressure in young people
The importance of antenatal care to every pregnant woman
Ways to create awareness for breast cancer
Barriers to clean hygiene in health centers
Understanding the health challenges of lack of drinkable water in a community
Prevalence of COVID and how to control its spread
Importance of nose masks in the times of Covid-19
Health insurance and how it benefits people
Importance of safe menstrual care for girls
How to control the widespread of Flu
Benefits of exercise to obese people
How to properly manage to live with Diabetes type II
Causes of malnutrition in young children
Control of the prevalence of drug and substance abuse
Prevention methods for COVID-19
The importance of contraceptives for sexually active teenagers
Why do teenagers need sex education and not complete abstinence
Poorly maintained public hospitals and their effects
The need to properly manage the source of our waste products disposal
Factors generating health issues in pregnant women
The importance of post-natal to nursing mothers
The need for the creation of health awareness in rural areas
The growing impacts of COVID-19 on the healthcare system
The health benefits of constant sanitation
Role of social distancing in limiting the cases of COVID-19 in the society
The difference between epidemic and pandemic
The role of finance in propagating an inclusive and efficient healthcare system.

Qualitative Research Topics in Project Management

Project management entails making plans, structuring, controlling, and proffering reliable ways for the carrying out of such plans to achieve desirable results or goals. The main focus of every form of project management writing is that it focuses on ways through which goals or results can be achieved while basing it on a given process. There are so many topics that are in line with project management. Here is a look into some of the easy qualitative research topics within this particular field of study.

The leading causes of underdevelopment in most sectors in the society and possible ways to mitigate against this.
The assessment of the contributing factors that lead to failed healthcare systems in rural areas
Understanding the challenges that often generate food insecurity and scarcity within a given locality
Plausible ways through which food insecurity can be handled within a given society
An investigation into the causes of increased child mortality cases in rural areas
Impacts of financial management in a country and how it benefits citizens
How to set up an operation pest control activity in a society
Investigation into the current cost of living in the society and how this is propagated by capitalism
The need to create a more inclusive healthcare system
The root causes of lack of medical insurance and possible ways to curb it.
The importance of health management in organizations and possible ways to ensure it
Procedure to encourage the building of health centers in underdeveloped areas
Promoting the growth and enhancement of management systems that ensure positive impacts on underserved areas
Analysis of the cost-effectiveness of manufacturing learning centers in urban areas
Evaluation of accommodation spaces in public nursing homes
Enhancing the living situation of charity homes and ways to ensure it
What is the benefit of building communication masts in rural areas
Efficient ways of regulating revenue distribution
Design system for building online regulated parking system
Design process and management of geolocators
How to ensure effective budget planning
The importance of budgeting systems and revenue regulatory systems in government sectors
Overview of budgeting and budget padding as a financial regulatory system.
The problem with healthcare construction projects in Louisiana
The role of strategy in enhancing business management
Student loan challenges faced by academic students in America
The importance of developing healthy customer-client relationships
Foreign policy and its impact on developing industrial complexes

Are you writing your college research essay and wondering about how to go about it and, at the same time, if it will require expert writing help? Look no further, for you can rest assured that there are professional research writing experts here that will provide you with quality but cheap essays that will get you high grades! Don’t hesitate to try it out if you are struggling.

Make PhD experience your own

What are the strengths and limitations to utilising creative methods in public and patient involvement in health and social care research? A qualitative systematic review

Olivia R. Phillips 1 , 2 na1 ,
Cerian Harries 2 , 3 na1 ,
Jo Leonardi-Bee 1 , 2 , 4 na1 ,
Holly Knight 1 , 2 ,
Lauren B. Sherar 2 , 3 ,
Veronica Varela-Mato 2 , 3 &
Joanne R. Morling 1 , 2 , 5

Research Involvement and Engagement volume 10 , Article number: 48 ( 2024 ) Cite this article

103 Accesses

2 Altmetric

Metrics details

There is increasing interest in using patient and public involvement (PPI) in research to improve the quality of healthcare. Ordinarily, traditional methods have been used such as interviews or focus groups. However, these methods tend to engage a similar demographic of people. Thus, creative methods are being developed to involve patients for whom traditional methods are inaccessible or non-engaging.

To determine the strengths and limitations to using creative PPI methods in health and social care research.

Electronic searches were conducted over five databases on 14th April 2023 (Web of Science, PubMed, ASSIA, CINAHL, Cochrane Library). Studies that involved traditional, non-creative PPI methods were excluded. Creative PPI methods were used to engage with people as research advisors, rather than study participants. Only primary data published in English from 2009 were accepted. Title, abstract and full text screening was undertaken by two independent reviewers before inductive thematic analysis was used to generate themes.

Twelve papers met the inclusion criteria. The creative methods used included songs, poems, drawings, photograph elicitation, drama performance, visualisations, social media, photography, prototype development, cultural animation, card sorting and persona development. Analysis identified four limitations and five strengths to the creative approaches. Limitations included the time and resource intensive nature of creative PPI, the lack of generalisation to wider populations and ethical issues. External factors, such as the lack of infrastructure to support creative PPI, also affected their implementation. Strengths included the disruption of power hierarchies and the creation of a safe space for people to express mundane or “taboo” topics. Creative methods are also engaging, inclusive of people who struggle to participate in traditional PPI and can also be cost and time efficient.

‘Creative PPI’ is an umbrella term encapsulating many different methods of engagement and there are strengths and limitations to each. The choice of which should be determined by the aims and requirements of the research, as well as the characteristics of the PPI group and practical limitations. Creative PPI can be advantageous over more traditional methods, however a hybrid approach could be considered to reap the benefits of both. Creative PPI methods are not widely used; however, this could change over time as PPI becomes embedded even more into research.

Plain English Summary

It is important that patients and public are included in the research process from initial brainstorming, through design to delivery. This is known as public and patient involvement (PPI). Their input means that research closely aligns with their wants and needs. Traditionally to get this input, interviews and group discussions are held, but this can exclude people who find these activities non-engaging or inaccessible, for example those with language challenges, learning disabilities or memory issues. Creative methods of PPI can overcome this. This is a broad term describing different (non-traditional) ways of engaging patients and public in research, such as through the use or art, animation or performance. This review investigated the reasons why creative approaches to PPI could be difficult (limitations) or helpful (strengths) in health and social care research. After searching 5 online databases, 12 studies were included in the review. PPI groups included adults, children and people with language and memory impairments. Creative methods included songs, poems, drawings, the use of photos and drama, visualisations, Facebook, creating prototypes, personas and card sorting. Limitations included the time, cost and effort associated with creative methods, the lack of application to other populations, ethical issues and buy-in from the wider research community. Strengths included the feeling of equality between academics and the public, creation of a safe space for people to express themselves, inclusivity, and that creative PPI can be cost and time efficient. Overall, this review suggests that creative PPI is worthwhile, however each method has its own strengths and limitations and the choice of which will depend on the research project, PPI group characteristics and other practical limitations, such as time and financial constraints.

Peer Review reports

Introduction

Patient and public involvement (PPI) is the term used to describe the partnership between patients (including caregivers, potential patients, healthcare users etc.) or the public (a community member with no known interest in the topic) with researchers. It describes research that is done “‘with’ or ‘by’ the public, rather than ‘to,’ ‘about’ or ‘for’ them” [ 1 ]. In 2009, it became a legislative requirement for certain health and social care organisations to include patients, families, carers and communities in not only the planning of health and social care services, but the commissioning, delivery and evaluation of them too [ 2 ]. For example, funding applications for the National Institute of Health and Care Research (NIHR), a UK funding body, mandates a demonstration of how researchers plan to include patients/service users, the public and carers at each stage of the project [ 3 ]. However, this should not simply be a tokenistic, tick-box exercise. PPI should help formulate initial ideas and should be an instrumental, continuous part of the research process. Input from PPI can provide unique insights not yet considered and can ensure that research and health services are closely aligned to the needs and requirements of service users PPI also generally makes research more relevant with clearer outcomes and impacts [ 4 ]. Although this review refers to both patients and the public using the umbrella term ‘PPI’, it is important to acknowledge that these are two different groups with different motivations, needs and interests when it comes to health research and service delivery [ 5 ].

Despite continuing recognition of the need of PPI to improve quality of healthcare, researchers have also recognised that there is no ‘one size fits all’ method for involving patients [ 4 ]. Traditionally, PPI methods invite people to take part in interviews or focus groups to facilitate discussion, or surveys and questionnaires. However, these can sometimes be inaccessible or non-engaging for certain populations. For example, someone with communication difficulties may find it difficult to engage in focus groups or interviews. If individuals lack the appropriate skills to interact in these types of scenarios, they cannot take advantage of the participation opportunities it can provide [ 6 ]. Creative methods, however, aim to resolve these issues. These are a relatively new concept whereby researchers use creative methods (e.g., artwork, animations, Lego), to make PPI more accessible and engaging for those whose voices would otherwise go unheard. They ensure that all populations can engage in research, regardless of their background or skills. Seminal work has previously been conducted in this area, which brought to light the use of creative methodologies in research. Leavy (2008) [ 7 ] discussed how traditional interviews had limits on what could be expressed due to their sterile, jargon-filled and formulaic structure, read by only a few specialised academics. It was this that called for more creative approaches, which included narrative enquiry, fiction-based research, poetry, music, dance, art, theatre, film and visual art. These practices, which can be used in any stage of the research cycle, supported greater empathy, self-reflection and longer-lasting learning experiences compared to interviews [ 7 ]. They also pushed traditional academic boundaries, which made the research accessible not only to researchers, but the public too. Leavy explains that there are similarities between arts-based approaches and scientific approaches: both attempts to investigate what it means to be human through exploration, and used together, these complimentary approaches can progress our understanding of the human experience [ 7 ]. Further, it is important to acknowledge the parallels and nuances between creative and inclusive methods of PPI. Although creative methods aim to be inclusive (this should underlie any PPI activity, whether creative or not), they do not incorporate all types of accessible, inclusive methodologies e.g., using sign language for people with hearing impairments or audio recordings for people who cannot read. Given that there was not enough scope to include an evaluation of all possible inclusive methodologies, this review will focus on creative methods of PPI only.

We aimed to conduct a qualitative systematic review to highlight the strengths of creative PPI in health and social care research, as well as the limitations, which might act as a barrier to their implementation. A qualitative systematic review “brings together research on a topic, systematically searching for research evidence from primary qualitative studies and drawing the findings together” [ 8 ]. This review can then advise researchers of the best practices when designing PPI.

Public involvement

The PHIRST-LIGHT Public Advisory Group (PAG) consists of a team of experienced public contributors with a diverse range of characteristics from across the UK. The PAG was involved in the initial question setting and study design for this review.

Search strategy

For the purpose of this review, the JBI approach for conducting qualitative systematic reviews was followed [ 9 ]. The search terms were (“creativ*” OR “innovat*” OR “authentic” OR “original” OR “inclu*”) AND (“public and patient involvement” OR “patient and public involvement” OR “public and patient involvement and engagement” OR “patient and public involvement and engagement” OR “PPI” OR “PPIE” OR “co-produc*” OR “co-creat*” OR “co-design*” OR “cooperat*” OR “co-operat*”). This search string was modified according to the requirements of each database. Papers were filtered by title, abstract and keywords (see Additional file 1 for search strings). The databases searched included Web of Science (WoS), PubMed, ASSIA and CINAHL. The Cochrane Library was also searched to identify relevant reviews which could lead to the identification of primary research. The search was conducted on 14/04/23. As our aim was to report on the use of creative PPI in research, rather than more generic public engagement, we used electronic databases of scholarly peer-reviewed literature, which represent a wide range of recognised databases. These identified studies published in general international journals (WoS, PubMed), those in social sciences journals (ASSIA), those in nursing and allied health journals (CINAHL), and trials of interventions (Cochrane Library).

Inclusion criteria

Only full-text, English language, primary research papers from 2009 to 2023 were included. This was the chosen timeframe as in 2009 the Health and Social Reform Act made it mandatory for certain Health and Social Care organisations to involve the public and patients in planning, delivering, and evaluating services [ 2 ]. Only creative methods of PPI were accepted, rather than traditional methods, such as interviews or focus groups. For the purposes of this paper, creative PPI included creative art or arts-based approaches (e.g., e.g. stories, songs, drama, drawing, painting, poetry, photography) to enhance engagement. Titles were related to health and social care and the creative PPI was used to engage with people as research advisors, not as study participants. Meta-analyses, conference abstracts, book chapters, commentaries and reviews were excluded. There were no limits concerning study location or the demographic characteristics of the PPI groups. Only qualitative data were accepted.

Quality appraisal

Quality appraisal using the Critical Appraisal Skills Programme (CASP) checklist [ 10 ] was conducted by the primary authors (ORP and CH). This was done independently, and discrepancies were discussed and resolved. If a consensus could not be reached, a third independent reviewer was consulted (JRM). The full list of quality appraisal questions can be found in Additional file 2 .

Data extraction

ORP extracted the study characteristics and a subset of these were checked by CH. Discrepancies were discussed and amendments made. Extracted data included author, title, location, year of publication, year study was carried out, research question/aim, creative methods used, number of participants, mean age, gender, ethnicity of participants, setting, limitations and strengths of creative PPI and main findings.

Data analysis

The included studies were analysed using inductive thematic analysis [ 11 ], where themes were determined by the data. The familiarisation stage took place during full-text reading of the included articles. Anything identified as a strength or limitation to creative PPI methods was extracted verbatim as an initial code and inputted into the data extraction Excel sheet. Similar codes were sorted into broader themes, either under ‘strengths’ or ‘limitations’ and reviewed. Themes were then assigned a name according to the codes.

The search yielded 9978 titles across the 5 databases: Web of Science (1480 results), PubMed (94 results), ASSIA (2454 results), CINAHL (5948 results) and Cochrane Library (2 results), resulting in 8553 different studies after deduplication. ORP and CH independently screened their titles and abstracts, excluding those that did not meet the criteria. After assessment, 12 studies were included (see Fig. 1 ).

PRISMA flowchart of the study selection process

Study characteristics

The included studies were published between 2018 and 2022. Seven were conducted in the UK [ 12 , 14 , 15 , 17 , 18 , 19 , 23 ], two in Canada [ 21 , 22 ], one in Australia [ 13 ], one in Norway [ 16 ] and one in Ireland [ 20 ]. The PPI activities occurred across various settings, including a school [ 12 ], social club [ 12 ], hospital [ 17 ], university [ 22 ], theatre [ 19 ], hotel [ 20 ], or online [ 15 , 21 ], however this information was omitted in 5 studies [ 13 , 14 , 16 , 18 , 23 ]. The number of people attending the PPI sessions varied, ranging from 6 to 289, however the majority (ten studies) had less than 70 participants [ 13 , 14 , 16 , 17 , 18 , 19 , 20 , 21 , 22 , 23 ]. Seven studies did not provide information on the age or gender of the PPI groups. Of those that did, ages ranged from 8 to 76 and were mostly female. The ethnicities of the PPI group members were also rarely recorded (see Additional file 3 for data extraction table).

Types of creative methods

The type of creative methods used to engage the PPI groups were varied. These included songs, poems, drawings, photograph elicitation, drama performance, visualisations, Facebook, photography, prototype development, cultural animation, card sorting and creating personas (see Table 1 ). These were sometimes accompanied by traditional methods of PPI such as interviews and focus group discussions.

The 12 included studies were all deemed to be of good methodological quality, with scores ranging from 6/10 to 10/10 with the CASP critical appraisal tool [ 10 ] (Table 2 ).

Thematic analysis

Analysis identified four limitations and five strengths to creative PPI (see Fig. 2 ). Limitations included the time and resource intensity of creative PPI methods, its lack of generalisation, ethical issues and external factors. Strengths included the disruption of power hierarchies, the engaging and inclusive nature of the methods and their long-term cost and time efficiency. Creative PPI methods also allowed mundane and “taboo” topics to be discussed within a safe space.

Theme map of strengths and limitations

Limitations of creative PPI

Creative ppi methods are time and resource intensive.

The time and resource intensive nature of creative PPI methods is a limitation, most notably for the persona-scenario methodology. Valaitis et al. [ 22 ] used 14 persona-scenario workshops with 70 participants to co-design a healthcare intervention, which aimed to promote optimal aging in Canada. Using the persona method, pairs composed of patients, healthcare providers, community service providers and volunteers developed a fictional character which they believed represented an ‘end-user’ of the healthcare intervention. Due to the depth and richness of the data produced the authors reported that it was time consuming to analyse. Further, they commented that the amount of information was difficult to disseminate to scientific leads and present at team meetings. Additionally, to ensure the production of high-quality data, to probe for details and lead group discussion there was a need for highly skilled facilitators. The resource intensive nature of the creative co-production was also noted in a study using the persona scenario and creative worksheets to develop a prototype decision support tool for individuals with malignant pleural effusion [ 17 ]. With approximately 50 people, this was also likely to yield a high volume of data to consider.

To prepare materials for populations who cannot engage in traditional methods of PPI was also timely. Kearns et al. [ 18 ] developed a feedback questionnaire for people with aphasia to evaluate ICT-delivered rehabilitation. To ensure people could participate effectively, the resources used during the workshops, such as PowerPoints, online images and photographs, had to be aphasia-accessible, which was labour and time intensive. The author warned that this time commitment should not be underestimated.

There are further practical limitations to implementing creative PPI, such as the costs of materials for activities as well as hiring a space for workshops. For example, the included studies in this review utilised pens, paper, worksheets, laptops, arts and craft supplies and magazines and took place in venues such as universities, a social club, and a hotel. Further, although not limited to creative PPI methods exclusively but rather most studies involving the public, a financial incentive was often offered for participation, as well as food, parking, transport and accommodation [ 21 , 22 ].

Creative PPI lacks generalisation

Another barrier to the use of creative PPI methods in health and social care research was the individual nature of its output. Those who participate, usually small in number, produce unique creative outputs specific to their own experiences, opinions and location. Craven et al. [ 13 ], used arts-based visualisations to develop a toolbox for adults with mental health difficulties. They commented, “such an approach might still not be worthwhile”, as the visualisations were individualised and highly personal. This indicates that the output may fail to meet the needs of its end-users. Further, these creative PPI groups were based in certain geographical regions such as Stoke-on-Trent [ 19 ] Sheffield [ 23 ], South Wales [ 12 ] or Ireland [ 20 ], which limits the extent the findings can be applied to wider populations, even within the same area due to individual nuances. Further, the study by Galler et al. [ 16 ], is specific to the Norwegian context and even then, maybe only a sub-group of the Norwegian population as the sample used was of higher socioeconomic status.

However, Grindell et al. [ 17 ], who used persona scenarios, creative worksheets and prototype development, pointed out that the purpose of this type of research is to improve a certain place, rather than apply findings across other populations and locations. Individualised output may, therefore, only be a limitation to research wanting to conduct PPI on a large scale.

If, however, greater generalisation within PPI is deemed necessary, then social media may offer a resolution. Fedorowicz et al. [ 15 ], used Facebook to gain feedback from the public on the use of video-recording methodology for an upcoming project. This had the benefit of including a more diverse range of people (289 people joined the closed group), who were spread geographically around the UK, as well as seven people from overseas.

Creative PPI has ethical issues

As with other research, ethical issues must be taken into consideration. Due to the nature of creative approaches, as well as the personal effort put into them, people often want to be recognised for their work. However, this compromises principles so heavily instilled in research such as anonymity and confidentiality. With the aim of exploring issues related to health and well-being in a town in South Wales, Byrne et al. [ 12 ], asked year 4/5 and year 10 pupils to create poems, songs, drawings and photographs. Community members also created a performance, mainly of monologues, to explore how poverty and inequalities are dealt with. Byrne noted the risks of these arts-based approaches, that being the possibility of over-disclosure and consequent emotional distress, as well as people’s desire to be named for their work. On one hand, the anonymity reduces the sense of ownership of the output as it does not portray a particular individual’s lived experience anymore. On the other hand, however, it could promote a more honest account of lived experience. Supporting this, Webber et al. [ 23 ], who used the persona method to co-design a back pain educational resource prototype, claimed that the anonymity provided by this creative technique allowed individuals to externalise and anonymise their own personal experience, thus creating a more authentic and genuine resource for future users. This implies that anonymity can be both a limitation and strength here.

The use of creative PPI methods is impeded by external factors

Despite the above limitations influencing the implementation of creative PPI techniques, perhaps the most influential is that creative methodologies are simply not mainstream [ 19 ]. This could be linked to the issues above, like time and resource intensity, generalisation and ethical issues but it is also likely to involve more systemic factors within the research community. Micsinszki et al. [ 21 ], who co-designed a hub for the health and well-being of vulnerable populations, commented that there is insufficient infrastructure to conduct meaningful co-design as well as a dominant medical model. Through a more holistic lens, there are “sociopolitical environments that privilege individualism over collectivism, self-sufficiency over collaboration, and scientific expertise over other ways of knowing based on lived experience” [ 21 ]. This, it could be suggested, renders creative co-design methodologies, which are based on the foundations of collectivism, collaboration and imagination an invalid technique in the research field, which is heavily dominated by more scientific methods offering reproducibility, objectivity and reliability.

Although we acknowledge that creative PPI techniques are not always appropriate, it may be that their main limitation is the lack of awareness of these methods or lack of willingness to use them. Further, there is always the risk that PPI, despite being a mandatory part of research, is used in a tokenistic or tick-box fashion [ 20 ], without considering the contribution that meaningful PPI could make to enhancing the research. It may be that PPI, let alone creative PPI, is not at the forefront of researchers’ minds when planning research.

Strengths of creative PPI

Creative ppi disrupts power hierarchies.

One of the main strengths of creative PPI techniques, cited most frequently in the included literature, was that they disrupt traditional power hierarchies [ 12 , 13 , 17 , 19 , 23 ]. For example, the use of theatre performance blurred the lines between professional and lay roles between the community and policy makers [ 12 ]. Individuals created a monologue to portray how poverty and inequality impact daily life and presented this to representatives of the National Assembly of Wales, Welsh Government, the Local Authority, Arts Council and Westminster. Byrne et al. [ 12 ], states how this medium allowed the community to engage with the people who make decisions about their lives in an environment of respect and understanding, where the hierarchies are not as visible as in other settings, e.g., political surgeries. Creative PPI methods have also removed traditional power hierarchies between researchers and adolescents. Cook et al. [ 13 ], used arts-based approaches to explore adolescents’ ideas about the “perfect” condom. They utilised the “Life Happens” resource, where adolescents drew and then decorated a person with their thoughts about sexual relationships, not too dissimilar from the persona-scenario method. This was then combined with hypothetical scenarios about sexuality. A condom-mapping exercise was then implemented, where groups shared the characteristics that make a condom “perfect” on large pieces of paper. Cook et al. [ 13 ], noted that usually power imbalances make it difficult to elicit information from adolescents, however these power imbalances were reduced due to the use of creative co-design techniques.

The same reduction in power hierarchies was noted by Grindell et al. [ 17 ], who used the person-scenario method and creative worksheets with individuals with malignant pleural effusion. This was with the aim of developing a prototype of a decision support tool for patients to help with treatment options. Although this process involved a variety of stakeholders, such as patients, carers and healthcare professionals, creative co-design was cited as a mechanism that worked to reduce power imbalances – a limitation of more traditional methods of research. Creative co-design blurred boundaries between end-users and clinical staff and enabled the sharing of ideas from multiple, valuable perspectives, meaning the prototype was able to suit user needs whilst addressing clinical problems.

Similarly, a specific creative method named cultural animation was also cited to dissolve hierarchies and encourage equal contributions from participants. Within this arts-based approach, Keleman et al. [ 19 ], explored the concept of “good health” with individuals from Stoke-on Trent. Members of the group created art installations using ribbons, buttons, cardboard and straws to depict their idea of a “healthy community”, which was accompanied by a poem. They also created a 3D Facebook page and produced another poem or song addressing the government to communicate their version of a “picture of health”. Public participants said that they found the process empowering, honest, democratic, valuable and practical.

This dissolving of hierarchies and levelling of power is beneficial as it increases the sense of ownership experienced by the creators/producers of the output [ 12 , 17 , 23 ]. This is advantageous as it has been suggested to improve its quality [ 23 ].

Creative PPI allows the unsayable to be said

Creative PPI fosters a safe space for mundane or taboo topics to be shared, which may be difficult to communicate using traditional methods of PPI. For example, the hypothetical nature of condom mapping and persona-scenarios meant that adolescents could discuss a personal topic without fear of discrimination, judgement or personal disclosure [ 13 ]. The safe space allowed a greater volume of ideas to be generated amongst peers where they might not have otherwise. Similarly, Webber et al. [ 23 ], , who used the persona method to co-design the prototype back pain educational resource, also noted how this method creates anonymity whilst allowing people the opportunity to externalise personal experiences, thoughts and feelings. Other creative methods were also used, such as drawing, collaging, role play and creating mood boards. A cardboard cube (labelled a “magic box”) was used to symbolise a physical representation of their final prototype. These creative methods levelled the playing field and made personal experiences accessible in a safe, open environment that fostered trust, as well as understanding from the researchers.

It is not only sensitive subjects that were made easier to articulate through creative PPI. The communication of mundane everyday experiences were also facilitated, which were deemed typically ‘unsayable’. This was specifically given in the context of describing intangible aspects of everyday health and wellbeing [ 11 ]. Graphic designers can also be used to visually represent the outputs of creative PPI. These captured the movement and fluidity of people and well as the relationships between them - things that cannot be spoken but can be depicted [ 21 ].

Creative PPI methods are inclusive

Another strength of creative PPI was that it is inclusive and accessible [ 17 , 19 , 21 ]. The safe space it fosters, as well as the dismantling of hierarchies, welcomed people from a diverse range of backgrounds and provided equal opportunities [ 21 ], especially for those with communication and memory difficulties who might be otherwise excluded from PPI. Kelemen et al. [ 19 ], who used creative methods to explore health and well-being in Stoke-on-Trent, discussed how people from different backgrounds came together and connected, discussed and reached a consensus over a topic which evoked strong emotions, that they all have in common. Individuals said that the techniques used “sets people to open up as they are not overwhelmed by words”. Similarly, creative activities, such as the persona method, have been stated to allow people to express themselves in an inclusive environment using a common language. Kearns et al. [ 18 ], who used aphasia-accessible material to develop a questionnaire with aphasic individuals, described how they felt comfortable in contributing to workshops (although this material was time-consuming to make, see ‘Limitations of creative PPI’ ).

Despite the general inclusivity of creative PPI, it can also be exclusive, particularly if online mediums are used. Fedorowicz et al. [ 15 ], used Facebook to create a PPI group, and although this may rectify previous drawbacks about lack of generalisation of creative methods (as Facebook can reach a greater number of people, globally), it excluded those who are not digitally active or have limited internet access or knowledge of technology. Online methods have other issues too. Maintaining the online group was cited as challenging and the volume of responses required researchers to interact outside of their working hours. Despite this, online methods like Facebook are very accessible for people who are physically disabled.

Creative PPI methods are engaging

The process of creative PPI is typically more engaging and produces more colourful data than traditional methods [ 13 ]. Individuals are permitted and encouraged to explore a creative self [ 19 ], which can lead to the exploration of new ideas and an overall increased enjoyment of the process. This increased engagement is particularly beneficial for younger PPI groups. For example, to involve children in the development of health food products, Galler et al. [ 16 ] asked 9-12-year-olds to take photos of their food and present it to other children in a “show and tell” fashion. They then created a newspaper article describing a new healthy snack. In this creative focus group, children were given lab coats to further their identity as inventors. Galler et al. [ 16 ], notes that the methods were highly engaging and facilitated teamwork and group learning. This collaborative nature of problem-solving was also observed in adults who used personas and creative worksheets to develop the resource for lower back pain [ 23 ]. Dementia patients too have been reported to enjoy the creative and informal approach to idea generation [ 20 ].

The use of cultural animation allowed people to connect with each other in a way that traditional methods do not [ 19 , 21 ]. These connections were held in place by boundary objects, such as ribbons, buttons, fabric and picture frames, which symbolised a shared meaning between people and an exchange of knowledge and emotion. Asking groups to create an art installation using these objects further fostered teamwork and collaboration, both at an individual and collective level. The exploration of a creative self increased energy levels and encouraged productive discussions and problem-solving [ 19 ]. Objects also encouraged a solution-focused approach and permitted people to think beyond their usual everyday scope [ 17 ]. They also allowed facilitators to probe deeper about the greater meanings carried by the object, which acted as a metaphor [ 21 ].

From the researcher’s point of view, co-creative methods gave rise to ideas they might not have initially considered. Valaitis et al. [ 22 ], found that over 40% of the creative outputs were novel ideas brought to light by patients, healthcare providers/community care providers, community service providers and volunteers. One researcher commented, “It [the creative methods] took me on a journey, in a way that when we do other pieces of research it can feel disconnected” [ 23 ]. Another researcher also stated they could not return to the way they used to do research, as they have learnt so much about their own health and community and how they are perceived [ 19 ]. This demonstrates that creative processes not only benefit the project outcomes and the PPI group, but also facilitators and researchers. However, although engaging, creative methods have been criticised for not demonstrating academic rigour [ 17 ]. Moreover, creative PPI may also be exclusive to people who do not like or enjoy creative activities.

Creative PPI methods are cost and time efficient

Creative PPI workshops can often produce output that is visible and tangible. This can save time and money in the long run as the output is either ready to be implemented in a healthcare setting or a first iteration has already been developed. This may also offset the time and costs it takes to implement creative PPI. For example, the prototype of the decision support tool for people with malignant pleural effusion was developed using personas and creative worksheets. The end result was two tangible prototypes to drive the initial idea forward as something to be used in practice [ 17 ]. The use of creative co-design in this case saved clinician time as well as the time it would take to develop this product without the help of its end-users. In the development of this particular prototype, analysis was iterative and informed the next stage of development, which again saved time. The same applies for the feedback questionnaire for the assessment of ICT delivered aphasia rehabilitation. The co-created questionnaire, designed with people with aphasia, was ready to be used in practice [ 18 ]. This suggests that to overcome time and resource barriers to creative PPI, researchers should aim for it to be engaging whilst also producing output.

That useable products are generated during creative workshops signals to participating patients and public members that they have been listened to and their thoughts and opinions acted upon [ 23 ]. For example, the development of the back pain resource based on patient experiences implies that their suggestions were valid and valuable. Further, those who participated in the cultural animation workshop reported that the process visualises change, and that it already feels as though the process of change has started [ 19 ].

The most cost and time efficient method of creative PPI in this review is most likely the use of Facebook to gather feedback on project methodology [ 15 ]. Although there were drawbacks to this, researchers could involve more people from a range of geographical areas at little to no cost. Feedback was instantaneous and no training was required. From the perspective of the PPI group, they could interact however much or little they wish with no time commitment.

This systematic review identified four limitations and five strengths to the use of creative PPI in health and social care research. Creative PPI is time and resource intensive, can raise ethical issues and lacks generalisability. It is also not accepted by the mainstream. These factors may act as barriers to the implementation of creative PPI. However, creative PPI disrupts traditional power hierarchies and creates a safe space for taboo or mundane topics. It is also engaging, inclusive and can be time and cost efficient in the long term.

Something that became apparent during data analysis was that these are not blanket strengths and limitations of creative PPI as a whole. The umbrella term ‘creative PPI’ is broad and encapsulates a wide range of activities, ranging from music and poems to prototype development and persona-scenarios, to more simplistic things like the use of sticky notes and ordering cards. Many different activities can be deemed ‘creative’ and the strengths and limitations of one does not necessarily apply to another. For example, cultural animation takes greater effort to prepare than the use of sticky notes and sorting cards, and the use of Facebook is cheaper and wider reaching than persona development. Researchers should use their discretion and weigh up the benefits and drawbacks of each method to decide on a technique which suits the project. What might be a limitation to creative PPI in one project may not be in another. In some cases, creative PPI may not be suitable at all.

Furthermore, the choice of creative PPI method also depends on the needs and characteristics of the PPI group. Children, adults and people living with dementia or language difficulties all have different engagement needs and capabilities. This indicates that creative PPI is not one size fits all and that the most appropriate method will change depending on the composition of the group. The choice of method will also be determined by the constraints of the research project, namely time, money and the research aim. For example, if there are time constraints, then a method which yields a lot of data and requires a lot of preparation may not be appropriate. If generalisation is important, then an online method is more suitable. Together this indicates that the choice of creative PPI method is highly individualised and dependent on multiple factors.

Although the limitations discussed in this review apply to creative PPI, they are not exclusive to creative PPI. Ethical issues are a consideration within general PPI research, especially when working with more vulnerable populations, such as children or adults living with a disability. It can also be the case that traditional PPI methods lack generalisability, as people who volunteer to be part of such a group are more likely be older, middle class and retired [ 24 ]. Most research is vulnerable to this type of bias, however, it is worth noting that generalisation is not always a goal and research remains valid and meaningful in its absence. Although online methods may somewhat combat issues related to generalisability, these methods still exclude people who do not have access to the internet/technology or who choose not to use it, implying that online PPI methods may not be wholly representative of the general population. Saying this, however, the accessibility of creative PPI techniques differs from person to person, and for some, online mediums may be more accessible (for example for those with a physical disability), and for others, this might be face-to-face. To combat this, a range of methods should be implemented. Planning multiple focus group and interviews for traditional PPI is also time and resource intensive, however the extra resources required to make this creative may be even greater. Although, the rich data provided may be worth the preparation and analysis time, which is also likely to depend on the number of participants and workshop sessions required. PPI, not just creative PPI, often requires the provision of a financial incentive, refreshments, parking and accommodation, which increase costs. These, however, are imperative and non-negotiable, as they increase the accessibility of research, especially to minority and lower-income groups less likely to participate. Adequate funding is also important for co-design studies where repeated engagement is required. One barrier to implementation, which appears to be exclusive to creative methods, however, is that creative methods are not mainstream. This cannot be said for traditional PPI as this is often a mandatory part of research applications.

Regarding the strengths of creative PPI, it could be argued that most appear to be exclusive to creative methodologies. These are inclusive by nature as multiple approaches can be taken to evoke ideas from different populations - approaches that do not necessarily rely on verbal or written communication like interviews and focus groups do. Given the anonymity provided by some creative methods, such as personas, people may be more likely to discuss their personal experiences under the guise of a general end-user, which might be more difficult to maintain when an interviewer is asking an individual questions directly. Additionally, creative methods are by nature more engaging and interactive than traditional methods, although this is a blanket statement and there may be people who find the question-and-answer/group discussion format more engaging. Creative methods have also been cited to eliminate power imbalances which exist in traditional research [ 12 , 13 , 17 , 19 , 23 ]. These imbalances exist between researchers and policy makers and adolescents, adults and the community. Lastly, although this may occur to a greater extent in creative methods like prototype development, it could be suggested that PPI in general – regardless of whether it is creative - is more time and cost efficient in the long-term than not using any PPI to guide or refine the research process. It must be noted that these are observations based on the literature. To be certain these differences exist between creative and traditional methods of PPI, direct empirical evaluation of both should be conducted.

To the best of our knowledge, this is the first review to identify the strengths and limitations to creative PPI, however, similar literature has identified barriers and facilitators to PPI in general. In the context of clinical trials, recruitment difficulties were cited as a barrier, as well as finding public contributors who were free during work/school hours. Trial managers reported finding group dynamics difficult to manage and the academic environment also made some public contributors feel nervous and lacking confidence to speak. Facilitators, however, included the shared ownership of the research – something that has been identified in the current review too. In addition, planning and the provision of knowledge, information and communication were also identified as facilitators [ 25 ]. Other research on the barriers to meaningful PPI in trial oversight committees included trialist confusion or scepticism over the PPI role and the difficulties in finding PPI members who had a basic understanding of research [ 26 ]. However, it could be argued that this is not representative of the average patient or public member. The formality of oversight meetings and the technical language used also acted as a barrier, which may imply that the informal nature of creative methods and its lack of dependency on literacy skills could overcome this. Further, a review of 42 reviews on PPI in health and social care identified financial compensation, resources, training and general support as necessary to conduct PPI, much like in the current review where the resource intensiveness of creative PPI was identified as a limitation. However, others were identified too, such as recruitment and representativeness of public contributors [ 27 ]. Like in the current review, power imbalances were also noted, however this was included as both a barrier and facilitator. Collaboration seemed to diminish hierarchies but not always, as sometimes these imbalances remained between public contributors and healthcare staff, described as a ‘them and us’ culture [ 27 ]. Although these studies compliment the findings of the current review, a direct comparison cannot be made as they do not concern creative methods. However, it does suggest that some strengths and weaknesses are shared between creative and traditional methods of PPI.

Strengths and limitations of this review

Although a general definition of creative PPI exists, it was up to our discretion to decide exactly which activities were deemed as such for this review. For example, we included sorting cards, the use of interactive whiteboards and sticky notes. Other researchers may have a more or less stringent criteria. However, two reviewers were involved in this decision which aids the reliability of the included articles. Further, it may be that some of the strengths and limitations cannot fully be attributed to the creative nature of the PPI process, but rather their co-created nature, however this is hard to disentangle as the included papers involved both these aspects.

During screening, it was difficult to decide whether the article was utilising creative qualitative methodology or creative PPI , as it was often not explicitly labelled as such. Regardless, both approaches involved the public/patients refining a healthcare product/service. This implies that if this review were to be replicated, others may do it differently. This may call for greater standardisation in the reporting of the public’s involvement in research. For example, the NIHR outlines different approaches to PPI, namely “consultation”, “collaboration”, “co-production” and “user-controlled”, which each signify an increased level of public power and influence [ 28 ]. Papers with elements of PPI could use these labels to clarify the extent of public involvement, or even explicitly state that there was no PPI. Further, given our decision to include only scholarly peer-reviewed literature, it is possible that data were missed within the grey literature. Similarly, the literature search will not have identified all papers relating to different types of accessible inclusion. However, the intent of the review was to focus solely on those within the definition of creative.

This review fills a gap in the literature and helps circulate and promote the concept of creative PPI. Each stage of this review, namely screening and quality appraisal, was conducted by two independent reviewers. However, four full texts could not be accessed during the full text reading stage, meaning there are missing data that could have altered or contributed to the findings of this review.

Research recommendations

Given that creative PPI can require effort to prepare, perform and analyse, sufficient time and funding should be allocated in the research protocol to enable meaningful and continuous PPI. This is worthwhile as PPI can significantly change the research output so that it aligns closely with the needs of the group it is to benefit. Researchers should also consider prototype development as a creative PPI activity as this might reduce future time/resource constraints. Shifting from a top-down approach within research to a bottom-up can be advantageous to all stakeholders and can help move creative PPI towards the mainstream. This, however, is the collective responsibility of funding bodies, universities and researchers, as well as committees who approve research bids.

A few of the included studies used creative techniques alongside traditional methods, such as interviews, which could also be used as a hybrid method of PPI, perhaps by researchers who are unfamiliar with creative techniques or to those who wish to reap the benefits of both. Often the characteristics of the PPI group were not included, including age, gender and ethnicity. It would be useful to include such information to assess how representative the PPI group is of the population of interest.

Creative PPI is a relatively novel approach of engaging the public and patients in research and it has both advantages and disadvantages compared to more traditional methods. There are many approaches to implementing creative PPI and the choice of technique will be unique to each piece of research and is reliant on several factors. These include the age and ability of the PPI group as well as the resource limitations of the project. Each method has benefits and drawbacks, which should be considered at the protocol-writing stage. However, given adequate funding, time and planning, creative PPI is a worthwhile and engaging method of generating ideas with end-users of research – ideas which may not be otherwise generated using traditional methods.

Data availability

No datasets were generated or analysed during the current study.

Abbreviations

Critical Appraisal Skills Programme

The Joanna Briggs Institute

National Institute of Health and Care Research

Public Advisory Group

Public and Patient Involvement

Web of Science

National Institute for Health and Care Research. What Is Patient and Public Involvement and Public Engagement? https://www.spcr.nihr.ac.uk/PPI/what-is-patient-and-public-involvement-and-engagement Accessed 01 Sept 2023.

Department of Health. Personal and Public Involvement (PPI) https://www.health-ni.gov.uk/topics/safety-and-quality-standards/personal-and-public-involvement-ppi#:~:text=The Health and Social Care Reform Act (NI) 2009 placed,delivery and evaluation of services . Accessed 01 Sept 2023.

National Institute for Health and Care Research. Policy Research Programme – Guidance for Stage 1 Applications https://www.nihr.ac.uk/documents/policy-research-programme-guidance-for-stage-1-applications-updated/26398 Accessed 01 Sept 2023.

Greenhalgh T, Hinton L, Finlay T, Macfarlane A, Fahy N, Clyde B, Chant A. Frameworks for supporting patient and public involvement in research: systematic review and co-design pilot. Health Expect. 2019. https://doi.org/10.1111/hex.12888

Article PubMed PubMed Central Google Scholar

Street JM, Stafinski T, Lopes E, Menon D. Defining the role of the public in health technology assessment (HTA) and HTA-informed decision-making processes. Int J Technol Assess Health Care. 2020. https://doi.org/10.1017/S0266462320000094

Article PubMed Google Scholar

Morrison C, Dearden A. Beyond tokenistic participation: using representational artefacts to enable meaningful public participation in health service design. Health Policy. 2013. https://doi.org/10.1016/j.healthpol.2013.05.008

Leavy P. Method meets art: arts-Based Research Practice. New York: Guilford; 2020.

Google Scholar

Seers K. Qualitative systematic reviews: their importance for our understanding of research relevant to pain. Br J Pain. 2015. https://doi.org/10.1177/2049463714549777

Lockwood C, Porritt K, Munn Z, Rittenmeyer L, Salmond S, Bjerrum M, Loveday H, Carrier J, Stannard D. Chapter 2: Systematic reviews of qualitative evidence. Aromataris E, Munn Z, editors. JBI Manual for Evidence Synthesis JBI. 2020. https://synthesismanual.jbi.global . https://doi.org/10.46658/JBIMES-20-03

CASP. CASP Checklists https://casp-uk.net/images/checklist/documents/CASP-Qualitative-Studies-Checklist/CASP-Qualitative-Checklist-2018_fillable_form.pdf (2022).

Braun V, Clarke V. Using thematic analysis in psychology. Qualitative Res Psychol. 2006. https://doi.org/10.1191/1478088706qp063oa

Article Google Scholar

Byrne E, Elliott E, Saltus R, Angharad J. The creative turn in evidence for public health: community and arts-based methodologies. J Public Health. 2018. https://doi.org/10.1093/pubmed/fdx151

Cook S, Grozdanovski L, Renda G, Santoso D, Gorkin R, Senior K. Can you design the perfect condom? Engaging young people to inform safe sexual health practice and innovation. Sex Educ. 2022. https://doi.org/10.1080/14681811.2021.1891040

Craven MP, Goodwin R, Rawsthorne M, Butler D, Waddingham P, Brown S, Jamieson M. Try to see it my way: exploring the co-design of visual presentations of wellbeing through a workshop process. Perspect Public Health. 2019. https://doi.org/10.1177/1757913919835231

Fedorowicz S, Riley V, Cowap L, Ellis NJ, Chambers R, Grogan S, Crone D, Cottrell E, Clark-Carter D, Roberts L, Gidlow CJ. Using social media for patient and public involvement and engagement in health research: the process and impact of a closed Facebook group. Health Expect. 2022. https://doi.org/10.1111/hex.13515

Galler M, Myhrer K, Ares G, Varela P. Listening to children voices in early stages of new product development through co-creation – creative focus group and online platform. Food Res Int. 2022. https://doi.org/10.1016/j.foodres.2022.111000

Grindell C, Tod A, Bec R, Wolstenholme D, Bhatnagar R, Sivakumar P, Morley A, Holme J, Lyons J, Ahmed M, Jackson S, Wallace D, Noorzad F, Kamalanathan M, Ahmed L, Evison M. Using creative co-design to develop a decision support tool for people with malignant pleural effusion. BMC Med Inf Decis Mak. 2020. https://doi.org/10.1186/s12911-020-01200-3

Kearns Á, Kelly H, Pitt I. Rating experience of ICT-delivered aphasia rehabilitation: co-design of a feedback questionnaire. Aphasiology. 2020. https://doi.org/10.1080/02687038.2019.1649913

Kelemen M, Surman E, Dikomitis L. Cultural animation in health research: an innovative methodology for patient and public involvement and engagement. Health Expect. 2018. https://doi.org/10.1111/hex.12677

Keogh F, Carney P, O’Shea E. Innovative methods for involving people with dementia and carers in the policymaking process. Health Expect. 2021. https://doi.org/10.1111/hex.13213

Micsinszki SK, Buettgen A, Mulvale G, Moll S, Wyndham-West M, Bruce E, Rogerson K, Murray-Leung L, Fleisig R, Park S, Phoenix M. Creative processes in co-designing a co-design hub: towards system change in health and social services in collaboration with structurally vulnerable populations. Evid Policy. 2022. https://doi.org/10.1332/174426421X16366319768599

Valaitis R, Longaphy J, Ploeg J, Agarwal G, Oliver D, Nair K, Kastner M, Avilla E, Dolovich L. Health TAPESTRY: co-designing interprofessional primary care programs for older adults using the persona-scenario method. BMC Fam Pract. 2019. https://doi.org/10.1186/s12875-019-1013-9

Webber R, Partridge R, Grindell C. The creative co-design of low back pain education resources. Evid Policy. 2022. https://doi.org/10.1332/174426421X16437342906266

National Institute for Health and Care Research. A Researcher’s Guide to Patient and Public Involvement. https://oxfordbrc.nihr.ac.uk/wp-content/uploads/2017/03/A-Researchers-Guide-to-PPI.pdf Accessed 01 Nov 2023.

Selman L, Clement C, Douglas M, Douglas K, Taylor J, Metcalfe C, Lane J, Horwood J. Patient and public involvement in randomised clinical trials: a mixed-methods study of a clinical trials unit to identify good practice, barriers and facilitators. Trials. 2021 https://doi.org/10.1186/s13063-021-05701-y

Coulman K, Nicholson A, Shaw A, Daykin A, Selman L, Macefield R, Shorter G, Cramer H, Sydes M, Gamble C, Pick M, Taylor G, Lane J. Understanding and optimising patient and public involvement in trial oversight: an ethnographic study of eight clinical trials. Trials. 2020. https://doi.org/10.1186/s13063-020-04495-9

Ocloo J, Garfield S, Franklin B, Dawson S. Exploring the theory, barriers and enablers for patient and public involvement across health, social care and patient safety: a systematic review of reviews. Health Res Policy Sys. 2021. https://doi.org/10.1186/s12961-020-00644-3

National Institute for Health and Care Research. Briefing notes for researchers - public involvement in NHS, health and social care research. https://www.nihr.ac.uk/documents/briefing-notes-for-researchers-public-involvement-in-nhs-health-and-social-care-research/27371 Accessed 01 Nov 2023.

Download references

Acknowledgements

With thanks to the PHIRST-LIGHT public advisory group and consortium for their thoughts and contributions to the design of this work.

The research team is supported by a National Institute for Health and Care Research grant (PHIRST-LIGHT Reference NIHR 135190).

Author information

Olivia R. Phillips and Cerian Harries share joint first authorship.

Authors and Affiliations

Nottingham Centre for Public Health and Epidemiology, Lifespan and Population Health, School of Medicine, University of Nottingham, Clinical Sciences Building, City Hospital Campus, Hucknall Road, Nottingham, NG5 1PB, UK

Olivia R. Phillips, Jo Leonardi-Bee, Holly Knight & Joanne R. Morling

National Institute for Health and Care Research (NIHR) PHIRST-LIGHT, Nottingham, UK

Olivia R. Phillips, Cerian Harries, Jo Leonardi-Bee, Holly Knight, Lauren B. Sherar, Veronica Varela-Mato & Joanne R. Morling

School of Sport, Exercise and Health Sciences, Loughborough University, Epinal Way, Loughborough, Leicestershire, LE11 3TU, UK

Cerian Harries, Lauren B. Sherar & Veronica Varela-Mato

Nottingham Centre for Evidence Based Healthcare, School of Medicine, University of Nottingham, Nottingham, UK

Jo Leonardi-Bee

NIHR Nottingham Biomedical Research Centre (BRC), Nottingham University Hospitals NHS Trust, University of Nottingham, Nottingham, NG7 2UH, UK

Joanne R. Morling

You can also search for this author in PubMed Google Scholar

Contributions

Author contributions: study design: ORP, CH, JRM, JLB, HK, LBS, VVM, literature searching and screening: ORP, CH, JRM, data curation: ORP, CH, analysis: ORP, CH, JRM, manuscript draft: ORP, CH, JRM, Plain English Summary: ORP, manuscript critical review and editing: ORP, CH, JRM, JLB, HK, LBS, VVM.

Corresponding author

Correspondence to Olivia R. Phillips .

Ethics declarations

Ethics approval and consent to participate.

The Ethics Committee of the Faculty of Medicine and Health Sciences, University of Nottingham advised that approval from the ethics committee and consent to participate was not required for systematic review studies.

Consent for publication

Not applicable.

Competing interests

The authors declare no competing interests.

Additional information

Publisher’s note.

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Electronic supplementary material

Below is the link to the electronic supplementary material.

40900_2024_580_MOESM1_ESM.docx

Additional file 1: Search strings: Description of data: the search strings and filters used in each of the 5 databases in this review

Additional file 2: Quality appraisal questions: Description of data: CASP quality appraisal questions

40900_2024_580_moesm3_esm.docx.

Additional file 3: Table 1: Description of data: elements of the data extraction table that are not in the main manuscript

Rights and permissions

Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ . The Creative Commons Public Domain Dedication waiver ( http://creativecommons.org/publicdomain/zero/1.0/ ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.

Reprints and permissions

About this article

Cite this article.

Phillips, O.R., Harries, C., Leonardi-Bee, J. et al. What are the strengths and limitations to utilising creative methods in public and patient involvement in health and social care research? A qualitative systematic review. Res Involv Engagem 10 , 48 (2024). https://doi.org/10.1186/s40900-024-00580-4

Download citation

Received : 28 November 2023

Accepted : 25 April 2024

Published : 13 May 2024

DOI : https://doi.org/10.1186/s40900-024-00580-4

Share this article

Anyone you share the following link with will be able to read this content:

Sorry, a shareable link is not currently available for this article.

Provided by the Springer Nature SharedIt content-sharing initiative

Public and patient involvement
Creative PPI
Qualitative systematic review

Research Involvement and Engagement

ISSN: 2056-7529

General enquiries: [email protected]

Open access
Published: 16 May 2024

Responsible coordination of municipal health and care services for individuals with serious mental illness: a participatory qualitative study with service users and professionals

Jorunn Nærland Skjærpe 1 ,
Tatiana Aleksandrovna Iakovleva 2 &
Marianne Storm 1 , 3 , 4

BMC Health Services Research volume 24 , Article number: 633 ( 2024 ) Cite this article

Metrics details

Care coordination is crucial to ensure the health of individuals with serious mental illness. The aim of this study was to describe and analyze an inclusive innovation process for coordinating municipal health and care services for individuals with serious mental illness.

We conducted café dialogues with professionals and service users with serious mental illness. The café dialogues engaged participants in conversation and knowledge exchange about care coordination, adressing topics of efficiency, challenges, and improvement. We used a responsible innovation framework to analyze the innovation process.

Responsible coordination requires promoting service users’ health and ensuring communication and mutual awareness between professionals. Individual-level factors supporting responsible coordination included service users knowing their assigned professionals, personalized healthcare services, and access to meaningful activities. Provider-level factors included effective coordination routines, communication, information exchange, and professional familiarity. Results reflect professionals’ and service users’ perspectives on efficient care coordination, existing challenges, and measures to improve care coordination.

Café dialogues are an inclusive, participatory method that can produce insights into the responsible coordination of municipal health and care services for individuals with serious mental illness. The responsible innovation framework is helpful in identifying care coordination challenges and measures for responsible coordination.

Peer Review reports

Approximately one in eight individuals worldwide have a mental illness [ 1 ], with depressive disorders and anxiety disorders the most prevalent types [ 1 , 2 ]. Many individuals with serious mental illness (SMI) require coordinated care to ensure and improve their health [ 1 , 3 , 4 ]. We use the term SMI to refer to schizophrenia, schizoaffective disorder, psychotic disorders, major depressive disorders, and bipolar disorders [ 5 ]. In Norway, approximately 1-3.5% of the population meets the criteria for lifetime SMI [ 2 ].

Care coordination is defined as “the deliberate organization of patient care activities between two or more participants (including the patient) involved in a patient’s care to facilitate the appropriate delivery of healthcare services” [ 6 , p. 6]. Such coordination across services is essential to providing seamless healthcare [ 7 ]. Efficient care coordination relies on stakeholders sharing a common understanding and harnessing their skills, perspectives, experiences, and knowledge to address the needs of service users [ 8 ].

McDonald et al. [ 6 ] developed a framework of measures they deem essential for coordinated care, which has been applied in numerous studies on mental healthcare coordination [ 3 , 9 , 10 ]. The measures can be grouped into individual, provider, and system levels of care [ 6 , 9 , 11 , 12 ]. At the individual level, professionals tailor service delivery to meet service users’ needs [ 6 ]. Care coordination involves assessing individuals’ healthcare needs, resources, and goals, providing personalized services, supporting self-care, and encouraging health-promoting activities in the community [ 6 ]. At the provider level, care coordination involves establishing accountability, negotiating responsibility for service users’ care, allocating tasks and responsibilities, organizing patient transitions between services, and exchanging information among professionals and service users [ 6 ]. Coordination routines, communication platforms, and cooperative relationships are also important at this level [ 8 , 13 , 14 ]. Care coordination at the system level focuses on aligning healthcare and community resources with the population’s needs [ 6 ], health policy goals, economic factors, legislation, and regulations influencing professional action and decision-making [ 14 ].

Several challenges affect mental healthcare coordination [ 4 ]. These include a lack of access to services, issues with information exchange, and limited service user involvement in decision-making [ 4 ]. The latter is due to an asymmetrical power balance between professionals and service users and perceptions that individuals with SMI lack the capacity to be involved in decision-making due to their symptoms [ 15 ]. Moreover, professionals can at times act unilaterally in service users’ best interests or struggle to integrate their expertise with service user insights, making service users feel unheard or defined by diagnostic labels [ 15 ]. Efficient care coordination can also be hindered by professionals’ multiple simultaneous tasks, uncertainty regarding task prioritization, prioritizing treatment over prevention, and a deficit of expertise [ 16 ]. Knowledge differences, conflicts, and difficulties with perspective-taking are additional challenges [ 17 ]. Addressing these issues requires a more symmetrical power balance and ensuring equal influence of professionals from different services [ 17 , 18 ] and service users [ 15 , 17 ].

Improved care coordination is a stated health policy goal in Norway and internationally [ 19 , 20 , 21 ]. One way to achieve this goal is through responsible innovation processes that include stakeholders [ 22 ]. We define responsible innovation as “taking care of the future through collective stewardship of science and innovation in the present” [ 23 , p. 1570]. Stilgoe et al. [ 23 ] present a framework for responsible innovation with four integrated dimensions: inclusion, anticipation, reflexivity, and responsiveness. Inclusion refers to encouraging different perspectives, anchoring decisions, and promoting reflective innovation processes. Inclusion can occur through dialogues and by applying stakeholders’ ideas and knowledge. Anticipation is about assessing what is known, what is likely to occur, what one intends to achieve, how to address relevant issues, and discovering additional opportunities for innovation. Reflexivity integrates stakeholder perspectives about expectations, challenges, and other issues. Responsiveness refers to an open and flexible innovation process in which participants respect and adapt to each other’s perspectives and knowledge. Suitable responses may involve measures that address existing issues and potential future challenges.

This study builds upon literature demonstrating that responsible innovation and the inclusion of diverse stakeholders can effectively improve healthcare services [ 22 , 24 , 25 , 26 , 27 ]. We include professionals and service users with SMI in café dialogues, a participatory research method [ 28 , 29 , 30 , 31 , 32 , 33 ], to identify care coordination challenges, address shared coordination responsibilities, and develop improvement measures [ 34 , 35 , 36 ]. In health and social science, such participatory research methods have successfully captured varied perspectives and found sustainable solutions to challenges [ 31 , 37 , 38 , 39 , 40 , 41 , 42 ]. Service users have valuable knowledge based on their experiences, can offer insights into their needs and challenges, and can suggest potential improvement measures [ 24 , 43 ]. Involving professionals in café dialogues can enhance their understanding of service users’ perspectives and improve interactions between service users and healthcare services [ 44 ]. The aim of this study is to describe and analyze an inclusive innovation process for coordinating municipal health and care services for individuals with SMI.

Study setting: the Norwegian healthcare system

The Norwegian healthcare system consists of municipal health and care services and specialist health services. Municipalities are responsible for delivering primary healthcare services outside of hospital facilities. The municipal health and care services focus on disease prevention, health promotion, treatment, care, and assistance with daily life functions [ 45 ]. Municipal health and care services for people with SMI encompass general practitioners (GPs), emergency rooms, inpatient acute care, institutions, home-based healthcare, and supported housing with round-the-clock healthcare [ 45 ]. GPs serve as gatekeepers and coordinate referrals to municipal health and care services and specialist health services as per service users’ needs [ 45 ].

The study was conducted in municipal health and care services for individuals with SMI in a rural Norwegian municipality with nearly 20,000 inhabitants. Individuals with SMI frequently experience persistent and severe symptoms of mental illness [ 4 , 46 , 47 ]. They often have extensive physical healthcare needs and a higher mortality rate than the general population [ 2 , 48 , 49 , 50 , 51 ]. Their life expectancy is up to 30 years shorter, mainly because of physical health issues [ 48 , 49 , 50 , 52 ].

The severity of each individual’s mental health issues is based on their symptoms, challenges, and impact on social and daily functioning [ 53 ]. Severity determines the primary responsibility for care, services provided, level of care coordination required, and involvement of specialist health services [ 53 ]. If municipalities lack sufficient competence to meet service users’ needs, responsibility falls to specialist health services which, for individuals with SMI, encompass inpatient and outpatient treatment and care offered by psychiatric hospitals and community mental health centers [ 54 ]. Individuals with SMI often receive municipal and specialist health services [ 53 ].

Study design, recruitment, and participants

For this study, we employed a qualitative participatory design [ 55 ] to describe and analyze an inclusive innovation process for coordinating municipal health and care services for individuals with SMI. Café dialogues were used to collect data [ 28 , 29 , 30 , 31 , 32 , 33 ]. Café dialogues are well suited to explore topics and obtain knowledge through varied participant perspectives in a relatively short period [ 28 , 29 , 30 , 31 , 32 , 33 ]. Café dialogues were considered well suited for several reasons, including their potential for obtaining qualitative data, broadening the reference sample size, exploring topics, and enhancing the diversity of perspectives on the given topic [ 31 , 32 , 33 ]. Additionally, they provide an arena for participants to share their reflections on lived experiences and develop new ideas [ 28 , 29 , 30 , 31 , 32 , 33 ]. This inclusive approach ensures that the participants’ voices and perspectives are included in the innovation and research process [ 23 , 28 , 29 , 30 ].

We used purposive sampling [ 55 ] to recruit professionals and service users who were knowledgeable about care coordination and had experience with mental healthcare services. Recruiting a diverse range of professionals and service users aligns with the inclusion strategy of responsible innovation [ 23 ]. Our inclusion criteria for professionals were that they were employed in a municipal health and care service and were involved in care coordination and service delivery for individuals with SMI. For service users, inclusion criteria were that individuals currently or previously had a diagnosis of SMI and had received two or more municipal health and care services.

We recruited professionals through municipal health and care service leaders who were contacted by JNS via e-mail with information about the study. Service leaders then provided employees with this information and selected employees to participate based on willingness and interest. Service users were recruited through municipal health and care employees who were given information about the study by JNS via e-mail. These employees provided eligible participants with information about the study and the time and location of the café dialogue. Thirty professionals and seven service users were recruited for three café dialogues. Table 1 presents participants’ characteristics.

Café dialogues

JNS and MS conducted three café dialogues, two for professionals and one for service users, in May and June 2021. Café dialogues were inspired by the dialogue seminar method described by Storm [ 28 , 29 , 30 ] and the World Café method [ 31 , 32 , 33 ], which are participatory methods for engaging participants in brainstorming, conversation, and knowledge exchange [ 28 , 29 , 30 , 31 , 32 , 33 ]. Both methods, emphasizing diverse perspectives and mutual learning among participants, offer insights for scientific inquiries and changes and promote inclusivity [ 28 , 29 , 30 , 31 , 32 , 33 ]. These methods facilitate knowledge exchanges and constructive dialogue by encouraging exploration and discussion of important questions [ 28 , 29 , 30 , 31 , 32 , 33 ]. They are adaptable to various contexts and purposes, with event invitations, designs, and questions tailored to specific circumstances [ 28 , 29 , 30 , 31 , 32 , 33 ]. Brown & Isaacs [ 32 ] outline seven design principles for the World Café, including setting the context, creating a welcoming environment, exploring meaningful questions, encouraging contributions from all participants, connecting diverse perspectives, listening collectively for insights, and sharing discoveries as a group.

The café dialogues took place in meeting rooms provided by the municipality. These rooms represented a neutral space where participants could feel free to engage with each other [ 32 ]. Each café dialogue lasted for two hours with a break halfway. We started each café dialogue by welcoming participants, introducing ourselves, and presenting the agenda for the day. We gave a 30-minute teaching session on care coordination to establish a shared understanding of the concept [ 25 , 26 ], using PowerPoint slides to help explain care coordination [ 6 ], relevant health policy [ 19 ], and literature [ 56 , 57 ] that highlighted the importance of care coordination and the complexities of ensuring and improving the health of individuals with mental illness. Following this, we facilitated brainstorming and knowledge exchange conversations where participants articulated their perspectives on the topics of efficient care coordination, coordination challenges, and measures to improve care coordination.

Data collection

JNS led the café dialogues and took notes on a whiteboard throughout the sessions. MS took more detailed written notes to document participants’ ideas and knowledge. When necessary, we adjusted the dialogue to elicit participants’ perspectives on our topics of interest [ 23 ]. An important aspect was ensuring active participation and including each person’s perspectives in the innovation process [ 23 ]. All notes were subsequently synthesized into 13 pages of written text, constituting the qualitative empirical data material [ 55 ]. Table 2 illustrates the topics and activities of the café dialogues.

Data analysis

We conducted inductive and deductive thematic analyses [ 58 , 59 ]. For the inductive aspect, we analyzed the written notes from the café dialogues, focusing on participants’ perspectives on efficient care coordination, challenges, and improvement measures. The inductive analysis consisted of six stages: (1) reading through the material several times to become acquainted with it (2), coding meaning units relevant to the study aim (3), identifying themes and assigning meaning units to these themes (4), conducting a critical review of each theme to ensure that meaning units and themes comprehensively represented the data (5), labeling themes, and (6) summarizing into two themes and five sub-themes. Table 3 gives examples of the inductive thematic analysis.

For the deductive aspect, we analyzed the café dialogue innovation process by connecting themes and sub-themes from the inductive analysis to the dimensions of inclusion, anticipation, reflexivity, and responsiveness in Stilgoe et al.‘s [ 23 ] framework for responsible innovation.

Author reflexivity

Our understanding is built on the fact that we already have a relationship with the phenomena of coordination of healthcare services, and we can better understand existing concepts by relating reflexively to them [ 60 ]. In this study, reflexivity was embraced through collaborative efforts among the three authors in the data analysis [ 55 , 61 ]. Each author, with distinct educational backgrounds and professional experience, brought different perspectives to the analysis, stimulating varied interpretations during the theme development process. We considered alternative interpretations before reaching a consensus on results that aligned with the study’s aim. Consequently, themes were not influenced solely by the preunderstanding of a single researcher, thereby enhancing the trustworthiness of the results [ 62 ].

Ethical considerations

The study was approved through Sikt– the Norwegian Agency for Shared Services in Education and Research (formerly known as the Norwegian Centre for Research Data, or NSD) (project No. 132714). Sikt ensured that the research project adhered to ethical guidelines and regulations and approved information security and privacy services as part of the Norwegian Directorate for Higher Education and Skills (HK-dir). The study adhered to the principles of the Helsinki Declaration. All participants took part voluntarily and were provided with information regarding confidentiality. They were informed that participation was voluntary and that they retained the right to withdraw from the study without consequences. Written informed consent was obtained from all participants before the café dialogues.

The thematic analysis resulted in two themes and five sub-themes that reflected responsible coordination at individual and provider levels, participants’ anticipation of efficient care coordination, reflexivity to care coordination challenges, and responsiveness to improvement measures [ 23 ].

At the individual level, anticipation reflected a desire that services be personalized, with relationships built on trust and security between professionals and service users. Reflexivity encompassed care coordination challenges, which arose when service users refused healthcare or did not recognize their healthcare needs. Suggested improvement measures included activity centers, flexible healthcare, and professionals taking time to get to know service users.

At the provider level, anticipation involved clear responsibilities and tasks, coordination routines, and communication. Professionals described care coordination challenges related to a lack of routines, communication, unfamiliarity with one another, absence of shared health record-keeping systems, disagreements regarding service users’ healthcare, and not completing expected tasks. Improvement measures were responses related to information exchange, meeting points for communication, and a shared health record-keeping system across services.

Themes and sub-themes are described in more detail below. Table 4 illustrates themes, sub-themes, and the café dialogue innovation process.

Theme 1: Ensuring and promoting health - Responsible coordination at the individual level

Sub-theme 1: to be met and followed up with personalized healthcare.

Service users agreed that efficient care coordination required personalized healthcare with user involvement at every stage of their health journey. It can be challenging for service users to receive healthcare, even when they know their needs. When professionals approach service users in a way that makes them feel respected, seen, and heard, cooperation is easier. A service user elaborated on this:

It is crucial that professionals do not adopt a top-down attitude and that they communicate clearly without using complicated terminology. We feel stupid and hesitant to speak up when we do not understand what the professionals are saying.

Service users appreciated when healthcare was flexible and provided in environments where they felt safe. Service users suggested measures such as follow-ups at professionals’ offices, at home, or outdoors during activities that offered new experiences. They also mentioned video calls or double appointments with GPs. Using humor, even in serious situations, was seen as beneficial.

Several service users found communicating with professionals in writing easier than by phone. Both service users and professionals shared positive experiences using text messages and wanted to continue such measures. The ability to quickly and easily get in touch with professionals when needed was important for service users, and made easier through having direct numbers for their GP and other familiar professionals. Still, while these personalized and flexible measures were practical, service users emphasized that they were responsible for their health and that improved health required major effort on their part. One of them stated:

We must take control of our own lives. It can take a long time to realize that something needs to change. Waiting for someone else to fix me does not work. That just keeps us stuck in the same old mess. Having services available does not help if we are not willing to change.

Sub-theme 2: A balance between providing healthcare and allowing service users to take responsibility for their own lives

Professionals believed efficient care coordination involved personalized services adapted to service users’ goals, resources, preferences, and needs. One professional stated:

Some service users may have needs beyond standardized services. In such cases, we must be curious, stretch ourselves, think outside the box, prioritize the most critical aspects, try new measures, and find solutions together.

Several professionals noted that some service users needed assistance in managing their health. In such situations, efficient care coordination meant liaising with necessary services and assisting service users with daily needs. Professionals acknowledged that service users were responsible for their own lives but did not want to place too much pressure on them. One professional said:

It is a delicate balance to know how much help to provide while not assuming responsibilities that service users can handle themselves.

Professionals faced challenges in meeting service users’ needs if they refused healthcare, only accepted it from specific professionals, or had a different perspective on their needs compared to professional recommendations. These needs were often related to mental health but also to physical health. In such situations, it was essential for professionals to explain what was being refused.

Sub-theme 3: To know professionals and have access to meaningful activities

For service users, familiarity with professionals was crucial for efficient care coordination. Relationships built on trust and security, and professionals who took the time to get to know them made it easier to receive healthcare. Measures such as weekend getaways, holiday trips, and other meaningful activities were some suggested ways to get acquainted and build relationships. Engagement in meaningful activities promoted health, shifted focus away from illness, and placed a greater emphasis on service users’ strengths and resources. Conversely, a lack of meaningful activities posed coordination challenges.

Service users praised an activity center, often recommended by professionals, that helped establish contact. The activity center provided daily structure, social interaction, friendships, and belonging, helping service users discover they were not alone in their struggles and could support each other. In addition, they could receive support from peers and professionals, despite some instances of gossip and rumors among center users. Still, they were conscious of promoting each other positively and apologized if they said something they regretted. The center organized weekly group outings, which service users described as health-promoting and involving physical activity and fresh air, which, in turn, led to improved sleep and reduced symptoms of depression. Overall, attending the activity center had resulted in several service users needing less healthcare. One service user said:

I went to my GP every three months before– now I only go every six months.

While service users knew that such activities benefited them, actually engaging in such endeavors could still prove difficult. Nevertheless, doing so could instill a sense of accomplishment. One person spoke about challenging oneself:

It is important to stand up for oneself, take responsibility, and dare to set limits. To have the courage to say both yes and no. If you say yes to something that feels daunting, it is crucial to be able to step back when needed. Trying things that can be enjoyable and beneficial for oneself is essential.

Theme 2: Communication and knowledge of each other - Responsible coordination at the provider level

Sub-theme 4: coordination routines and information exchange.

Professionals reported that individuals with SMI often have complex needs and require multiple services. Determining priorities for mental or physical healthcare needs and identifying suitable services could be challenging. An absence of coordination routines, especially between mental and physical healthcare services, and coordination efforts being affected by personal and time constraints made it difficult for professionals to address complex needs. There were also challenges when professionals disagreed about service users’ healthcare and when they could not fulfill their expected tasks. Therefore, clarifying care responsibilities for each involved service was crucial.

Communication and regular information exchange were seen as elements of efficient care coordination. Information exchange often occurs through an electronic messaging system. However, several professionals have experienced issues with this system, such as messages not being sent as intended. Also, written information sometimes can fail to convey nuances present in face-to-face communication, leading to misinterpretation. In such cases, professionals needed to consult colleagues or messengers to ensure they had correctly understood the information. One professional said:

The information we receive and when it arrives can be quite random. Messages often get lost, or service users must provide the information themselves. Therefore, we spend extra time making calls and searching for necessary information.

Service users wanted access to updated health information and professionals to exchange relevant information. This exchange was contingent upon service users’ consent. They also wanted to simplify the consent process. Professionals discussed service users who do not consent to information exchange or withdraw their consent, citing this as a challenge hampering healthcare. They were committed to explaining to service users the importance of information exchange and the consequences of withholding consent.

For professionals, efficient care coordination meant providing service users with regularly updated information so they could be involved in adapting services to their needs. Service users valued professionals providing comprehensive information about available services and the consequences of choosing or not choosing them, as they could easily forget this information. Therefore, detailed written and oral information and access to quality-assured information about health, illness, and healthcare options could be helpful. Service users often had to deal with unfamiliar professionals who lacked updated health information about them. One explained:

Interacting with many professionals can be challenging when you feel emotionally unstable. It is exhausting to keep track of things and repeatedly explain your history when experiencing severe symptoms, such as telling professionals in the municipality what hospital doctors have said.

Consequently, service users wanted involved professionals to have access to their health records. However, care coordination challenges arose from an absence of up-to-date health information, primarily attributed to the lack of shared health record-keeping across services. Professionals reported positive experiences creating plans that outlined allocated services and described existing measures for when service users experienced severe symptoms. These plans could be used independently of a shared health record system.

Sub-theme 5: Being familiar with cooperating professionals

Professionals stated it was important that service users experienced efficient care coordination. They noted that care coordination worked best when involved professionals were familiar with each other, with challenges more likely to arise if they were not. Service users wished for involved professionals to cooperate closely and be familiar with each other’s roles. One service user said:

Professionals must clearly define their responsibilities so it is evident who does what. For example, we need to know who is responsible for our medications and who accompanies us to social services.

Professionals highlighted regular care coordination meetings in the municipality and with specialist health services as crucial measures for efficient care coordination. These meetings could be used for professionals to get to know each other, allocate responsibilities and tasks, develop and revise coordination routines, ensure information exchange, and verify information was understood. Meetings between professionals from mental health home care and home nursing were particularly relevant for coordinating mental and physical healthcare. Meeting locations could vary so that professionals would become acquainted with each other’s workplaces. One professional said:

Having common meeting points - meeting in person and talking together - makes it easier to initiate contact and know whom to reach out to electronically or by phone on future occasions.

The municipality has tried digital and hybrid meetings. Several professionals found these formats useful and reported receiving positive feedback from service users. Such meetings save time as participants can attend only the parts relevant to them. Digital meetings also eliminate the need for travel.

In this study, we conducted café dialogues with professionals and service users with the aim of outlining an inclusive innovation process for the responsible coordination of municipal health and care services for individuals with SMI. Our study highlights how including professionals and service users can help improve responsible care coordination through clarifying anticipation, encouraging reflexivity, and ensuring responsiveness [ 23 ]. Furthermore, we discuss our results in light of the dimensions in Stilgoe et al.‘s [ 23 ] framework for responsible innovation and previous research.

According to Stilgoe et al.‘s [ 23 ] framework, clarifying participant anticipation is central to responsible innovation. Our findings show that at the individual level, anticipation for efficient care coordination includes promoting health through personalized and flexible healthcare services and service users taking responsibility for their own lives. Balancing these anticipations can, however, prove challenging for professionals. Service user involvement in care coordination can promote health and reduce illness symptoms [ 63 ], but research indicates that some individuals with SMI prefer professionals to make care coordination decisions on their behalf [ 10 ]. Continuous assessment of service users’ capacities is therefore crucial to ensure any responsibilities they are given are appropriate [ 64 ].

Reflexivity to challenges, their causes, and how they might impact participant anticipation are essential in Stilgoe et al.‘s framework [ 23 ]. In our study, consideration of reflexivity revealed that professionals at times faced coordination challenges in meeting service users’ health needs when users did not accept or recognize these needs. Research shows that such challenges are common in care coordination [ 3 , 10 , 65 ].

At the provider level of responsible coordination, Stilgoe et al.‘s [ 23 ] anticipation dimension involves efficient communication and information exchange among professionals. These are essential for successful care coordination [ 66 ] and meeting service users’ needs [ 14 , 63 ]. Our study revealed that electronic messages were a preferred form of communication. Electronic communication can enhance efficient care coordination by providing quick access to up-to-date information [ 67 ]. However, participants reported communication challenges at the provider level, as problems with electronic messages resulted in professionals missing vital information and having to spend time gathering it. Further, electronic messages may not always suffice as essential information and details can be omitted or misunderstood [ 10 , 67 ].

Considering reflexivity at the provider level, we identified challenges whereby some service users declined to consent to information exchange among professionals, likely due to privacy concerns [ 67 ]. A lack of consent can limit shared health record-keeping, proving a challenge for coordination and weakening the quality of electronic information [ 66 ]. We found that service users found it burdensome to repeat their history when interacting with different professionals, an observation supported by prior research [ 68 ]. Shared health record-keeping can be particularly valuable if service users struggle to express themselves [ 67 ].

In our study, Stilgoe et al.‘s [ 23 ] responsiveness dimension represented measures to improve care coordination. Participants described measures for responsible coordination that focused on flexible and personalized services, such as simplifying contact with professionals, providing healthcare in a safe environment, and professionals getting to know service users. Customized services are vital in care coordination [ 14 ] and essential to meeting service users’ mental and physical health needs [ 10 ].

Our results suggest that improvement measures at the individual level should allow service users to communicate their needs to professionals in writing. Text messages could be used in personalized healthcare to quickly convey health information, increasing service user involvement and supporting self-care and recovery [ 69 ]. Our results highlight the use of activity centers as an improvement measure as these promote service users’ health and reduce the need for healthcare. Access to health-promoting services can help to engage individuals through shared interests and experiences, which is particularly important when service users have complex needs, as other needs may take precedence over health promotion [ 70 ].

Professionals in our study stated that lack of care coordination and unclear responsibilities made it challenging to determine the most suitable services for service users with complex needs. They responded to these challenges by developing coordination routines. This aligns with the literature indicating that efficient care coordination at the provider level depends on measures such as routines and transparent allocation of responsibilities and tasks [ 14 , 66 ]. Our results show that care plans that outline allocated services and measures accessible to professionals are important for efficient care coordination, supporting previous findings [ 66 ].

Service users in our study appreciated when involved professionals knew each other and highlighted the importance of having familiar professionals present. Considering the issue of responsiveness, participants reported that regular meetings allowed professionals to get to know each other, establish routines, communicate, and distribute tasks and responsibilities. Meetings where participants work toward common goals are essential for efficient coordination [ 3 , 9 , 10 , 63 ] and complement the care coordination process [ 8 ]. Our results show that digital and hybrid meetings increase meeting participation, with video meetings saving time and improving accessibility [ 71 ]. Research indicates that service user participation in care coordination meetings ensures that services align with the users’ wishes, needs, resources, and goals [ 63 ].

Strengths and limitations

A key strength of this study was the inclusion of service users and professionals from multiple municipal health and care services. The café dialogue method encouraged the integration of these participants’ perspectives into the innovation process [ 23 , 44 ]. During the café dialogues, participants discussed various aspects of care coordination. They were able to relate the teaching sessions to their own experiences. Additionally, they highlighted their own examples of coordinated care. Participants were willing to share their personal experiences, and the dialogues enabled them to build upon each other’s responses [ 31 , 55 , 72 ], fostering inclusiveness [ 23 ] and relevance to practice. Several participants offered valuable ideas and knowledge about how to improve care coordination [ 23 , 24 ].

However, some participants showed less engagement in conversations, and some required direct questions before sharing their perspectives. This may have been due to varying attitudes toward innovation, with some participants more passive and conservative and others more open to new ideas [ 25 ]. The teaching session at the café dialogues could have influenced participants’ conversations. It is also possible that relevant voices were not represented in our recruitment approach. The café dialogue for service users was conducted in a meeting room with access to professionals the users knew well and could contact if needed. We note that as participants were encouraged not to share experiences of a sensitive and private nature, some service user participants may have been reluctant to share opinions or negative experiences due to privacy concerns.

Looking back, we realize that audio recording of the café dialogues could have captured the participants’ viewpoints more thoroughly and preserved their ideas and knowledge. Furthermore, employing an interview guide covering a wider range of topics than those discussed in the dialogues could have enhanced our understanding of care coordination.

Due to constraints imposed in response to the COVID-19 pandemic, most participants in the first café dialogue were employed in mental health home care. Another potential limitation is that service users were a minority of our participants. Due to pandemic-related restrictions, we could not include more service users, and professionals and service users were not allowed to participate in the same café dialogue. In future research, we recommend including more service users to balance the number of service users and professionals. We also suggest that both professionals and service users participate in the same café dialogues. This could generate varied dynamics and potentially result in alternative suggestions for improvements. Finally, participants’ suggestions were not put into practice, so their impact on the improvement and coordination of services remains unknown.

This study shows that café dialogues that include professionals and service users are an inclusive, participatory method that can inform the responsible coordination of municipal health and care services for individuals with SMI. Our results indicate that responsible coordination at the individual level entails ensuring and promoting service users’ health, while at the provider level, communication and knowledge of each other are central. Findings demonstrate the relevance of the responsible innovation framework in identifying care coordination challenges and its utility in developing measures for responsible coordination of municipal health and care services for those with SMI. These results may be transferable to other contexts.

Data availability

Data are available to appropriate academic parties upon reasonable request to the corresponding author.

Abbreviations

General practitioner

Norwegian Directorate for Higher Education and Skills

Data Protection Official for Research at the Norwegian Centre for Research Data

Serious mental illness

World Health Organization. World mental health report: transforming mental health for all [Internet]. Geneva: World Health Organization. 2022. [Accessed July 20, 2023]. https://iris.who.int/bitstream/handle/10665/356119/9789240049338-eng.pdf?sequence=1

Norwegian Institute of Public Health. Public Health Report: Health Status in Norway 2023 [Internet]. Oslo: Norwegian Institute of Public Health. 2023. Norwegian. [Accessed Januar 8, 2023]. https://www.fhi.no/he/folkehelserapporten/psykisk-helse/psykiske-lidelser-voksne/?term=

Storm M, Fortuna KL, Gill EA, Pincus HA, Bruce ML, Bartels SJ. Coordination of services for people with serious mental illness and general medical conditions: perspectives from rural northeastern United States. Psychiatr Rehabil J. 2020;43(3):234–43. https://doi.org/10.1037/prj0000404 .

Article PubMed PubMed Central Google Scholar

Storm M, Husebø AML, Thomas EC, Elwyn G, Zisman-Ilani Y. Coordinating mental health services for people with serious mental illness: a scoping review of transitions from psychiatric hospital to community. Adm Policy Ment Health. 2019;46(3):352–67. https://doi.org/10.1007/s10488-018-00918-7 .

Article PubMed Google Scholar

SAMHSA’s National Registry of Evidence-Based Programs and Practices. Behind the term: Serious mental illness [Internet]. Prepared in 2016 by Development Services Group, Inc., under contract no. HHSS 2832 0120 0037i/HHSS 2834 2002T. Rockville: Development Services Group. 2016. [Accessed January 10, 2024]. https://www.ahrq.gov/sites/default/files/publications/files/ccm_atlas.pdf .

McDonald KM, Schultz E, Albin L, Pineda N, Lonhart J, Vandana S et al. Care Coordination Measures Atlas Version 4 [Internet]. Prepared by Stanford University under subcontract to American Institutes for Research on Contract No. HHSA290-2010-00005I. AHRQ Publication No. 14-0037- EF. Rockville: Agency for Healthcare Research and Quality; 2014. [Accessed June 10, 2023]. https://www.ahrq.gov/sites/default/files/publications/files/ccm_atlas.pdf .

Khatri R, Endalamaw A, Erku D, Wolka E, Nigatu F, Zewdie A, et al. Continuity and care coordination of primary health care: a scoping review. BMC Health Serv Res. 2023;23:750. https://doi.org/10.1186/s12913-023-09718-8 .

Torgersen GE, Steiro TJ. Defining the term samhandling . In: Torgersen GE, editor. Interaction: ‘Samhandling’ under risk. A step ahead of the Unforeseen. Oslo: Cappelen Damm Akademisk; 2018. pp. 39–54. https://doi.org/10.23865/noasp.36.ch2 .

Chapter Google Scholar

Skjærpe JN, Kristoffersen M, Storm M. Service user involvement in mental healthcare coordination. J Clin Nurs. 2020. https://doi.org/10.4220/Sykepleienf.2020.80125 . https://sykepleien.no/en/forskning/2020/08/service-user-involvement-mental-healthcare-coordination .

Skjærpe JN, Joa I, Willumsen E, Hegelstad WV, Iakovleva T, Storm M. Perspectives on Coordinating Health Services for individuals with Serious Mental illness– a qualitative study. J Multidiscip Healthc. 2022;15:2735–50. https://doi.org/10.2147/JMDH.S384072 .

Samal L, Dykes PC, Greenberg JO, Hasan O, Venkatesh AK, Volk LA, et al. Care coordination gaps due to lack of interoperability in the United States: a qualitative study and literature review. BMC Health Serv Res. 2016;16:143. https://doi.org/10.1186/s12913-016-1373-y .

Gill E, Dykes PC, Rudin RS, Storm M, McGrath K, Bates DW. Technology-facilitated care coordination in rural areas: what is needed? Int J Med Inf. 2020;137:104102. https://doi.org/10.1016/j.ijmedinf.2020.104102 .

Article Google Scholar

Storm M, Siemsen IMD, Laugaland KA, Dyrstad DN, Aase K. Quality in transitional care of the elderly: key challenges and relevant improvement measures. Int J Integr Care. 2014;14:e013. https://doi.org/10.5334/ijic.1194 .

Øgar P, Hovland T. Mellom Kaos Og Kontroll: Ledelse Og kvalitetsutvikling i kommunehelsetjenesten. [Between chaos and control. Management and quality improvement in municipal health and care services]. Oslo: Gyldendal akademisk; 2013.

Google Scholar

Heerings M, van de Bovenkamp H, Cardol M, Bal R. Ethical dilemmas of participation of service users with Serious Mental illness: a thematic synthesis. Issues Ment Health Nurs. 2020;41(4):283–95. https://doi.org/10.1080/01612840.2019.1667459 .

Thornicroft G, Ahuja S, Barber S, Chisholm D, Collins PY, Docrat S, et al. Integrated care for people with long-term mental and physical health conditions in low-income and middle-income countries. Lancet Psychiatry. 2019;6(2):174–86. https://doi.org/10.1016/S2215-0366(18)30298-0 .

Steihaug S, Johannessen AK, Ådnanes M, Paulsen B, Mannion R. Challenges in achieving collaboration in clinical practice: the case of Norwegian health care. Int J Integr Care. 2016;16(3):1–13. https://doi.org/10.5334/ijic.2217 .

Dragioti E, Radua J, Solmi M, Gosling CJ, Oliver D, Lascialfari F, et al. Impact of mental disorders on clinical outcomes of physical diseases: an umbrella review assessing population attributable fraction and generalized impact fraction. World Psychiatry. 2023;22(1):86–104. https://doi.org/10.1002/wps.21068 .

Report No. 7 to the Storting (White Paper) (2019–2020). National Health and Hospital Plan 2020–2023 Summary [Internet]. Oslo: Norwegian Ministry of Health and Care Services. 2019. [Accessed Mai 23, 2023]. https://www.regjeringen.no/contentassets/95eec808f0434acf942fca449ca35386/en-gb/pdfs/stm201920200007000engpdfs.pdf

Official Norwegian Reports (NOU). 2023:8. Fellesskapets sykehus. Styring, finansiering, samhandling og ledelse [Internet]. [Community Hospital. Management, financing, interaction and management]. Oslo: Norwegian Ministry of Health and Care Services; 2023. Norwegian. [Accessed June 15, 2023]. https://www.regjeringen.no/contentassets/dc00b0a95cf349748bf94d49189b6b2f/no/pdfs/nou202320230008000dddpdfs.pdf .

World Health Organization. Continuity and coordination of care: A practice brief to support implementation of the WHO Framework on integrated people-centred health services [Internet]. Geneva: World Health Organization. 2018. [Accessed June 22, 2023]. https://apps.who.int/iris/bitstream/handle/10665/274628/9789241514033-eng.pdf?ua=1 .

Iakovleva T, Oftedal E, Bessant J. Changing role of users—innovating responsibly in Digital Health. Sustainability. 2021;13(4):1616. https://doi.org/10.3390/su13041616 .

Stilgoe J, Owen R, Macnaghten P. Developing a framework for responsible innovation. Res Policy. 2013;42:1568–80. https://doi.org/10.1016/j.respol.2013.05.008 .

Lehoux P, Silva HP, Rocha de Oliveira R, Sabio RP, Malas K. Responsible innovation in health and health system sustainability: insights from health innovators’ views and practices. Health Serv Manage Res. 2022;35(4):196–205. https://doi.org/10.1177/09514848211048606 .

Bessant J, Iakovleva T, Oftedal EM. The future of responsible innovation. In: Iakovleva T, Oftedal EM, Bessant J, editors. Responsible Innovation in Digital Health: empowering the patient. Cheltenham/Northampton: Edward Elgar; 2019. pp. 232–50.

Oftedal EM, Iakovleva T, Bessant J. Challenges in healthcare - the changing role of patients. In: Iakovleva T, Oftedal EM, Bessant J, editors. Responsible Innovation in Digital Health: empowering the patient. Cheltenham/Northampton: Edward Elgar; 2019. pp. 23–41.

Silva HP, Lefebvre AA, Oliveira RR, Lehoux P. Fostering responsible Innovation in Health: an EvidenceInformed Assessment Tool for Innovation stakeholders. Int J Health Policy Manag. 2021;104:181–91. https://doi.org/10.34172/ijhpm.2020.34 .

Storm M. Brukermedvirkning i psykisk helsearbeid [Service user involvement in mental healthcare]. Oslo: Gyldendal akademisk; 2009.

Storm M, Davidson L. Inpatients’ and providers’ experiences with user involvement in Inpatient Care. Psychiatr Q. 2010;1(2):111–25. https://doi.org/10.1007/s11126-009-9122-6 .

Storm M. Service user involvement in in-patient mental health services [dissertation]. Stavanger: University of Stavanger; 2011.

Löhr K, Weinhardt M, Sieber S. The World Café as a participatory method for collecting qualitative data. Int J Qualitative Methods. 2020;19:1–15. https://doi.org/10.1177/1609406920916976 .

Brown J, Isaacs D. The World Café: shaping our futures through conversations that matter. Oakland, US: Berrett-Koehler; 2005.

The World Café Community Foundation. The World Café [Internet], Cerrito E. US; 2024 [Accessed February 25, 2024]. https://theworldcafe.com/ .

Iakovleva T, Oftedal EM, Bessant J. Responsible innovation as a catalyst of the firm innovation process. In: Iakovleva T, Oftedal EM, Bessant J, editors. Responsible Innovation in Digital Health: empowering the patient. Cheltenham/Northampton: Edward Elgar; 2019. pp. 9–22.

Owen R, Macnaghten P, Stilgoe J. Responsible research and innovation: from science in society to science for society, with society. Sci Public Policy. 2012;39(6):751–60. https://doi.org/10.1093/scipol/scs093 . https://doi-org.ezproxy.uis.no/ .

Von Schomberg R. A vision of responsible Research and Innovation. In: Owen R, Bessant J, Heintz M, editors. Responsible Innovation: managing the Responsible Emergence of Science and Innovation in Society. Chichester, UK: John Wiley & Sons, Inc; 2013. pp. 51–74. https://doi-org.ezproxy.uis.no/ . https://doi.org/10.1002/9781118551424.ch3 .

Bertotti M, Harden A, Renton A, Sheridan K. The contribution of a Social Enterprise to the Building of Social Capital in a Disadvantaged Urban Area of London. Community Dev J. 2012;47(2):168–83. https://doi.org/10.1093/cdj/bsr020 .

Broom M, Brady B, Kecskes Z, Kildea S. World Café Methodology engages stakeholders in designing a neonatal Intensive Care Unit. J Neonatal Nurs. 2013;19(5):253–8. https://doi.org/10.1016/j.jnn.2012.12.002 .

du Plessis E, Koen MP, Bester P. Exploring home visits in a faith community as a service-learning opportunity. Nurse Educ Today. 2013;33(8):766–71. https://doi.org/10.1016/j.nedt.2012.06.006 .

Fouché C, Light G. An invitation to dialogue: ‘The World Café’ in Social Work Research. Qual Soc Work. 2011;10(1):28–48. https://doi.org/10.1177/14733250103760 .

Roos V, Du Toit F. Perceptions of effective relationships in an institutional care setting for older people. SA j ind Psychol. 2014;40(1):1–9. https://doi.org/10.4102/sajip.v40i1.1139 .

Stöckigt B, Teut M, Witt CM. CAM use and suggestions for Medical Care of Senior citizens: a qualitative study using the World Café Method. Evid Based Complement Alternat Med. 2013;2013:951245. https://doi.org/10.1155/2013/951245 .

Thomas E, Skeie KB, Huang H. Inclusion of elderly users via virtual spaces in the early stages of the innovation process. R D Manag. 2022;1–13. https://doi.org/10.1111/radm.12551 . https://doi-org.ezproxy.uis.no/ .

Iakovleva T, Willumsen E. Pasienter Og brukere som digitale partnere. [Patients and users as digital partners]. In: Willumsen E, Ødegård A, editors. Samskaping - sosial innovasjon for helse og velferd. [Co-creation - social innovation in health and welfare]. Oslo: Universitetsforlaget; 2020. pp. 222–43.

Municipal Health and Care Services Act. Act No. 30 of June 24 2011 [Internet]. Norwegian. [Accessed June 20, 2023]. https://lovdata.no/dokument/NL/lov/2011-06-24-30?q=Helse-%20og%20omsorgstjenesteloven%20 .

Baltazar L, De Benedictis L, Abdel-Baki A, Lalonde P, Lesage A. Long term course and outcome of first episode schizophrenia: a 27-to-31-year follow-up. Soc Psychiatry Psychiatr Epidemiol. 2022;57(7):1319–28. https://doi.org/10.1007/s00127-021-02185-8 .

Isaacs A, Beauchamp A, Sutton K, Kocaali N. Care Coordination can reduce unmet needs of persons with severe and persistent Mental illness. Front Psychiatry. 2019;10:563. https://doi.org/10.3389/fpsyt.2019.00563 .

Dregan A, McNeill A, Gaughran F, et al. Potential gains in life expectancy from reducing amenable mortality among people diagnosed with serious mental illness in the United Kingdom. PLoS ONE. 2020;15(3):e0230674. https://doi.org/10.1371/journal.pone.0230674 .

Article CAS PubMed PubMed Central Google Scholar

Firth J, Siddiqi N, Koyanagi A, Siskind D, Rosenbaum S, Galletly C, et al. The Lancet Psychiatry Commission: a blueprint for protecting physical health in people with mental illness. Lancet Psychiatry. 2019;6(8):675–712. https://doi.org/10.1016/S2215-0366(19)30132-4 .

Flaws D, Patterson S, Bagshaw T, Boon K, Kenardy J, Sellers D, et al. Caring for critically ill patients with a mental illness: a discursive paper providing an overview and case exploration of the delivery of intensive care to people with psychiatric comorbidity. Nurs Open. 2023;10(11):7106–17. https://doi.org/10.1002/nop2.1935 .

Kroken RA, Hageberg IM, Gilje Lid T, Wiggen N, Midgard H, Thorsen PJB et al. Bedre helse og lengre liv for personer med alvorlig psykisk lidelse eller rusmiddel- og avhengighetslidelse [Internet]. [Better health and longer life for individuals with severe mental illness or substance use disorders]. Oslo: Den norske legeforening; 2023. Norwegian. [Accessed January 7, 2024]. https://www.legeforeningen.no/om-oss/publikasjoner/rapporter/bedre-helse-og-lengre-liv/ .

Schneider F, Erhart M, Hewer W, Loeffler LA, Jacobi F. Mortality and medical comorbidity in the severely mentally ill. Dtsch Arzebl Int. 2019;116(23–24):405–11. https://doi.org/10.3238/arztebl.2019.0405 .

Norwegian Directorate of Health. Sammen om mestring. Veileder i lokalt psykisk helsearbeid og rusarbeid for voksne. Et verktøy for kommuner og spesialisthelsetjenesten [Internet]. [Coping together. A guide for local adult mental health and substance abuse work. A tool for municipal health and care services and the specialist health services]. Oslo. 2014. Norwegian. [Accessed January 10, 2024]. https://www.helsedirektoratet.no/veiledere/sammen-om-mestring-lokalt-psykisk-helsearbeid-og-rusarbeid-for-voksne/Lokalt%20psykisk%20helsearbeid%20og%20rusarbeid%20for%20voksne%20%E2%80%93%20Veileder.pdf/_/attachment/inline/739b0cbe-9310-41c7-88cf-c6f44a3c5bfc:8f8b02ae7b26b730d27512d01420ec947d5ead97/Lokalt%20psykisk%20helsearbeid%20og%20rusarbeid%20for%20voksne%20%E2%80%93%20Veileder.pdf

Specialist Health Services Act. Act No. 64 of July 2 1999 [Internet]. Norwegian. [Accessed June 20, 2023]. https://lovdata.no/dokument/NL/lov/1999-07-02-61?q=spesialisthelsetjenesten .

Patton MQ. Qualitative research & evaluation methods: Integrating theory and practice. Fourth edition. Thousand Oaks, US: SAGE Publications; 2015.

Bjørkquist C, Hansen GV. Coordination of services for dual diagnosis clients in the interface between specialist and community care. J Multidiscip Healthc. 2018;11:233–43. https://doi.org/10.2147/JMDH.S157769 .

De Hert M, Cohen D, Bobes J, Cetkovich-Bakmas M, Leucht S, Ndetei DM, et al. Physical illness in patients with severe mental disorders. II. Barriers to care, monitoring and treatment guidelines, plus recommendations at the system and individual level. World Psychiatry. 2011;10(2):138–51. https://doi.org/10.1002/j.2051-5545.2011.tb00036.x .

Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101. https://doi.org/10.1191/1478088706qp063oa .

Braun V, Clarke V. Reflecting on reflexive thematic analysis. Qual Res Sport Exerc Health. 2019;11(4):589–97. https://doi.org/10.1080/2159676X.2019.1628806 .

Kristiansen S. Interpretation, prejudice and the hermeneutic circle. In: Järvinen M, Mik-Meyer N, editors. Qualitative analysis– eight approaches for the Social Science. London: SAGE; 2020. pp. 135–54.

Braun V, Clarke V. Successful qualitative research: a practical guide for beginners. Los Angeles US: SAGE; 2013.

Lincoln YS, Guba EG. Naturalistic inquiry. Thousand Oaks, US: SAGE; 1985.

Book Google Scholar

Rawlinson C, Carron T, Cohidon C, Arditi C, Hong QN, Pluye P, et al. An overview of reviews on Interprofessional Collaboration in primary care: barriers and facilitators. Int J Integr Care. 2021;21(2):32. https://doi.org/10.5334/ijic.5589 .

Hannigan B, Simpson A, Coffey M, Barlow S, Jones A. Care Coordination as Imagined, Care Coordination as done: findings from a cross-national Mental Health systems Study. Int J Integr Care. 2018;18(3):12. https://doi.org/10.5334/ijic.3978 .

Wakida EK, Talib ZM, Akena D, Okello ES, Kinengyere A, Mindra A, et al. Barriers and facilitators to the integration of mental health services into primary health care: a systematic review. Syst Rev. 2018;7(1):211. https://doi.org/10.1186/s13643-018-0882-7 .

Schot E, Tummers L, Noordegraaf M. Working on working together. A systematic review on how healthcare professionals contribute to interprofessional collaboration. J Interprof Care. 2020;34(3):332–42. https://doi.org/10.1080/13561820.2019.1636007 .

Zwaanswijk M, Verheij RA, Wiesman FJ, Friele RD. Benefits and problems of electronic information exchange as perceived by health care professionals: an interview study. BMC Health Serv Res. 2011;11(1):256. https://doi.org/10.1186/1472-6963-11-256 .

Biringer E, Hartveit M, Sundfør B, Ruud T, Borg M. Continuity of care as experienced by mental health service users - a qualitative study. BMC Health Serv Res. 2017;17(1):763. https://doi.org/10.1186/s12913-017-2719-9 .

Berrouiguet S, Baca-García E, Brandt S, Walter M, Courtet P. Fundamentals for Future Mobile-Health (mHealth): a systematic review of Mobile phone and web-based text messaging in Mental Health. J Med Internet Res. 2016;18(6):e135. https://doi.org/10.2196/jmir.5066 .

Storm M, Willumsen E. Deltakelse for helsefremming i helse Og Velferd. [Participation for health promotion in health and welfare]. In: Storm M, Willumsen E, editors. Deltakelse- et helsefremmende perspektiv. [Participation - a health-promoting perspective]. Bergen: Fagbokforlaget; 2023. pp. 13–28.

Storm M, Husebø AML. Digital innovasjon i helse [Digital innovation in health]. In: Samskaping Sosial innovasjon for helse og velferd [Co-creation - social innovation in health and welfare]. In: Willumsen E, Ødegård A, editors. Samskaping - sosial innovasjon for helse og velferd. [Co-creation - social innovation in health and welfare]. Oslo: Universitetsforlaget; 2020. pp. 163–76.

Liamputtong P. Researching the vulnerable: a guide to sensitive research methods. London, UK: SAGE; 2007.

Download references

Acknowledgements

The authors thank the study participants for dedicating their time to participate in the café dialogues.

The University of Stavanger funded the study.

Open access funding provided by University of Stavanger & Stavanger University Hospital

Author information

Authors and affiliations.

Department of Public Health, University of Stavanger, Postbox 8600 FORUS, 4036, Stavanger, Norway

Jorunn Nærland Skjærpe & Marianne Storm

University of Stavanger, Stavanger Business School, Postbox 8600 FORUS, 4036, Stavanger, Norway

Tatiana Aleksandrovna Iakovleva

Faculty of Health Sciences and Social Care, Molde University College, Molde, Norway

Marianne Storm

Research Department, Research Group of Nursing and Health Sciences, Stavanger University Hospital, Stavanger, Norway

You can also search for this author in PubMed Google Scholar

Contributions

All authors significantly contributed to the study. The study was designed in collaboration between the study authors. JNS and MS conducted the café dialogues. All authors participated in the data analysis. JNS took the lead in drafting and revising the manuscript. MS and TAI contributed to writing, commenting, refining, and revising the manuscript. All authors approved the final manuscript.

Corresponding author

Correspondence to Jorunn Nærland Skjærpe .

Ethics declarations

Ethics approval and consent to participate.

The study was approved through Sikt– Norwegian Agency for Shared Services in Education and Research (formerly known as the Norwegian Centre for Research Data (NSD)) (project No. 132714). Sikt ensured that the research project adhered to ethical guidelines and regulations and provided approval for information security and privacy services as part of the Norwegian Directorate for Higher Education and Skills (HK-dir.). The study adhered to the principles of the Helsinki Declaration. All participants received written information about the study. Participants gave written informed consent before the café dialogues, confirming their understanding of the nature of the consent and their participation in the study. They were also informed that they had the right to access the registered information and correct or delete any errors found in the information. Participants were told that they had the right to withdraw from the study at any time without any further consequences. The data were processed confidentially, without personally identifiable information, ensuring that no directly recognizable information about the participants was disclosed.

Consent for publication

Not applicable.

Competing interests

The authors declare no competing interests.

Additional information

Publisher’s note.

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Rights and permissions

Reprints and permissions

About this article

Cite this article.

Skjærpe, J.N., Iakovleva, T.A. & Storm, M. Responsible coordination of municipal health and care services for individuals with serious mental illness: a participatory qualitative study with service users and professionals. BMC Health Serv Res 24 , 633 (2024). https://doi.org/10.1186/s12913-024-10999-w

Download citation

Received : 31 August 2023

Accepted : 16 April 2024

Published : 16 May 2024

DOI : https://doi.org/10.1186/s12913-024-10999-w

Share this article

Anyone you share the following link with will be able to read this content:

Sorry, a shareable link is not currently available for this article.

Provided by the Springer Nature SharedIt content-sharing initiative

Service integration
Primary health care
Mental healthcare
Service providers
Qualitative design
Severe mental disorder

BMC Health Services Research

ISSN: 1472-6963

General enquiries: [email protected]

This paper is in the following e-collection/theme issue:

Published on 17.5.2024 in Vol 26 (2024)

Reporting of Ethical Considerations in Qualitative Research Utilizing Social Media Data on Public Health Care: Scoping Review

Authors of this article:

Yujie Zhang 1, 2 * , MD ;
Jiaqi Fu 1, 2 * , MD ;
Jie Lai 1, 2 * , MD ;
Shisi Deng 1, 2 , MD ;
Zihan Guo 1, 2 , MD ;
Chuhan Zhong 1, 2 , MD ;
Jianyao Tang 1, 2 , MD ;
Wenqiong Cao 1 , BSc ;
Yanni Wu 1 , PhD

1 Nanfang Hospital, Southern Medical University, Guangzhou, China

2 School of Nursing, Southern Medical University, Guangzhou, China

*these authors contributed equally

Corresponding Author:

Yanni Wu, PhD

Nanfang Hospital

Southern Medical University

No 1838 Guangzhou Avenue North

Baiyun District, Guangdong Province

Guangzhou, 510515

Phone: 86 02061641192

Email: [email protected]

Background: The internet community has become a significant source for researchers to conduct qualitative studies analyzing users’ views, attitudes, and experiences about public health. However, few studies have assessed the ethical issues in qualitative research using social media data.

Objective: This study aims to review the reportage of ethical considerations in qualitative research utilizing social media data on public health care.

Methods: We performed a scoping review of studies mining text from internet communities and published in peer-reviewed journals from 2010 to May 31, 2023. These studies, limited to the English language, were retrieved to evaluate the rates of reporting ethical approval, informed consent, and privacy issues. We searched 5 databases, that is, PubMed, Web of Science, CINAHL, Cochrane, and Embase. Gray literature was supplemented from Google Scholar and OpenGrey websites. Studies using qualitative methods mining text from the internet community focusing on health care topics were deemed eligible. Data extraction was performed using a standardized data extraction spreadsheet. Findings were reported using PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews) guidelines.

Results: After 4674 titles, abstracts, and full texts were screened, 108 studies on mining text from the internet community were included. Nearly half of the studies were published in the United States, with more studies from 2019 to 2022. Only 59.3% (64/108) of the studies sought ethical approval, 45.3% (49/108) mentioned informed consent, and only 12.9% (14/108) of the studies explicitly obtained informed consent. Approximately 86% (12/14) of the studies that reported informed consent obtained digital informed consent from participants/administrators, while 14% (2/14) did not describe the method used to obtain informed consent. Notably, 70.3% (76/108) of the studies contained users’ written content or posts: 68% (52/76) contained verbatim quotes, while 32% (24/76) paraphrased the quotes to prevent traceability. However, 16% (4/24) of the studies that paraphrased the quotes did not report the paraphrasing methods. Moreover, 18.5% (20/108) of the studies used aggregated data analysis to protect users’ privacy. Furthermore, the rates of reporting ethical approval were different between different countries ( P =.02) and between papers that contained users’ written content (both direct and paraphrased quotes) and papers that did not contain users’ written content ( P <.001).

Conclusions: Our scoping review demonstrates that the reporting of ethical considerations is widely neglected in qualitative research studies using social media data; such studies should be more cautious in citing user quotes to maintain user privacy. Further, our review reveals the need for detailed information on the precautions of obtaining informed consent and paraphrasing to reduce the potential bias. A national consensus of ethical considerations such as ethical approval, informed consent, and privacy issues is needed for qualitative research of health care using social media data of internet communities.

Introduction

Social media are web-based computer-mediated tools to collaborate, share, or exchange information, ideas, pictures, or videos in virtual communities and networks such as message boards, communities, chat rooms, forums, Twitter, and Facebook [ 1 ]. Moreover, patients and researchers can use internet communities to provide health care and disseminate health information [ 2 , 3 ]. Health care refers to the efforts made to improve or maintain physical, mental, or emotional well-being, including prevention, diagnosis, treatment, recovery, and other physical and mental impairments [ 4 ]. Currently, with 57% of the global population’s access to social media, more than 40% of the patients and caregivers worldwide utilize the internet community for health care information needs [ 5 ]. With diverse populations accessing internet communities and sharing information about health care topics, researchers have the opportunity to collect and analyze text about health care from a diverse range of participants in the internet community, which was unavailable previously [ 6 ]. Usually, quantitative data are derived from information extraction, which can be analyzed statistically, and the summary results presented cannot be directly linked to individual participants. In contrast, qualitative research within internet community analysis posts and comments qualitatively or thematically involves a more detailed and in-depth analysis and understanding of the full written content [ 7 ]. However, a controversial ethical problem has been raised about conducting qualitative research containing internet users’ verbatim quotes that could lead to traceability of the original post, thereby causing a threat to an individual’s privacy [ 8 ]. Additionally, a previous study investigated public and patients’ views regarding ethics in research using social media data and reported that internet users were aggrieved if they found any of their quotes cited in a medical research paper without obtaining their informed consent [ 9 ]. Further, besides the privacy breach caused by posts being traced, there is greater harm for special groups or vulnerable groups if we do not highlight the importance of the technical standards for text mining and privacy protection in health care. For instance, some unusual postings, abnormal pictures, and interactions that were expressed by individuals with mental disorders in social media can be detected by researchers by using text mining tools without obtaining their consent [ 10 ]. The publication of research on mental disorders, including quotes in posts, can result in a high risk of information harm, which can lead to personal information being revealed and further stigmatization of the condition or disease [ 11 ]. Since 2001, ethical concerns have been debated for decades about ethical approval, informed consent, and how to ensure anonymity and preserve data privacy and confidentiality in qualitative research in the internet community [ 12 - 14 ].

With the rapid development of social media and internet research, some ethical guidelines or standards have been published to ensure that research based on internet communities is conducted ethically. The Association of Internet Researchers (internet research ethical guidelines 2.0 and 3.0) showed that researchers working without the direct approval of ethics review boards would have additional challenges to face, and obtaining informed consent is obviously impracticable in several big data projects. However, with the ethical issues about privacy breaches and harms of risk of discrimination, the Association of Internet Researchers recommended reserving the acquisition of informed consent to the dissemination stage by asking for informed consent from specific participants before publication of their quotes [ 15 , 16 ]. Furthermore, researchers should take responsibility for information confidentiality and anonymity according to the internet research ethics criteria prepared by the National Committee for Research Ethics in the Social Sciences and the Humanities guidelines, which recommend a basic research ethic norm for the analyses, reports, and evaluations that apply to all research [ 17 ]. Moreover, the National Committee for Research Ethics in the Social Sciences and the Humanities guidelines contain more details about the demand for legal consent and privacy standards imposed by the European Union’s General Data Protection Regulation. The General Data Protection Regulation is a European Union–wide regulation targeting the project of personal data processing. The General Data Protection Regulation defines personal data as any information relating to an identifiable person (data subject), including name, online identification number, location data, and other factors related to personal, physical, physiological, mental, or social identity [ 18 ]. The General Data Protection Regulation recommends using anonymous data and deleting identifiable information to ensure the confidentiality of the data. Consent should be obtained from the individual for use in scientific research [ 18 , 19 ]. The British Psychological Society guideline does not explicitly refer to the internet community but suggests that researchers may consider paraphrasing the verbatim quotes to reduce the risk of being traced or identified in qualitative research [ 20 ]. When paraphrasing, steps must be put into place to ensure that the original meaning of the message is maintained. Currently, there is no widespread consensus on ethical considerations by social media researchers.

Some researchers have tried to explore the reporting of existing ethical considerations in research papers using social media data. For instance, Sinnenberg et al [ 6 ] reported that only 32% and 12% of the papers mentioned acquiring ethical approval and informed consent, respectively, by utilizing multiple analysis methods, including surveillance, intervention, recruitment, engagement, content analysis, and network analysis with Twitter data before 2015. Thereafter, Takats et al [ 21 ] conducted an updated examination based on Sinnenberg et al’s [ 6 ] study. They found that of 367 studies using different methodological approaches, including sentiment mining, surveillance, and thematic exploration of public health research using Twitter data between 2010 to 2019, 17% of the studies included verbatim tweets and identifiable information about the internet users [ 21 ]. Similarly, Lathan et al [ 22 ] reviewed papers, including both qualitative and quantitative methods, by using Facebook data to explore public health issues and reported that only 48% and 10% of the papers obtained ethical approval and informed consent, respectively. Furthermore, in a study on research using YouTube data or comments, Tanner et al [ 23 ] found that only 26.1% of these studies sought ethical approval, only 1 paper (0.08%) sought informed consent, and 27.7% contained identifiable information. These findings indicate widespread neglect of ethical issues such as ethical approval, informed consent, and privacy issues in research papers using social media data.

Our study focuses on the ethical challenges of qualitative studies utilizing social media data. First, social media can be considered as sources for qualitative data collection because of the low cost, vast amount of available sources about health information, and users’ health behaviors, experiences, and attitudes. Second, qualitative research is context-dependent and mainly contains quotations and written content to support the viewpoint. It is acknowledged that quote materials from social media would potentially be traced back to the original posts and threaten the users’ privacy [ 24 ]. This is supported by findings reported by Ayers et al [ 25 ] who found that online searches of verbatim Twitter quotes in journal papers described as “content analyses” or “coded Twitter postings” can be traced back to individual internet users 84% of the time. Furthermore, Lathan et al [ 22 ] identified that 46% of the studies with verbatim or paraphrased quotes could be traced to the original posts in 10 minutes. Therefore, it is essential to investigate the extent to which ethical oversight is reported in qualitative studies using social media data. Moreover, qualitative research often involves personally sensitive data about health conditions and diseases; hence, anonymity and proper deidentification would be more important for researchers [ 26 , 27 ].

Previous studies have reviewed the ethical challenges and methodological use of social media platforms such as Twitter [ 6 , 21 ], Facebook [ 22 ], and YouTube [ 23 ] for health care research in both qualitative and quantitative studies. Although there is plenty of qualitative data pouring into social media such as blogs, Twitter, Facebook, and Weibo, evidence is lacking on the investigation of ethical considerations targeting qualitative data in different software and web-based discussion forums to provide a more comprehensive understanding of the ethical issues. To address the ethical considerations in qualitative research of different internet communities and draw the attention of researchers and publishers to ethical issues, we conducted this study to evaluate the ethical practices and ethical considerations of qualitative studies on health care by using data of internet communities. This review aims to (1) assess the rates of reporting institutional review board (IRB) approval and informed consent in studies focused on mining text in the internet community and social media, (2) compare these rates according to the year of publication, country conducting the research, website included in the study’s analysis, and journal’s guidelines about ethical approval for the type of study, and (3) describe whether the studies used anonymized/deidentified data.

Research Design

We conducted a scoping review to investigate how qualitative research mining social media data handles ethical approval, informed consent, and confidential issues. We performed this study according to the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews) guidelines. The completed PRISMA-ScR checklist is provided in Multimedia Appendix 1 .

Search Strategy

All published qualitative studies from 2010 to March 31, 2023, focusing on mining text from online community and social media sources about health care in the following databases were included in this study: PubMed, Web of Science, CINAHL, Cochrane, and Embase. A standardized search string containing Medical Subject Headings (MeSH) and non-MeSH entry terms was used in the search strategy. In addition, the reference lists of the retrieved papers and citation tracking were manually searched as a supplement to database searches to improve comprehensiveness. Gray literature was also identified through internet searches in Google Scholar and OpenGrey websites. The search strategies are represented in Multimedia Appendix 2 .

Inclusion and Exclusion Criteria

We divided the criteria into 2 parts. First, we limited the inclusion and exclusion criteria used at the title and abstract screening stage eligible for (1) studies mining existing text and posts from the internet community and social media data focusing on health care topics, (2) studies using qualitative methods or available qualitative parts in mixed methods studies to analyze data, and (3) studies only written in English. Ineligible studies were those related to investigating the use and dissemination of social media in health care, using social media or internet community as an intervention tool, and using social media to conduct web-based interviews, surveys, or focus groups. We also excluded studies published as reviews, case studies, conference abstracts, commentaries, policies, guidelines, and recommendations. Second, at the full screening stage, the specific eligible inclusion criteria were studies focused on mining text about health care topics with full-text papers. Studies that did not have the full text after contacting the authors and that were not originally in the English language were excluded.

Study Selection

All results of the searches were entered into the EndNote library, and duplicates were removed. Two researchers reviewed the titles and abstracts based on the inclusion and exclusion criteria independently. Those studies that were irrelevant to the study topic were discarded, and then the full text was screened to select eligible papers. Any disagreements were discussed and resolved by consensus or a third person.

Data Extraction

Data were extracted between April 2023 and May 2023. Two researchers independently read the full text carefully, and the results were extracted using a standardized data extraction spreadsheet, including research type, first author, study objective, sample size, publication time, country where the research was conducted or country of the first author, website or internet community the studies focus on, type of data collected from social media, language of collected posts or data, privacy level of data (public or privacy posts), study design, research results, published journal, and information about the ethical considerations. Disagreements were resolved by consensus of a third person. The information about ethical considerations was analyzed to investigate the rates of reporting ethical approval, informed consent, and privacy issues: whether IRB review was reported (IRB approval, IRB exemption, unnecessary, not mentioned) and the reason for not requiring IRB approval; whether informed consent was obtained from participants or the websites’ administrators, consent types (digitally informed consent or written informed consent, informed consent is not required, consent was waived by IRB), and the methods used to obtain consent in each study; and whether quoting a post in papers could lead to the identification of internet users in each study. The description of users’ posts (verbatim quote, paraphrase) was recorded. We also analyzed if posts were paraphrased to maintain the original meaning, if actions were taken to deidentify the internet users, and if the posts contained other identifying information (ie, usernames, photos, links, hashtags) attached to the post. As every journal would provide publication ethical considerations and requirements, we also searched the submission guidelines and editorial policies of each journal submission website to check whether the journal contained any ethical guidance targeting studies using data from internet community and social media platforms. Additional information was included about the details of ethical approval, informed consent, and privacy, for example, whether individuals can withdraw their quotes if they want to be excluded from the study at any time without any reprisal and whether the quotations were tested for deidentification via search engines. There was excellent agreement on the primary outcome between the 2 researchers (k>.95 for all).

Data Analysis

Data were analyzed using SPSS software (IBM Corp). The chi-square test or Fisher exact tests (when cell size was less than 5) were used to test for differences between the rates of informed consent and ethical approval according to publication year, website, and different countries. All P values were 2-sided, and P values <.05 indicated significance.

Study Selection for the Review

We reviewed 4674 papers after removing the duplicates. After screening the titles, abstracts, and full-texts, we reviewed 108 eligible papers ( Figure 1 ). The full list of the included papers and all the extracted information are incorporated in Multimedia Appendix 3 [ 28 - 135 ]. Of the 108 studies reviewed, 73 (67.6%) were qualitative studies and 35 (32.4%) were mixed methods studies. All papers had text mined from internet communities or social media for qualitative analysis. The sample size ranged from 32 to 392,962. Approximately 82.4% (89/108) of the studies were published after 2018, and there was a sharp increase in the number of studies from 2019 to 2022. Moreover, nearly half of the studies (55/108, 50.9%) were published in the United States. Regarding the websites for mining text, the most widely used social media platform was Twitter (42/108, 38.9%), followed by Facebook (17/108, 15.7%).

Ethics Approval in These Studies

Our results indicated that of the 108 studies, 78 (72.2%) reported ethics approval. Of the 78 studies, 31 (40%) explicitly stated that ethics approval was obtained before the study was undertaken, 33 (42%) reported that the ethics approval was granted through exemptions by the local IRB, and 14 (18%) explicitly demonstrated that approval by the ethics committee was not required because publicly available data were collected from internet communities and social media platforms. However, 30 (27.8%) of the 108 studies did not mention about obtaining IRB approval ( Table 1 ).

Based on our exploration of the ethical guidelines of each journal to determine whether there were ethical requirements for studies mining social media data, only 36.1% (39/108) of the studies were published in journals that required ethical considerations for studies gathering data from social media platforms by using internet and digital technologies. Of the 39 studies published in 19 journals, 27 (69%) were published in the Journal of Medical Internet Research and its sister journals. The submission guidelines of the Journal of Medical Internet Research state that authors of manuscripts describing studies of internet, digital tools, and technologies are required to verify that they have adhered to local, national, regional, and international laws and regulations, and are required to verify that they complied with informed consent guidelines. Moreover, 2 journals also provided a specific requirement, that is, when researchers interact with individuals or obtain privacy information gathered from social media platforms, they should obtain ethics approval prior to conducting the study and informed consent from anyone who could potentially be identified. Surprisingly, there were no significant differences in the ethics approval reportage between journals with ethics approval guidelines and those that did not have ethics guidelines for researchers gathering data from social media platforms ( P =.08). Notably, the rates of reporting ethics approval were different between different countries ( P =.02). However, there were no statistically significant differences between the rates of reporting ethical approval and different websites or publication years (all P >.05) ( Table 2 ).

Informed Consent

Of the 108 studies, 59 (54.7%) showed that they did not include any information about informed consent and 49 (45.3%) mentioned informed consent. Of the 49 studies that mentioned informed consent, 14 (13%) demonstrated that informed consent was waived by local institutional boards, and 21 (19%) reported that informed consent was not required because this information is publicly available in websites or did not involve human participants. We interpreted this as not seeking informed consent. Only 14 (12.9%) of the 108 studies explicitly indicated that informed consent was obtained ( Table 1 ). Among the 14 studies, 2 (14%) only provided a generic statement that informed consent was obtained but did not report the process of how the informed consent was obtained, while 12 (86%) received digital informed consent. Of the 12 studies that reported receiving digital informed consent, 6 reported that they sought permission from the communities’ or groups’ administrators and by posting a statement of the research objective on the group’s wall, while 5 studies contacted the participants privately via email, commenting below the posts and software to gain consent, and 1 study reported that it had sent a digital version of the informed consent book. Furthermore, among the studies that had obtained informed consent, 7 studies included the statement that the individuals’ posts would be removed if they wanted to be excluded from the study, and they could withdraw from the study whenever they wanted. In addition, the rates of reporting informed consent showed no statistical significance between publication years, different countries, and different websites (all P >.05) ( Table 2 ).

Confidentiality of the Information

All data sources were obtained from anonymous websites or communities, and the majority (104/108, 96.3%) of the data sources did not contain usernames. Notably, only 3.7% (4/108) of the studies contained the participants’ usernames or pseudonyms. One study reported that pseudonyms like Sasha had been used instead of the real name. The other 3 studies contained the expression for usernames but did not state whether pseudonyms were used. Except for 9 studies that used nonnative language quotes and 3 studies that were transcribed into text via video, among the 108 included studies, 76 (70.3%) quoted at least one native language post in their reports. Additionally, 20 studies presenting aggregated analysis or composite accounts did not include any quotation or written content. Of the 76 studies containing internet users’ written content, 52 (68%) contained just verbatim-quoted participants’ posts and 24 (32%) contained paraphrased posts ( Table 1 ). Among the 52 studies containing direct and verbatim quotations, which are likely to be traced to the original posts from users, only 17 (33%) studies took measures to deidentify the users. The 17 studies mentioned that all names or usernames were removed and personal identifying information was removed to maintain privacy, while 42% (22/52) of the studies did not mention any measures that were taken to deidentify the users and maintain confidentiality. Approximately 32% (24/76) of the studies described that they paraphrased posts and removed any explicitly identified personal information to maintain confidentiality to reduce the likelihood of users being identified via search engines. Of the 24 studies, 20 (83%) reported that the quotations were slightly modified or summarized for readability, the symbol information was removed using “…”, and key identifiable information was removed to protect privacy while maintaining the meaning of posts. Four of the 24 (17%) studies did not report the methods and details of paraphrasing. Notably, only 3% (2/76) of the studies containing users’ written content showed that researchers intentionally entered each quote into search engines to ensure that every quote did not lead to the original posts. Moreover, of the 76 studies containing written content, 62 (82%) did not contain other types of identity information attached to the posts, while 14 (18%) included other identifying data (hashtags, emojis, geolocation, photos, links, screenshots) attached to the original posts for analysis ( Table 1 ). Of the 14 studies including other identifying information, 4 (29%) contained photos and screenshots associated with the website pages. Of the 52 studies that disclosed verbatim quotes and other identifiable information, 26 (46%) studies reported informed consent consideration, and only 8 (15%) obtained explicitly informed consent. Additionally, of the 77% (40/52) of the studies that mentioned IRB or ethical review, 38% (15/40) received IRB approval, and 63% (25/40) of the studies were granted exemption. The proportion of reporting ethical approval in studies containing users’ written content was modestly higher than that in studies not containing users’ written content (60/76, 79% vs 14/32, 44%; P <.001) ( Table 2 ).

Principal Findings and Comparison to Prior Work

In this scoping review, we included 108 studies ( Multimedia Appendix 3 ; [ 28 - 135 ]) that focused on mining text from internet community and social media data for health care research, and we reviewed the ethical consideration reportage and outcome reports in these studies. We found that the rates of reporting IRB approval and informed consent in qualitative research on health care utilizing social media data were 59.3% (64/108) and 12.9% (14/108), respectively. Our findings demonstrate that the key ethical considerations for qualitative research in online communities are insufficiently discussed and described. However, the reporting rates of ethical considerations in the papers in our scoping review were much higher than those reported in systematic reviews including multiple analysis methodologies on only 1 social media platform. For example, ethics approval and informed consent were reported in 48% and 10% of research studies using only Facebook data [ 22 ], 32% and 0% from 2006 to 2019 [ 21 ], 40% and 0.9% (only 1 paper) from 2015 to 2016 in public health research using only Twitter data [ 25 ], and 26.1% and 0.8% (only 1 paper) in researches incorporating only YouTube data [ 23 ], respectively. In fact, previous studies were limited to only a few selected websites such as Twitter, Facebook, and YouTube. There is a lack of research that incorporates a variety of different social media data for comparisons. Differences in the reporting of ethical considerations may be attributed to the different methodologies adopted by studies. For example, Lathan et al [ 22 ] analyzed the ethical considerations in studies including predictive or model development, while our research focuses on the ethical considerations in qualitative studies.

Importantly, our findings indicate that there is a need to develop a standardized and apparent approach for the reporting of ethical considerations in qualitative research of data from social media and online communities. Our research demonstrates that the rates of reporting ethics approval are different in different countries ( P =.02). Specifically, a wide variety of national research ethics governing bodies and over 1000 laws, regulations, and standards provide oversight for human subjects research in 130 countries. Obviously, a guideline is needed for best ethical practices for qualitative research involving posts from social media platforms. Surprisingly, there were no significant differences between the rates of reporting ethical approval and those of journals specifying ethical requirements for studies involving text mining ( P =.08). This inconsistent result of publication guidelines and reports of ethical approval consent is similar to previous findings on the ethical standards in COVID-19 human studies [ 136 ]. Although there are journal publication guidelines for studies mining social media data, the reports of ethical approval and consent in the papers published in such journals do not exactly follow the guidelines. Consequently, this finding indicates that more ethical awareness is needed among researchers, editors, and reviewers for qualitative studies on data mining.

Besides the different legal and regulations in different countries, the inconsistency in the ethics approval in published papers may be because social media research is a highly interdisciplinary science, and computer science researchers may be less experienced or may pay less attention to the key ethical issues of protecting human subjects [ 137 ]. Medical and health science researchers may have considered some ethical concerns about gathering social media data but they may not be familiar with the relevant guidelines. For example, the Association of Internet Researchers has a detailed ethical guideline targeting social scientists conducting digital research, while it may be less popular and less well-known among medical and health care researchers. At the institute level, Ferretti et al [ 138 ] noticed that institutionalized review committees, especially the individual IRB institutes for universities and health care systems lack knowledge about the methodology, text mining technical standards, data security, and ethical harms for studies using big data and social media as sources. Because of this lack of knowledge, institutional ethics committees may have inconsistent ethical criteria and perspectives about web-based projects using social media data [ 139 ]. Therefore, some ethics review committees exclude research on internet communities from ethical oversights because their ethics standards are confined only to medical fields. Above all, it is additionally challenging for ethical approval institutions because of the continuous development and dynamic change of studies using social media data. Furthermore, it is necessary for ethics committee members to be trained about the ethical issues in studies mining text from social media. Inviting interdisciplinary researchers to join in the approval process would be an appropriate method to increase the awareness of ethical considerations [ 140 , 141 ].

Interestingly, the reporting rate of obtaining informed consent for mining social media data in qualitative studies was unexpected. The most influential ethical reports such as the Nuremberg Code [ 142 ], Declaration of Helsinki [ 143 ], and the Belmont Report [ 144 ] have demonstrated the principle of informed consent in research involving humans. Our review shows that only 12.9% (14/108) of the studies explicitly obtained informed consent and 32.4% (35/108) of the studies reported that informed consent was exempted by IRB or was not required, as the information was available publicly in websites or did not involve human participants. Our results are similar to those of Wongkoblap et al [ 145 ] who reported that only 16.7% of the studies received informed consent from participants prior to data analysis on data mining of social network data on mental health disorders.

There are multiple reasons for the challenges in obtaining informed consent in an internet setting. First, it is impractical for researchers to gain individual informed consent from a large number of users in an internet community [ 146 ]. Second, members of ethics review boards lack consensus about the need for informed consent from an internet community for qualitative research under the current legal definition [ 147 ]. Moreover, there has been a debate on the criteria of human subject research in using social media data. The federal regulation recommends that if data in the studies are obtained from public social media websites, where data are identifiable and do not require interaction with individuals, such studies do not constitute human subject research, while studies involving the identification of private information or interaction with the individual can be considered as human subject research [ 148 ]. In contrast, some researchers believe that social media and big data research are not ethically exceptional and should be treated in the same manner and with the same rules as those for traditional forms of research [ 149 ]. There is ambiguity as to what is appropriate or should be standard practice for obtaining informed consent.

Currently, it is challenging to maintain privacy and protect the traceability of individuals posting content in the internet community. Our findings indicated that 70.3% (76/108) of the studies contained internet users’ written content, of which 68% (52/76) included verbatim quotations of users’ posts that could lead to identification, and 18% (14/76) of the studies included other identifiable information such as links, screenshots, and emojis linked to original posts, which are similar to the findings of Ayers et al [ 25 ] and Lathan et al [ 22 ]. Usha Lawrance et al [ 150 ] and Wilkinson and Thelwall [ 151 ] argued that using direct quotes to support findings would lead to the identification of users and breach users’ confidentiality in internet community data. Moreover, quoting social media posts or disclosing usernames violate the International Committee of Medical Journal Editors’ ethics standards, which state that identifying information such as written descriptions and photos should not be published unless the information is essential for scientific purposes and the participants give written informed consent for publication [ 152 ]. Furthermore, our study demonstrates that the proportion of studies containing users’ written content (both direct and paraphrased quotations) is higher than that of studies that do not include any quotation or written content (60/76, 79% vs 14/32, 44%; P <.001)——a tentative explanation is that some researchers realized that ethical reportage should be stricter for qualitative papers with quotations from social media posts due to privacy and security issues. This is supported by Boyd and Crawford [ 153 ] who stated that rigorous thinking about the process of mining and anonymizing big data is required for ethics boards to ensure that people are protected. Our findings show that 32% (24/76) of the studies intentionally paraphrased the quotes to ensure that users could not locate them, and 20 studies used aggregated data interconnected with anonymity. Moreover, it is recommended by Wilkinson and Thelwall [ 151 ], Bond et al [ 154 ], and Markham et al [ 155 ] that researchers should not directly quote and work with aggregate data sets and separate texts from their original context, which is more acceptable to participants. In addition, the British Psychological Society guidelines recommend that researchers consider paraphrasing any verbatim quotes to reduce the risk of these being traced to the source [ 20 ]. Notably, 13 of the 25 papers in this study showed that they did not report the precautions taken for paraphrasing. This may be due to the lack of detailed methodology and consensus about paraphrasing quotes to reduce bias and maintaining the original meaning.

Limitations and Strengths

Our scoping review has several limitations. First, our research was limited to qualitative studies and the qualitative parts in mixed methods studies on text mining from social media, and it is unclear whether ethical considerations are critical in quantitative studies among internet communities. Second, we were restricted to studies published in English language and those with the full text available, and therefore, we could be underestimating the number of relevant papers published in other languages. Third, the rates of reporting ethical approval, informed consent, and privacy of this research relied on self-reported data. Thus, it is possible that although certain studies did not report the process of ethical considerations, such considerations may have been followed during the research. Conversely, some studies may have mentioned about the ethical considerations but may not have conducted them in practice. Hence, there is a bias because of the lack of accurate documentation that must be considered.

Social media text mining can be a useful tool for researchers to understand patient experiences of health conditions and health care. However, as illustrated by the absence of ethical discourse in publications, our analysis indicates significant gaps in the ethical considerations and governance of qualitative research of internet posts. Therefore, a complete and consistent consensus guideline of ethical considerations in qualitative research of internet posts is needed to protect users’ data. With the continued advancing development of text-mining techniques, qualitative studies mining text from social media should be more cautious while using user quotations to maintain user privacy and protect the traceability of the internet users posting content. We suggest that authors should report their results by using aggregated findings or deidentified ways like paraphrasing instead of verbatim quotations, which can prevent internet users from being identified through search engines. In addition, authors should provide more detailed information about the precautions taken for obtaining informed consent and paraphrasing to reduce the potential bias. Furthermore, journals and editors should pay more attention to the reporting standards of ethical consideration and privacy issues in qualitative research involving social media data.

Acknowledgments

This project was funded by the National Natural Science Foundation of China (72304131) and the Outstanding Youths Development Scheme of Nanfang Hospital, Southern Medical University (2023J005). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of this manuscript. We sincerely thank the funders of this study.

Data Availability

All data extracted and analyzed during this study are presented in this paper and in the multimedia appendices.

Authors' Contributions

YW was responsible for the protocol of the research and redrafted the paper critically. YZ and JF performed literature searches. YZ, JL, and WC performed study identification and screening. ZG, SD, CZ, and JT extracted and analyzed the data from the included journals. YZ and JL wrote the first draft of the paper. All authors read and approved the final manuscript.

Conflicts of Interest

None declared.

PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews) checklist.

Search strategy for each database.

Summary of included literature.

Obar JA, Wildman S. Social media definition and the governance challenge: An introduction to the special issue. Telecommunications Policy. Oct 2015;39(9):745-750. [ CrossRef ]
Kaplan AM, Haenlein M. Users of the world, unite! The challenges and opportunities of social media. Business Horizons. Jan 2010;53(1):59-68. [ CrossRef ]
VanDam C, Kanthawala S, Pratt W, Chai J, Huh J. Detecting clinically related content in online patient posts. J Biomed Inform. Nov 2017;75:96-106. [ FREE Full text ] [ CrossRef ] [ Medline ]
Health care. Wikipedia. URL: https://en.wikipedia.org/wiki/Health_care [accessed 2023-06-01]
Moorhead SA, Hazlett DE, Harrison L, Carroll JK, Irwin A, Hoving C. A new dimension of health care: systematic review of the uses, benefits, and limitations of social media for health communication. J Med Internet Res. Apr 23, 2013;15(4):e85. [ FREE Full text ] [ CrossRef ] [ Medline ]
Sinnenberg L, Buttenheim AM, Padrez K, Mancheno C, Ungar L, Merchant RM. Twitter as a tool for health research: A systematic review. Am J Public Health. Jan 2017;107(1):e1-e8. [ CrossRef ] [ Medline ]
Braun V, Clarke V. Using thematic analysis in psychology. Qualitative Research in Psychology. Jan 2006;3(2):77-101. [ CrossRef ]
Hswen Y, Naslund JA, Brownstein JS, Hawkins JB. Monitoring online discussions about suicide among Twitter users with schizophrenia: exploratory study. JMIR Ment Health. Dec 13, 2018;5(4):e11483. [ FREE Full text ] [ CrossRef ] [ Medline ]
Golder S, Ahmed S, Norman G, Booth A. Attitudes toward the ethics of research using social media: a systematic review. J Med Internet Res. Jun 06, 2017;19(6):e195. [ FREE Full text ] [ CrossRef ] [ Medline ]
Athanasopoulou C, Sakellari E. Facebook and health information: content analysis of groups related to schizophrenia. Stud Health Technol Inform. 2015;213:255-258. [ Medline ]
Conway M, O'Connor D. Social media, big data, and mental health: current advances and ethical implications. Curr Opin Psychol. Jun 2016;9:77-82. [ FREE Full text ] [ CrossRef ] [ Medline ]
Eysenbach G, Till JE. Ethical issues in qualitative research on internet communities. BMJ. Nov 10, 2001;323(7321):1103-1105. [ FREE Full text ] [ CrossRef ] [ Medline ]
Heilferty CM. Ethical considerations in the study of online illness narratives: a qualitative review. J Adv Nurs. May 2011;67(5):945-953. [ CrossRef ] [ Medline ]
Roberts LD. Ethical issues in conducting qualitative research in online communities. Qualitative Research in Psychology. Apr 20, 2015;12(3):314-325. [ CrossRef ]
Franzke A, Bechmann A, Zimmer M, Ess C, the Association of Internet Researchers. Internet research: ethical guidelines 3.0. Association of Internet Researchers. 2020. URL: https://aoir.org/reports/ethics3.pdf [accessed 2023-05-30]
Markham A, Buchanan E. Ethical decision-making and internet research: recommendations from the AoIR ethics working committee (version 2.0). AoIR. 2012. URL: https://aoir.org/reports/ethics2.pdf [accessed 2023-06-05]
The NCFREITSSH(. Ethical guidelines for internet research. 2022. URL: https://www.forskningsetikk.no/en/guidelines/social-sciences-humanities-law-and-theology/a-guide-to-internet-research-ethics [accessed 2023-06-13]
Chapter 3: Rights of the data subject. General Data Protection Regulation (GDPR). European Commission. Official Journal of the European Union; 2018. URL: https://gdpr-info.eu/chapter-3/ [accessed 2023-11-29]
Hand DJ. Aspects of data ethics in a changing world: where are we now? Big Data. Sep 01, 2018;6(3):176-190. [ FREE Full text ] [ CrossRef ] [ Medline ]
British Psychological Society. Ethics guidelines for internet-mediated research. 2021. URL: https://explore.bps.org.uk/binary/bpsworks/64374754e0c1dd30/5a757d7c2d39a9837f0eedec1b9ba28fa5e9e38f0bffa9950b678ab727803959/rep155_2021.pdf [accessed 2023-05-30]
Takats C, Kwan A, Wormer R, Goldman D, Jones HE, Romero D. Ethical and methodological considerations of Twitter data for public health research: systematic review. J Med Internet Res. Nov 29, 2022;24(11):e40380. [ FREE Full text ] [ CrossRef ] [ Medline ]
Lathan HS, Kwan A, Takats C, Tanner JP, Wormer R, Romero D, et al. Ethical considerations and methodological uses of Facebook data in public health research: A systematic review. Soc Sci Med. Apr 2023;322:115807. [ FREE Full text ] [ CrossRef ] [ Medline ]
Tanner J, Takats C, Lathan H, Kwan A, Wormer R, Romero D, et al. Approaches to research ethics in health research on YouTube: systematic review. J Med Internet Res. Oct 04, 2023;25:e43060. [ FREE Full text ] [ CrossRef ] [ Medline ]
Stockdale J, Cassell J, Ford E. "Giving something back": A systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland. Wellcome Open Res. 2018;3:6. [ FREE Full text ] [ CrossRef ] [ Medline ]
Ayers JW, Caputi TL, Nebeker C, Dredze M. Don't quote me: reverse identification of research participants in social media studies. NPJ Digit Med. 2018;1:30. [ FREE Full text ] [ CrossRef ] [ Medline ]
Aitken M, de St Jorre J, Pagliari C, Jepson R, Cunningham-Burley S. Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies. BMC Med Ethics. Nov 10, 2016;17(1):73. [ FREE Full text ] [ CrossRef ] [ Medline ]
Hunter RF, Gough A, O’Kane N, McKeown G, Fitzpatrick A, Walker T, et al. Ethical issues in social media research for public health. Am J Public Health. Mar 2018;108(3):343-348. [ CrossRef ]
Ahmed OH, Sullivan SJ, Schneiders AG, McCrory P. iSupport: do social networking sites have a role to play in concussion awareness? Disabil Rehabil. 2010;32(22):1877-1883. [ CrossRef ] [ Medline ]
Bender JL, Jimenez-Marroquin M, Jadad AR. Seeking support on Facebook: a content analysis of breast cancer groups. J Med Internet Res. Feb 04, 2011;13(1):e16. [ FREE Full text ] [ CrossRef ] [ Medline ]
Gajaria A, Yeung E, Goodale T, Charach A. Beliefs about attention-deficit/hyperactivity disorder and response to stereotypes: youth postings in Facebook groups. J Adolesc Health. Jul 2011;49(1):15-20. [ CrossRef ] [ Medline ]
Degroot JM. Maintaining relational continuity with the deceased on Facebook. Omega (Westport). Nov 01, 2012;65(3):195-212. [ CrossRef ]
Donelle L, Booth RG. Health tweets: an exploration of health promotion on twitter. Online J Issues Nurs. Sep 30, 2012;17(3):4. [ FREE Full text ] [ Medline ]
Rui JR, Chen Y, Damiano A. Health organizations providing and seeking social support: a Twitter-based content analysis. Cyberpsychol Behav Soc Netw. Sep 2013;16(9):669-673. [ CrossRef ] [ Medline ]
Lyles CR, López A, Pasick R, Sarkar U. "5 mins of uncomfyness is better than dealing with cancer 4 a lifetime": an exploratory qualitative analysis of cervical and breast cancer screening dialogue on Twitter. J Cancer Educ. Mar 2013;28(1):127-133. [ CrossRef ] [ Medline ]
Lee JL, DeCamp M, Dredze M, Chisolm MS, Berger ZD. What are health-related users tweeting? A qualitative content analysis of health-related users and their messages on twitter. J Med Internet Res. Oct 15, 2014;16(10):e237. [ FREE Full text ] [ CrossRef ] [ Medline ]
Ahlwardt K, Heaivilin N, Gibbs J, Page J, Gerbert B, Tsoh JY. Tweeting about pain: comparing self-reported toothache experiences with those of backaches, earaches and headaches. J Am Dent Assoc. Jul 2014;145(7):737-743. [ FREE Full text ] [ CrossRef ] [ Medline ]
Struik LL, Baskerville NB. The role of Facebook in Crush the Crave, a mobile- and social media-based smoking cessation intervention: qualitative framework analysis of posts. J Med Internet Res. Jul 11, 2014;16(7):e170. [ FREE Full text ] [ CrossRef ] [ Medline ]
Abdel-Razig S, Anglade P, Ibrahim H. Impact of the COVID-19 pandemic on a physician group's WhatsApp chat: qualitative content analysis. JMIR Form Res. Dec 07, 2021;5(12):e31791. [ FREE Full text ] [ CrossRef ] [ Medline ]
Reddy A. Skincare in social media: analyzing prominent themes in online dermatologic discussions. Cureus. May 7, 2021:e14890. [ CrossRef ] [ Medline ]
van der Pijl MSG, Hollander MH, van der Linden T, Verweij R, Holten L, Kingma E, et al. Left powerless: A qualitative social media content analysis of the Dutch #breakthesilence campaign on negative and traumatic experiences of labour and birth. PLoS One. 2020;15(5):e0233114. [ FREE Full text ] [ CrossRef ] [ Medline ]
Rath L, Vijiaratnam N, Skibina O. Alemtuzumab in multiple sclerosis: lessons from social media in enhancing patient care. Int J MS Care. 2017;19(6):323-328. [ CrossRef ] [ Medline ]
Bloom R, Beck S, Chou W, Reblin M, Ellington L. In their own words: experiences of caregivers of adults with cancer as expressed on social media. ONF. Sep 1, 2019;46(5):617-630. [ CrossRef ]
Grumme V, Gordon S. Social media use by transplant recipients for support and healing. Comput Inform Nurs. Dec 2016;34(12):570-577. [ CrossRef ] [ Medline ]
Haug NA, Bielenberg J, Linder SH, Lembke A. Assessment of provider attitudes toward #naloxone on Twitter. Subst Abus. 2016;37(1):35-41. [ CrossRef ] [ Medline ]
Oren E, Martinez L, Hensley RE, Jain P, Ahmed T, Purnajo I, et al. Twitter communication during an outbreak of hepatitis A in San Diego, 2016–2018. Am J Public Health. Oct 2020;110(S3):S348-S355. [ CrossRef ]
Parker C, Zomer E, Liew D, Ayton D. Characterising experiences with acute myeloid leukaemia using an Instagram content analysis. PLoS One. 2021;16(5):e0250641. [ FREE Full text ] [ CrossRef ] [ Medline ]
Kurko T, Linden K, Kolstela M, Pietilä K, Airaksinen M. Is nicotine replacement therapy overvalued in smoking cessation? Analysis of smokers' and quitters' communication in social media. Health Expect. Dec 2015;18(6):2962-2977. [ FREE Full text ] [ CrossRef ] [ Medline ]
Reuter K, Lee D. Perspectives toward seeking treatment among patients with psoriasis: protocol for a Twitter content analysis. JMIR Res Protoc. Feb 18, 2021;10(2):e13731. [ FREE Full text ] [ CrossRef ] [ Medline ]
Mollema L, Harmsen IA, Broekhuizen E, Clijnk R, De Melker H, Paulussen T, et al. Disease detection or public opinion reflection? Content analysis of tweets, other social media, and online newspapers during the measles outbreak in The Netherlands in 2013. J Med Internet Res. May 26, 2015;17(5):e128. [ FREE Full text ] [ CrossRef ] [ Medline ]
O'Hagan ET, Traeger AC, Bunzli S, Leake HB, Schabrun SM, Wand BM, et al. What do people post on social media relative to low back pain? A content analysis of Australian data. Musculoskelet Sci Pract. Aug 2021;54:102402. [ CrossRef ] [ Medline ]
Zhou F, Zhang W, Cai H, Cao Y. Portrayals of 2v, 4v and 9vHPV vaccines on Chinese social media: a content analysis of hot posts on Sina Weibo. Hum Vaccin Immunother. Nov 02, 2021;17(11):4433-4441. [ FREE Full text ] [ CrossRef ] [ Medline ]
Golder S, Bach M, O'Connor K, Gross R, Hennessy S, Gonzalez Hernandez G. Public perspectives on anti-diabetic drugs: exploratory analysis of Twitter posts. JMIR Diabetes. Jan 26, 2021;6(1):e24681. [ FREE Full text ] [ CrossRef ] [ Medline ]
Mercier R, Senter K, Webster R, Henderson RA. Instagram users? experiences of miscarriage. Obstet Gynecol 2020 Jan;? Jan 2020;135(1):166-173. [ CrossRef ]
Alghamdi A, Abumelha K, Allarakia J, Al-Shehri A. Conversations and misconceptions about chemotherapy in Arabic tweets: content analysis. J Med Internet Res. Jul 29, 2020;22(7):e13979. [ FREE Full text ] [ CrossRef ] [ Medline ]
Golder S, O'Connor K, Hennessy S, Gross R, Gonzalez-Hernandez G. Assessment of beliefs and attitudes about statins posted on Twitter: a qualitative study. JAMA Netw Open. Jun 01, 2020;3(6):e208953. [ FREE Full text ] [ CrossRef ] [ Medline ]
Stekelenburg N, Horsham C, O'Hara M, Janda M. Using social media to determine the affective and cognitive components of tweets about sunburn. Dermatology. Feb 27, 2020;236(2):75-80. [ FREE Full text ] [ CrossRef ] [ Medline ]
Meeking K. Patients' experiences of radiotherapy: Insights from Twitter. Radiography (Lond). Aug 2020;26(3):e146-e151. [ CrossRef ] [ Medline ]
Shah S, Bradbury-Jones C, Taylor J. Using Facebook to tell stories of premature ageing and sexual and reproductive healthcare across the life course for women with cerebral palsy in the UK and USA. BMJ Open. Feb 17, 2020;10(2):e032172. [ FREE Full text ] [ CrossRef ] [ Medline ]
Pretorius K, Choi E, Kang S, Mackert M. Sudden infant death syndrome on Facebook: qualitative descriptive content analysis to guide prevention efforts. J Med Internet Res. Jul 30, 2020;22(7):e18474. [ FREE Full text ] [ CrossRef ] [ Medline ]
Karmegam D, Mapillairaju B. What people share about the COVID-19 outbreak on Twitter? An exploratory analysis. BMJ Health Care Inform. Nov 2020;27(3):e100133. [ FREE Full text ] [ CrossRef ] [ Medline ]
Hairston TK, Links AR, Harris V, Tunkel DE, Walsh J, Beach MC, et al. Evaluation of parental perspectives and concerns about pediatric tonsillectomy in social media. JAMA Otolaryngol Head Neck Surg. Jan 01, 2019;145(1):45-52. [ FREE Full text ] [ CrossRef ] [ Medline ]
Årsand E, Bradway M, Gabarron E. What are diabetes patients versus health care personnel discussing on social media? J Diabetes Sci Technol. Mar 2019;13(2):198-205. [ FREE Full text ] [ CrossRef ] [ Medline ]
Jiang X, Jiang W, Cai J, Su Q, Zhou Z, He L, et al. Characterizing media content and effects of organ donation on a social media platform: content analysis. J Med Internet Res. Mar 12, 2019;21(3):e13058. [ FREE Full text ] [ CrossRef ] [ Medline ]
Oser TK, Minnehan KA, Wong G, Parascando J, McGinley E, Radico J, et al. Using social media to broaden understanding of the barriers and facilitators to exercise in adults with type 1 diabetes. J Diabetes Sci Technol. May 2019;13(3):457-465. [ FREE Full text ] [ CrossRef ] [ Medline ]
Sutton J, Vos SC, Olson MK, Woods C, Cohen E, Gibson CB, et al. Lung cancer messages on Twitter: content analysis and evaluation. J Am Coll Radiol. Jan 2018;15(1 Pt B):210-217. [ CrossRef ] [ Medline ]
Thomas J, Prabhu AV, Heron DE, Beriwal S. Twitter and brachytherapy: An analysis of "tweets" over six years by patients and health care professionals. Brachytherapy. 2018;17(6):1004-1010. [ CrossRef ] [ Medline ]
Kelly-Hedrick M, Grunberg PH, Brochu F, Zelkowitz P. "It's totally okay to be sad, but never lose hope": content analysis of infertility-related videos on YouTube in relation to viewer preferences. J Med Internet Res. May 23, 2018;20(5):e10199. [ FREE Full text ] [ CrossRef ] [ Medline ]
Gage-Bouchard EA, LaValley S, Mollica M, Beaupin LK. Cancer communication on social media: examining how cancer caregivers use Facebook for cancer-related communication. Cancer Nurs. 2017;40(4):332-338. [ CrossRef ] [ Medline ]
Rael CT, Pierre D, Frye V, Kessler D, Duffy L, Malos N, et al. Evaluating blood donor experiences and barriers/facilitators to blood donation in the United States using YouTube video content. Transfusion. Sep 2021;61(9):2650-2657. [ FREE Full text ] [ CrossRef ] [ Medline ]
Fisher S, Jehassi A, Ziv M. Hidradenitis suppurativa on Facebook: thematic and content analyses of patient support group. Arch Dermatol Res. Aug 2020;312(6):421-426. [ CrossRef ] [ Medline ]
Abdoli S, Hessler D, Vora A, Smither B, Stuckey H. Descriptions of diabetes burnout from individuals with Type 1 diabetes: an analysis of YouTube videos. Diabet Med. Aug 2020;37(8):1344-1351. [ CrossRef ] [ Medline ]
Myneni S, Lewis B, Singh T, Paiva K, Kim SM, Cebula AV, et al. Diabetes self-management in the age of social media: large-scale analysis of peer interactions using semiautomated methods. JMIR Med Inform. Jun 30, 2020;8(6):e18441. [ FREE Full text ] [ CrossRef ] [ Medline ]
Charlie AM, Gao Y, Heller SL. What do patients want to know? questions and concerns regarding mammography expressed through social media. J Am Coll Radiol. Oct 2018;15(10):1478-1486. [ CrossRef ] [ Medline ]
Watts G, Christou P, Antonarakis G. Experiences of individuals concerning combined orthodontic and orthognathic surgical treatment: a qualitative Twitter analysis. Med Princ Pract. 2018;27(3):227-235. [ FREE Full text ] [ CrossRef ] [ Medline ]
Pai RR, Alathur S. Assessing mobile health applications with Twitter analytics. Int J Med Inform. May 2018;113:72-84. [ CrossRef ] [ Medline ]
Cheng TY, Liu L, Woo BK. Analyzing Twitter as a platform for Alzheimer-related dementia awareness: thematic analyses of tweets. JMIR Aging. Dec 10, 2018;1(2):e11542. [ FREE Full text ] [ CrossRef ] [ Medline ]
Bridges N, Howell G, Schmied V. Exploring breastfeeding support on social media. Int Breastfeed J. 2018;13:22. [ FREE Full text ] [ CrossRef ] [ Medline ]
Anderson JG, Hundt E, Dean M, Keim-Malpass J, Lopez RP. "The Church of Online Support": examining the use of blogs among family caregivers of persons with dementia. J Fam Nurs. Feb 2017;23(1):34-54. [ CrossRef ] [ Medline ]
Kearney MD, Selvan P, Hauer MK, Leader AE, Massey PM. Characterizing HPV vaccine sentiments and content on Instagram. Health Educ Behav. Dec 2019;46(2_suppl):37-48. [ CrossRef ] [ Medline ]
Davies SH, Langer MD, Klein A, Gonzalez-Hernandez G, Dowshen N. Adolescent perceptions of menstruation on Twitter: opportunities for advocacy and education. J Adolesc Health. Jul 2022;71(1):94-104. [ CrossRef ] [ Medline ]
Van Diepen C, Rosales Valdes D. A content analysis on the perceptions of LGBTQ+ (centred) health care on Twitter. Health Expect. Dec 2022;25(6):3238-3245. [ FREE Full text ] [ CrossRef ] [ Medline ]
Pleasure ZH, Frohwirth LF, Li N, Polis CB. A content analysis of Reddit users' posts about challenges to contraceptive care-seeking during COVID-19-related restrictions in the United States. J Health Commun. Oct 03, 2022;27(10):746-754. [ CrossRef ] [ Medline ]
Du Y, Dennis B, Ramirez V, Li C, Wang J, Meireles CL. Experiences and disease self-management in individuals living with chronic kidney disease: qualitative analysis of the National Kidney Foundation's online community. BMC Nephrol. Mar 04, 2022;23(1):88. [ FREE Full text ] [ CrossRef ] [ Medline ]
Sadek Attalla S, Ow NL, McNarry M, De Simoni A. Experiences of exercise in patients with asthma: a qualitative analysis of discussions in a UK asthma online community. BJGP Open. Apr 29, 2022;6(3):BJGPO.2021.0162. [ CrossRef ]
Bartmess M, Talbot C, O'Dwyer ST, Lopez RP, Rose KM, Anderson JG. Using Twitter to understand perspectives and experiences of dementia and caregiving at the beginning of the COVID-19 pandemic. Dementia (London). Jul 2022;21(5):1734-1752. [ FREE Full text ] [ CrossRef ] [ Medline ]
Brewer G, Centifanti L, Caicedo JC, Huxley G, Peddie C, Stratton K, et al. Experiences of mental distress during COVID-19: thematic analysis of discussion forum posts for anxiety, depression, and obsessive-compulsive disorder. Illn Crises Loss. Oct 2022;30(4):795-811. [ FREE Full text ] [ CrossRef ] [ Medline ]
Castillo LIR, Hadjistavropoulos T, Beahm J. Social media discussions about long-term care and the COVID-19 pandemic. J Aging Stud. Dec 2022;63:101076. [ FREE Full text ] [ CrossRef ] [ Medline ]
Colaceci S, Anderson G, Ricciuto V, Montinaro D, Alazraki G, Mena-Tudela D. Experiences of birth during COVID-19 pandemic in Italy and Spain: A thematic analysis. Int J Environ Res Public Health. Jun 18, 2022;19(12):7488. [ FREE Full text ] [ CrossRef ] [ Medline ]
Tripathi SD, Parker PD, Prabhu AV, Thomas K, Rodriguez A. An examination of patients and caregivers on Reddit Navigating Brain Cancer: content analysis of the brain tumor Subreddit. JMIR Cancer. Jun 22, 2022;8(2):e35324. [ FREE Full text ] [ CrossRef ] [ Medline ]
Jina-Pettersen N. Fear, neglect, coercion, and dehumanization: is inpatient psychiatric trauma contributing to a public health crisis? J Patient Exp. 2022;9:23743735221079138. [ FREE Full text ] [ CrossRef ] [ Medline ]
Rossi NA, Devarajan K, Chokshi SN, Ochoa VJ, Benavidez M, Malaya LT, et al. Social media depictions of cochlear implants: An Instagram and TikTok analysis. Otol Neurotol. 2023;44(1):e13-e21. [ CrossRef ]
Singh GK, Rego J, Chambers S, Fox J. Health professionals' perspectives of the role of palliative care during COVID-19: content analysis of articles and blogs posted on Twitter. Am J Hosp Palliat Care. Apr 2022;39(4):487-493. [ FREE Full text ] [ CrossRef ] [ Medline ]
Koly KN, Tasnim Z, Ahmed S, Saba J, Mahmood R, Farin FT, et al. Mental healthcare-seeking behavior of women in Bangladesh: content analysis of a social media platform. BMC Psychiatry. Dec 19, 2022;22(1):797. [ FREE Full text ] [ CrossRef ] [ Medline ]
Belcher R, Sim D, Meykler M, Owens-Walton J, Hassan N, Rubin R, et al. A qualitative analysis of female Reddit users' experiences with low libido: how do women perceive their changes in sexual desire? J Sex Med. Feb 27, 2023;20(3):287-297. [ CrossRef ] [ Medline ]
Culp F, Wu Y, Wu D, Ren Y, Raynor P, Hung P, et al. Understanding alcohol use discourse and stigma patterns in perinatal care on Twitter. Healthcare (Basel). Nov 26, 2022;10(12):2375. [ FREE Full text ] [ CrossRef ] [ Medline ]
Ferrey A, Ashworth G, Cabling M, Rundblad G, Ismail K. A thematic analysis of YouTube comments on a television documentary titled 'Diabulimia: The world's most dangerous eating disorder'. Diabet Med. May 2023;40(5):e15025. [ CrossRef ] [ Medline ]
Watt S, Salway T, Gómez-Ramírez O, Ablona A, Barton L, Chang H, et al. Rumination, risk, and response: a qualitative analysis of sexual health anxiety among online sexual health chat service users. Sex. Health. May 23, 2022;19(3):182-191. [ CrossRef ]
Naganathan G, Bilgen I, Cleland J, Reel E, Cil T. #COVID19 and #Breastcancer: a qualitative analysis of tweets. Curr Oncol. Nov 08, 2022;29(11):8483-8500. [ FREE Full text ] [ CrossRef ] [ Medline ]
Potgieter I, Hoare DJ, Fackrell K. Hyperacusis in children: a thematic analysis of discussions in online forums. Am J Audiol. Mar 03, 2022;31(1):166-174. [ CrossRef ]
Manning Hutson M, Hosking SM, Mantalvanos S, Berk M, Pasco J, Dunning T. What injured workers with complex claims look for in online communities: netnographic analysis. J Med Internet Res. Apr 07, 2022;24(4):e17180. [ FREE Full text ] [ CrossRef ] [ Medline ]
Lawless MT, Hunter SC, Pinero de Plaza MA, Archibald MM, Kitson AL. "You Are By No Means Alone": a netnographic study of self-care support in an online community for older adults. Qual Health Res. Nov 2022;32(13):1935-1951. [ CrossRef ] [ Medline ]
Keim-Malpass J, Mitchell EM, Sun E, Kennedy C. Using Twitter to understand public perceptions regarding the #HPV vaccine: opportunities for public health nurses to engage in social marketing. Public Health Nurs. Jul 2017;34(4):316-323. [ CrossRef ] [ Medline ]
Yamada R, Rasmussen KM, Felice JP. "What is 'enough,' and how do I make it?": a qualitative examination of questions mothers ask on social media about pumping and providing an adequate amount of milk for their infants. Breastfeed Med. 2019;14(1):17-21. [ FREE Full text ] [ CrossRef ] [ Medline ]
Osadchiy V, Mills JN, Eleswarapu SV. Understanding patient anxieties in the social media era: qualitative analysis and natural language processing of an online male infertility community. J Med Internet Res. Mar 10, 2020;22(3):e16728. [ FREE Full text ] [ CrossRef ] [ Medline ]
Thomas TH, Nauth-Shelley K, Thompson MA, Attai DJ, Katz MS, Graham D, et al. The needs of women treated for ovarian cancer: results from a #gyncsm Twitter chat. J Patient Cent Res Rev. 2018;5(2):149-157. [ FREE Full text ] [ CrossRef ] [ Medline ]
Mehta N, Zhu L, Lam K, Stall NM, Savage R, Read SH, et al. Health forums and Twitter for dementia research: opportunities and considerations. J Am Geriatr Soc. Dec 2020;68(12):2881-2889. [ CrossRef ] [ Medline ]
Gupta R, Ariefdjohan M. Mental illness on Instagram: a mixed method study to characterize public content, sentiments, and trends of antidepressant use. J Ment Health. Aug 2021;30(4):518-525. [ CrossRef ] [ Medline ]
He L, He C, Reynolds T, Bai Q, Huang Y, Li C, et al. Why do people oppose mask wearing? A comprehensive analysis of U.S. tweets during the COVID-19 pandemic. J Am Med Inform Assoc. Jul 14, 2021;28(7):1564-1573. [ FREE Full text ] [ CrossRef ] [ Medline ]
Loeb S, Mihalcea R, Perez-Rosas V, Xu A, Taylor J, Byrne N, et al. Leveraging social media as a thermometer to gauge patient and caregiver concerns: COVID-19 and prostate cancer. Eur Urol Open Sci. Mar 2021;25:1-4. [ FREE Full text ] [ CrossRef ] [ Medline ]
Graf I, Gerwing H, Hoefer K, Ehlebracht D, Christ H, Braumann B. Social media and orthodontics: A mixed-methods analysis of orthodontic-related posts on Twitter and Instagram. Am J Orthod Dentofacial Orthop. Aug 2020;158(2):221-228. [ CrossRef ] [ Medline ]
Boon-Itt S, Skunkan Y. Public perception of the COVID-19 pandemic on Twitter: sentiment analysis and topic modeling study. JMIR Public Health Surveill. Nov 11, 2020;6(4):e21978. [ FREE Full text ] [ CrossRef ] [ Medline ]
Wang J, Zhou Y, Zhang W, Evans R, Zhu C. Concerns expressed by Chinese social media users during the COVID-19 pandemic: content analysis of Sina Weibo microblogging data. J Med Internet Res. Nov 26, 2020;22(11):e22152. [ FREE Full text ] [ CrossRef ] [ Medline ]
Wahbeh A, Nasralah T, Al-Ramahi M, El-Gayar O. Mining physicians' opinions on social media to obtain insights into COVID-19: mixed methods analysis. JMIR Public Health Surveill. Jun 18, 2020;6(2):e19276. [ FREE Full text ] [ CrossRef ] [ Medline ]
Çınar S, Boztepe H, Prof. The use of social media among parents of infants with cleft lip and/or palate. J Pediatr Nurs. 2020;54:e91-e96. [ CrossRef ] [ Medline ]
Jiang T, Osadchiy V, Mills JN, Eleswarapu SV. Is It all in my head? self-reported psychogenic erectile dysfunction and depression are common among young men seeking advice on social media. Urology. Aug 2020;142:133-140. [ CrossRef ] [ Medline ]
Dzubur E, Khalil C, Almario CV, Noah B, Minhas D, Ishimori M, et al. Patient concerns and perceptions regarding biologic therapies in ankylosing spondylitis: insights from a large-scale survey of social media platforms. Arthritis Care Res (Hoboken). Feb 2019;71(2):323-330. [ FREE Full text ] [ CrossRef ] [ Medline ]
Gonzalez G, Vaculik K, Khalil C, Zektser Y, Arnold C, Almario CV, et al. Women's experience with stress urinary incontinence: insights from social media analytics. Journal of Urology. May 2020;203(5):962-968. [ CrossRef ]
Jha SR, McDonagh J, Prichard R, Newton PJ, Hickman LD, Fung E, et al. #Frailty: A snapshot Twitter report on frailty knowledge translation. Australas J Ageing. Dec 2018;37(4):309-312. [ CrossRef ] [ Medline ]
Litchman ML, Snider C, Edelman LS, Wawrzynski SE, Gee PM. Diabetes online community user perceptions of successful aging with diabetes: analysis of a #DSMA Tweet chat. JMIR Aging. Jun 22, 2018;1(1):e10176. [ FREE Full text ] [ CrossRef ] [ Medline ]
Jones J, Pradhan M, Hosseini M, Kulanthaivel A, Hosseini M. Novel approach to cluster patient-generated data into actionable topics: case study of a web-based breast cancer forum. JMIR Med Inform. Nov 29, 2018;6(4):e45. [ FREE Full text ] [ CrossRef ] [ Medline ]
Gonzalez G, Vaculik K, Khalil C, Zektser Y, Arnold C, Almario CV, et al. Using large-scale social media analytics to understand patient perspectives about urinary tract infections: thematic analysis. J Med Internet Res. Jan 25, 2022;24(1):e26781. [ FREE Full text ] [ CrossRef ] [ Medline ]
Sormunen T, Westerbotn M, Aanesen A, Fossum B, Karlgren K. Social media in the infertile community-using a text analysis tool to identify the topics of discussion on the multitude of infertility blogs. Womens Health (Lond). 2021;17:17455065211063280. [ FREE Full text ] [ CrossRef ] [ Medline ]
Berkovic D, Ackerman IN, Briggs AM, Ayton D. Tweets by people with arthritis during the COVID-19 pandemic: content and sentiment analysis. J Med Internet Res. Dec 03, 2020;22(12):e24550. [ FREE Full text ] [ CrossRef ] [ Medline ]
Della Rosa S, Sen F. Health topics on Facebook Groups: content analysis of posts in multiple sclerosis communities. Interact J Med Res. Feb 11, 2019;8(1):e10146. [ FREE Full text ] [ CrossRef ] [ Medline ]
Awofeso N, Imam SA, Ahmed A. Content analysis of media coverage of childhood obesity topics in UAE newspapers and popular social media platforms, 2014-2017. Int J Health Policy Manag. Feb 01, 2019;8(2):81-89. [ FREE Full text ] [ CrossRef ] [ Medline ]
Smith DJ, Mac VV, Hertzberg VS. Using Twitter for nursing research: a tweet analysis on heat illness and health. J Nurs Scholarsh. May 2021;53(3):343-350. [ CrossRef ] [ Medline ]
Green BM, Van Horn KT, Gupte K, Evans M, Hayes S, Bhowmick A. Assessment of adaptive engagement and support model for people with chronic health conditions in online health communities: combined content analysis. J Med Internet Res. Jul 07, 2020;22(7):e17338. [ FREE Full text ] [ CrossRef ] [ Medline ]
Osakwe ZT, Cortés YI. Impact of COVID-19: a text mining analysis of Twitter data in Spanish language. Hisp Health Care Int. Dec 2021;19(4):239-245. [ CrossRef ] [ Medline ]
Sümeyye Yorulmaz D, Karadeniz H. Vaccination refusal debate on social media in Turkey: a content analysis of the comments on Instagram blogs. Iran J Public Health. Mar 2022;51(3):615-623. [ FREE Full text ] [ CrossRef ] [ Medline ]
Choi E, Becker H, Kim S. A blog text analysis to explore psychosocial support in adolescents and young adults with cancer. Cancer Nurs. Dec 11, 2022;46(2):143-151. [ CrossRef ]
Jun J, Wickersham K, Zain A, Ford R, Zhang N, Ciccarelli C, et al. Cancer and COVID-19 vaccines on Twitter: the voice and vaccine attitude of cancer community. J Health Commun. Jan 02, 2023;28(1):1-14. [ CrossRef ] [ Medline ]
Yashpal S, Raghunath A, Gencerliler N, Burns LE. Exploring public perceptions of dental care affordability in the United States: mixed method analysis via Twitter. JMIR Form Res. Jul 01, 2022;6(7):e36315. [ FREE Full text ] [ CrossRef ] [ Medline ]
Damier P, Henderson EJ, Romero-Imbroda J, Galimam L, Kronfeld N, Warnecke T. Impact of off-time on quality of life in Parkinson's patients and their caregivers: insights from social media. Parkinsons Dis. 2022;2022:1800567. [ FREE Full text ] [ CrossRef ] [ Medline ]
Miller WR, Malloy C, Mravec M, Sposato MF, Groves D. Nursing in the spotlight: Talk about nurses and the nursing profession on Twitter during the early COVID-19 pandemic. Nurs Outlook. 2022;70(4):580-589. [ FREE Full text ] [ CrossRef ] [ Medline ]
Hriberšek M, Eibensteiner F, Kapral L, Teufel A, Nawaz FA, Cenanovic M, et al. "Loved ones are not 'visitors' in a patient's life"-The importance of including loved ones in the patient's hospital stay: An international Twitter study of #HospitalsTalkToLovedOnes in times of COVID-19. Front Public Health. 2023;11:1100280. [ FREE Full text ] [ CrossRef ] [ Medline ]
O'Sullivan L, Killeen RP, Doran P, Crowley RK. Adherence with reporting of ethical standards in COVID-19 human studies: a rapid review. BMC Med Ethics. Jun 28, 2021;22(1):80. [ FREE Full text ] [ CrossRef ] [ Medline ]
Denecke K, Bamidis P, Bond C, Gabarron E, Househ M, Lau AYS, et al. Ethical issues of social media usage in healthcare. Yearb Med Inform. Aug 13, 2015;10(1):137-147. [ FREE Full text ] [ CrossRef ] [ Medline ]
Ferretti A, Ienca M, Sheehan M, Blasimme A, Dove ES, Farsides B, et al. Ethics review of big data research: What should stay and what should be reformed? BMC Med Ethics. Apr 30, 2021;22(1):51. [ FREE Full text ] [ CrossRef ] [ Medline ]
Kohn T, Shore C. The Ethics of University Ethics Committees: risk management and the research imagination. Death Public Univ Uncertain Futur High Educ Knowl Econ. May 2017:229-249. [ CrossRef ]
Friesen P, Redman B, Caplan A. Of straws, camels, research regulation, and IRBs. Ther Innov Regul Sci. Jul 2019;53(4):526-534. [ CrossRef ] [ Medline ]
Sellers C, Samuel G, Derrick G. Reasoning "uncharted territory": notions of expertise within ethics review panels assessing research use of social media. J Empir Res Hum Res Ethics. 2020;15(1-2):28-39. [ FREE Full text ] [ CrossRef ] [ Medline ]
Kious B. The Nuremberg Code: its history and implications. Princet J Bioeth. 2001;4:7-19. [ Medline ]
World Medical Association. World Medical Association Declaration of Helsinki: ethical principles for medical research involving human subjects. JAMA. Nov 27, 2013;310(20):2191-2194. [ CrossRef ] [ Medline ]
Department of Health‚ Education‚Welfare, National Commission for the Protection of Human Subjects of BiomedicalBehavioral Research. The Belmont Report. Ethical principles and guidelines for the protection of human subjects of research. J Am Coll Dent. 2014;81(3):4-13. [ Medline ]
Wongkoblap A, Vadillo MA, Curcin V. Researching mental health disorders in the era of social media: systematic review. J Med Internet Res. Jun 29, 2017;19(6):e228. [ FREE Full text ] [ CrossRef ] [ Medline ]
Alim S. An initial exploration of ethical research practices regarding automated data extraction from online social media user profiles. First Monday. Jul 2014;19(7):105-127. [ CrossRef ] [ Medline ]
Vitak J, Proferes N, Shilton K, Ashktorab Z. Ethics regulation in social computing research: examining the role of institutional review boards. J Empir Res Hum Res Ethics. Dec 2017;12(5):372-382. [ CrossRef ] [ Medline ]
Moreno MA, Goniu N, Moreno PS, Diekema D. Ethics of social media research: common concerns and practical considerations. Cyberpsychol Behav Soc Netw. Sep 2013;16(9):708-713. [ FREE Full text ] [ CrossRef ] [ Medline ]
Metcalf J, Crawford K. Where are human subjects in Big Data research? The emerging ethics divide. Big Data & Society. Jun 01, 2016;3(1):205395171665021. [ CrossRef ]
Usha Lawrance J, Nayahi Jesudhasan JV. Privacy preserving parallel clustering based anonymization for big data using MapReduce framework. Applied Artificial Intelligence. Oct 17, 2021;35(15):1587-1620. [ CrossRef ]
Wilkinson D, Thelwall M. Researching personal information on the public web. Social Science Computer Review. Aug 17, 2010;29(4):387-401. [ CrossRef ]
International Committee of Medical Journal Editors. Uniform requirements for manuscripts submitted to biomedical journals: writing and editing for biomedical publication. Croat Med J. Dec 2003;44(6):770-783. [ FREE Full text ] [ Medline ]
Boyd D, Crawford K. Critical questions for big data. Information, Communication & Society. Jun 2012;15(5):662-679. [ CrossRef ]
Bond CS, Ahmed OH, Hind M, Thomas B, Hewitt-Taylor J. The conceptual and practical ethical dilemmas of using health discussion board posts as research data. J Med Internet Res. Jun 07, 2013;15(6):e112. [ FREE Full text ] [ CrossRef ] [ Medline ]
Markham A, Tiidenberg K, Herman A. Ethics as methods: doing ethics in the era of big data research—introduction. Social Media + Society. Jul 19, 2018;4(3):205630511878450-205630511878416. [ CrossRef ]

Abbreviations

Edited by T Leung, T de Azevedo Cardoso; submitted 02.08.23; peer-reviewed by E Zibrowski, J Scheibner; comments to author 06.10.23; revised version received 29.11.23; accepted 16.04.24; published 17.05.24.

©Yujie Zhang, Jiaqi Fu, Jie Lai, Shisi Deng, Zihan Guo, Chuhan Zhong, Jianyao Tang, Wenqiong Cao, Yanni Wu. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 17.05.2024.

This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on https://www.jmir.org/, as well as this copyright and license information must be included.

An official website of the United States government

The .gov means it’s official. Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

The site is secure. The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Publications
Account settings

Preview improvements coming to the PMC website in October 2024. Learn More or Try it out now .

Advanced Search
Journal List
J Grad Med Educ
v.7(4); 2015 Dec

Choosing a Qualitative Research Approach

Associated data.

Editor's Note: The online version of this article contains a list of further reading resources and the authors' professional information .

The Challenge

Educators often pose questions about qualitative research. For example, a program director might say: “I collect data from my residents about their learning experiences in a new longitudinal clinical rotation. If I want to know about their learning experiences, should I use qualitative methods? I have been told that there are many approaches from which to choose. Someone suggested that I use grounded theory, but how do I know this is the best approach? Are there others?”

What Is Known

Qualitative research is the systematic inquiry into social phenomena in natural settings. These phenomena can include, but are not limited to, how people experience aspects of their lives, how individuals and/or groups behave, how organizations function, and how interactions shape relationships. In qualitative research, the researcher is the main data collection instrument. The researcher examines why events occur, what happens, and what those events mean to the participants studied. 1 , 2

Qualitative research starts from a fundamentally different set of beliefs—or paradigms—than those that underpin quantitative research. Quantitative research is based on positivist beliefs that there is a singular reality that can be discovered with the appropriate experimental methods. Post-positivist researchers agree with the positivist paradigm, but believe that environmental and individual differences, such as the learning culture or the learners' capacity to learn, influence this reality, and that these differences are important. Constructivist researchers believe that there is no single reality, but that the researcher elicits participants' views of reality. 3 Qualitative research generally draws on post-positivist or constructivist beliefs.

Qualitative scholars develop their work from these beliefs—usually post-positivist or constructivist—using different approaches to conduct their research. In this Rip Out, we describe 3 different qualitative research approaches commonly used in medical education: grounded theory, ethnography, and phenomenology. Each acts as a pivotal frame that shapes the research question(s), the method(s) of data collection, and how data are analyzed. 4 , 5

Choosing a Qualitative Approach

Before engaging in any qualitative study, consider how your views about what is possible to study will affect your approach. Then select an appropriate approach within which to work. Alignment between the belief system underpinning the research approach, the research question, and the research approach itself is a prerequisite for rigorous qualitative research. To enhance the understanding of how different approaches frame qualitative research, we use this introductory challenge as an illustrative example.

The clinic rotation in a program director's training program was recently redesigned as a longitudinal clinical experience. Resident satisfaction with this rotation improved significantly following implementation of the new longitudinal experience. The program director wants to understand how the changes made in the clinic rotation translated into changes in learning experiences for the residents.

Qualitative research can support this program director's efforts. Qualitative research focuses on the events that transpire and on outcomes of those events from the perspectives of those involved. In this case, the program director can use qualitative research to understand the impact of the new clinic rotation on the learning experiences of residents. The next step is to decide which approach to use as a frame for the study.

The table lists the purpose of 3 commonly used approaches to frame qualitative research. For each frame, we provide an example of a research question that could direct the study and delineate what outcomes might be gained by using that particular approach.

Methodology Overview

An external file that holds a picture, illustration, etc.
Object name is i1949-8357-7-4-669-t01.jpg

How You Can Start TODAY

1 Examine the foundations of the existing literature: As part of the literature review, make note of what is known about the topic and which approaches have been used in prior studies. A decision should be made to determine the extent to which the new study is exploratory and the extent to which findings will advance what is already known about the topic.
2 Find a qualitatively skilled collaborator: If you are interested in doing qualitative research, you should consult with a qualitative expert. Be prepared to talk to the qualitative scholar about what you would like to study and why . Furthermore, be ready to describe the literature to date on the topic (remember, you are asking for this person's expertise regarding qualitative approaches—he or she won't necessarily have content expertise). Qualitative research must be designed and conducted with rigor (rigor will be discussed in Rip Out No. 8 of this series). Input from a qualitative expert will ensure that rigor is employed from the study's inception.
3 Consider the approach: With a literature review completed and a qualitatively skilled collaborator secured, it is time to decide which approach would be best suited to answering the research question. Questions to consider when weighing approaches might include the following:
• Will my findings contribute to the creation of a theoretical model to better understand the area of study? ( grounded theory )
• Will I need to spend an extended amount of time trying to understand the culture and process of a particular group of learners in their natural context? ( ethnography )
• Is there a particular phenomenon I want to better understand/describe? ( phenomenology )

What You Can Do LONG TERM

1 Develop your qualitative research knowledge and skills : A basic qualitative research textbook is a valuable investment to learn about qualitative research (further reading is provided as online supplemental material). A novice qualitative researcher will also benefit from participating in a massive online open course or a mini-course (often offered by professional organizations or conferences) that provides an introduction to qualitative research. Most of all, collaborating with a qualitative researcher can provide the support necessary to design, execute, and report on the study.
2 Undertake a pilot study: After learning about qualitative methodology, the next best way to gain expertise in qualitative research is to try it in a small scale pilot study with the support of a qualitative expert. Such application provides an appreciation for the thought processes that go into designing a study, analyzing the data, and reporting on the findings. Alternatively, if you have the opportunity to work on a study led by a qualitative expert, take it! The experience will provide invaluable opportunities for learning how to engage in qualitative research.

Supplementary Material

The views expressed in this article are those of the authors and do not necessarily reflect the official policy or position of the Uniformed Services University of the Health Sciences, the Department of the Navy, the Department of Defense, or the US government.

References and Resources for Further Reading

Not all data are created equal; some are structured, but most of them are unstructured. Structured and unstructured data are sourced, collected and scaled in different ways and each one resides in a different type of database.

In this article, we will take a deep dive into both types so that you can get the most out of your data.

Structured data—typically categorized as quantitative data—is highly organized and easily decipherable by machine learning algorithms . Developed by IBM® in 1974 , structured query language (SQL) is the programming language used to manage structured data. By using a relational (SQL) database , business users can quickly input, search and manipulate structured data.

Examples of structured data include dates, names, addresses, credit card numbers, among others. Their benefits are tied to ease of use and access, while liabilities revolve around data inflexibility:

Easily used by machine learning (ML) algorithms: The specific and organized architecture of structured data eases the manipulation and querying of ML data.
Easily used by business users: Structured data do not require an in-depth understanding of different types of data and how they function. With a basic understanding of the topic relative to the data, users can easily access and interpret the data.
Accessible by more tools: Since structured data predates unstructured data, there are more tools available for using and analyzing structured data.
Limited usage: Data with a predefined structure can only be used for its intended purpose, which limits its flexibility and usability.
Limited storage options: Structured data are usually stored in data storage systems with rigid schemas (for example, “ data warehouses ”). Therefore, changes in data requirements necessitate an update of all structured data, which leads to a massive expenditure of time and resources.
OLAP : Performs high-speed, multidimensional data analysis from unified, centralized data stores.
SQLite : (link resides outside ibm.com) Implements a self-contained, serverless , zero-configuration, transactional relational database engine.
MySQL : Embeds data into mass-deployed software, particularly mission-critical, heavy-load production system.
PostgreSQL : Supports SQL and JSON querying as well as high-tier programming languages (C/C+, Java, Python , among others.).
Customer relationship management (CRM): CRM software runs structured data through analytical tools to create datasets that reveal customer behavior patterns and trends.
Online booking: Hotel and ticket reservation data (for example, dates, prices, destinations, among others.) fits the “rows and columns” format indicative of the pre-defined data model.
Accounting: Accounting firms or departments use structured data to process and record financial transactions.

Unstructured data, typically categorized as qualitative data, cannot be processed and analyzed through conventional data tools and methods. Since unstructured data does not have a predefined data model, it is best managed in non-relational (NoSQL) databases . Another way to manage unstructured data is to use data lakes to preserve it in raw form.

The importance of unstructured data is rapidly increasing. Recent projections (link resides outside ibm.com) indicate that unstructured data is over 80% of all enterprise data, while 95% of businesses prioritize unstructured data management.

Examples of unstructured data include text, mobile activity, social media posts, Internet of Things (IoT) sensor data, among others. Their benefits involve advantages in format, speed and storage, while liabilities revolve around expertise and available resources:

Native format: Unstructured data, stored in its native format, remains undefined until needed. Its adaptability increases file formats in the database, which widens the data pool and enables data scientists to prepare and analyze only the data they need.
Fast accumulation rates: Since there is no need to predefine the data, it can be collected quickly and easily.
Data lake storage: Allows for massive storage and pay-as-you-use pricing, which cuts costs and eases scalability.
Requires expertise: Due to its undefined or non-formatted nature, data science expertise is required to prepare and analyze unstructured data. This is beneficial to data analysts but alienates unspecialized business users who might not fully understand specialized data topics or how to utilize their data.
Specialized tools: Specialized tools are required to manipulate unstructured data, which limits product choices for data managers.
MongoDB : Uses flexible documents to process data for cross-platform applications and services.
DynamoDB : (link resides outside ibm.com) Delivers single-digit millisecond performance at any scale through built-in security, in-memory caching and backup and restore.
Hadoop : Provides distributed processing of large data sets using simple programming models and no formatting requirements.
Azure : Enables agile cloud computing for creating and managing apps through Microsoft’s data centers.
Data mining : Enables businesses to use unstructured data to identify consumer behavior, product sentiment and purchasing patterns to better accommodate their customer base.
Predictive data analytics : Alert businesses of important activity ahead of time so they can properly plan and accordingly adjust to significant market shifts.
Chatbots : Perform text analysis to route customer questions to the appropriate answer sources.

While structured (quantitative) data gives a “birds-eye view” of customers, unstructured (qualitative) data provides a deeper understanding of customer behavior and intent. Let’s explore some of the key areas of difference and their implications:

Sources: Structured data is sourced from GPS sensors, online forms, network logs, web server logs, OLTP systems , among others; whereas unstructured data sources include email messages, word-processing documents, PDF files, and others.
Forms: Structured data consists of numbers and values, whereas unstructured data consists of sensors, text files, audio and video files, among others.
Models: Structured data has a predefined data model and is formatted to a set data structure before being placed in data storage (for example, schema-on-write), whereas unstructured data is stored in its native format and not processed until it is used (for example, schema-on-read).
Storage: Structured data is stored in tabular formats (for example, excel sheets or SQL databases) that require less storage space. It can be stored in data warehouses, which makes it highly scalable. Unstructured data, on the other hand, is stored as media files or NoSQL databases, which require more space. It can be stored in data lakes, which makes it difficult to scale.
Uses: Structured data is used in machine learning (ML) and drives its algorithms, whereas unstructured data is used in natural language processing (NLP) and text mining.

Semi-structured data (for example, JSON, CSV, XML) is the “bridge” between structured and unstructured data. It does not have a predefined data model and is more complex than structured data, yet easier to store than unstructured data.

Semi-structured data uses “metadata” (for example, tags and semantic markers) to identify specific data characteristics and scale data into records and preset fields. Metadata ultimately enables semi-structured data to be better cataloged, searched and analyzed than unstructured data.

Example of metadata usage: An online article displays a headline, a snippet, a featured image, image alt-text, slug, among others, which helps differentiate one piece of web content from similar pieces.
Example of semi-structured data vs. structured data: A tab-delimited file containing customer data versus a database containing CRM tables.
Example of semi-structured data vs. unstructured data: A tab-delimited file versus a list of comments from a customer’s Instagram.

Recent developments in artificial intelligence (AI) and machine learning (ML) are driving the future wave of data, which is enhancing business intelligence and advancing industrial innovation. In particular, the data formats and models that are covered in this article are helping business users to do the following:

Analyze digital communications for compliance: Pattern recognition and email threading analysis software that can search email and chat data for potential noncompliance.
Track high-volume customer conversations in social media: Text analytics and sentiment analysis that enables monitoring of marketing campaign results and identifying online threats.
Gain new marketing intelligence: ML analytics tools that can quickly cover massive amounts of data to help businesses analyze customer behavior.

Furthermore, smart and efficient usage of data formats and models can help you with the following:

Understand customer needs at a deeper level to better serve them
Create more focused and targeted marketing campaigns
Track current metrics and create new ones
Create better product opportunities and offerings
Reduce operational costs

Whether you are a seasoned data expert or a novice business owner, being able to handle all forms of data is conducive to your success. By using structured, semi-structured and unstructured data options, you can perform optimal data management that will ultimately benefit your mission.

Get the latest tech insights and expert thought leadership in your inbox.

To better understand data storage options for whatever kind of data best serves you, check out IBM Cloud Databases

Get our newsletters and topic updates that deliver the latest thought leadership and insights on emerging trends.

IMAGES

100+ Qualitative Research Topics To Write About In 2023
Top 60 Examples of Qualitative Research Topics in 2021
12 Inspiring Qualitative Research Topics For Study
5 Qualitative Research Methods Every UX Researcher Should Know [+ Examples]
12 Inspiring Qualitative Research Topics For Study
100 Qualitative Research Titles For High School Students

VIDEO

Choosing the Best Research Topic
What is research topic? Criteria for selecting topic, components and examples #health #research
Research Design & Approaches to Inquiry by Prof. Rajagopal
What is qualitative research?
BSN || Research || Types of qualitative research design #research #research_design #qualitative
Getting Started: Online Qualitative Research Design Basics

COMMENTS

500+ Qualitative Research Titles and Topics
Qualitative Research Topics. Qualitative Research Topics are as follows: Understanding the lived experiences of first-generation college students. Exploring the impact of social media on self-esteem among adolescents. Investigating the effects of mindfulness meditation on stress reduction. Analyzing the perceptions of employees regarding ...
Top 60 Examples of Qualitative Research Topics
Some of the major fields where qualitative research is performed include: Anthropology. Political science. Psychology. Business management. History. Social science. The main goal of qualitative research is to help you understand the topic of your assignment by identifying the most important aspects of your topic and gathering enough information ...
What Is Qualitative Research?
Qualitative research involves collecting and analyzing non-numerical data (e.g., text, video, or audio) to understand concepts, opinions, or experiences. It can be used to gather in-depth insights into a problem or generate new ideas for research. Qualitative research is the opposite of quantitative research, which involves collecting and ...
131 Qualitative Research Topics For Academic Thesis Writing
Here are research topics for qualitative research in project management. How effective communication strategies can impact the outcome of a project. How different leadership styles affect team productivity during a project. The role of conflict management in ensuring successful project outcomes. Gender differences in the perception and ...
How to use and assess qualitative research methods
Qualitative research is defined as "the study of the nature of phenomena", including "their quality, different manifestations, ... informed by the qualitative study on which topics dissatisfaction had been expressed. Amongst other things, the questionnaire design would make it possible to widen the reach of the research to more ...
Qualitative Study
Qualitative research is a type of research that explores and provides deeper insights into real-world problems.[1] Instead of collecting numerical data points or intervening or introducing treatments just like in quantitative research, qualitative research helps generate hypothenar to further investigate and understand quantitative data. Qualitative research gathers participants' experiences ...
Planning Qualitative Research: Design and Decision Making for New
Qualitative research draws from interpretivist and constructivist paradigms, seeking to deeply understand a research subject rather than predict outcomes, as in the positivist paradigm ... Several research topics and questions indicate a case study as an appropriate approach. The key criterion is the bounded system, so any research situation ...
Qualitative Research: Getting Started
Qualitative research methodology is not a single method, but instead offers a variety of different choices to researchers, according to specific parameters of topic, research question, participants, and settings. The method is the way you carry out your research within the paradigm of quantitative or qualitative research.
The Oxford Handbook of Qualitative Research
The Oxford Handbook of Qualitative Research, second edition, presents a comprehensive retrospective and prospective review of the field of qualitative research. ... for students, professors, and researchers. This newly revised and expanded edition features up-to-date examples and topics, including seven new chapters on duoethnography, team ...
100+ Qualitative Research Topics To Write About In 2023
Qualitative research is focused on data obtained through a researcher's first-hand observations, natural setting recording, artifacts, case studies, documents, questionnaires, and interviews. The findings in qualitative research are usually non-numerical. Also, it is common in humanities and social sciences.
Qualitative Research: Sage Journals
Qualitative Research is a peer-reviewed international journal that has been leading debates about qualitative methods for over 20 years. The journal provides a forum for the discussion and development of qualitative methods across disciplines, publishing high quality articles that contribute to the ways in which we think about and practice the craft of qualitative research.
What is Qualitative Research? Definition, Types, Examples ...
Qualitative research is defined as an exploratory method that aims to understand complex phenomena, often within their natural settings, by examining subjective experiences, beliefs, attitudes, and behaviors. Unlike quantitative research, which focuses on numerical measurements and statistical analysis, qualitative research employs a range of ...
What is Qualitative Research?
Qualitative research is the methodology researchers use to gain deep contextual understandings of users via non-numerical means and direct observations. Researchers focus on smaller user samples—e.g., in interviews—to reveal data such as user attitudes, behaviors and hidden factors: insights which guide better designs.
Top 300+ Winning Qualitative Research Topics
Qualitative Research Topics: Psych, Education, Health, Medicine & More. Wandering around the internet looking for qualitative research topics can be exhausting. We are writing this article to make it a one-stop solution for you. There is enough inspiration to come up with the most suitable topic for you, no matter your academic area.
189+ Most Exciting Qualitative Research Topics For Students
Qualitative Research Topics In Psychology and Mental Health. Understanding the stigma associated with seeking therapy. Experiences of individuals living with anxiety disorders. Perceptions of body image among adolescents. Coping strategies of survivors of traumatic events.
Sensitive, Challenging, and Difficult Topics: Experiences and Practical
It is not uncommon for quantitative approaches to be unable to detect the nuances of the experiences we seek to understand. Quantitative approaches can sometimes, therefore, be rendered untenable, and so qualitative research approaches have to be drawn upon as a replacement for - or as supplementary to - quantitative approaches (Busetto et al., 2020).
Qualitative vs. Quantitative Research
When collecting and analyzing data, quantitative research deals with numbers and statistics, while qualitative research deals with words and meanings. Both are important for gaining different kinds of knowledge. Quantitative research. Quantitative research is expressed in numbers and graphs. It is used to test or confirm theories and assumptions.
202 Qualitative Research Topics to Check Out
Here are some qualitative research topics lists in political science. How COVID-19 impacts low-income neighborhoods. The need for the cancellation of student loans and not the suspension of student loans. Racism as a dividing factor in America. Segregation and racist laws.
Qualitative Methods in Health Care Research
Significance of Qualitative Research. The qualitative method of inquiry examines the 'how' and 'why' of decision making, rather than the 'when,' 'what,' and 'where.'[] Unlike quantitative methods, the objective of qualitative inquiry is to explore, narrate, and explain the phenomena and make sense of the complex reality.Health interventions, explanatory health models, and medical-social ...
Qualitative Research
Qualitative Research. General ethnography is a type of qualitative research that identifies and describes, through long-term participant observation and interviewing, the activity of a whole small-scale social unit - the routine practices of everyday life and the meaning perspectives according to which those practices are conducted and interpreted by those who enact them.
Qualitative Research The Essential Guide to Theory and Practice
Qualitative Research: The Essential Guide to Theory and Practice provides a one-stop resource for all those approaching qualitative research for the first time, as well as those revisiting core concepts and issues. It presents a comprehensive overview of this rapidly developing field of inquiry, cleverly combined with practical, hands-on advice on how to conduct a successful qualitative study ...
What are the strengths and limitations to utilising creative methods in
A qualitative systematic review "brings together research on a topic, systematically searching for research evidence from primary qualitative studies and drawing the findings together" . This review can then advise researchers of the best practices when designing PPI.
(PDF) Qualitative research
Qualitative research is a widely used term for resear ch that does not subject research ﬁndings to quantiﬁcation or quantitative analysis. Qualitative research examines the attitudes, feelings and
What is Qualitative in Qualitative Research
Qualitative research is about oscillation between theory and evidence, analysis and generating material, between first-and second-order constructs (Schütz 1962:59), between getting in contact with something, finding sources, becoming deeply familiar with a topic, and then distilling and communicating some of its essential features. The main ...
Responsible coordination of municipal health and care services for
Background Care coordination is crucial to ensure the health of individuals with serious mental illness. The aim of this study was to describe and analyze an inclusive innovation process for coordinating municipal health and care services for individuals with serious mental illness. Methods We conducted café dialogues with professionals and service users with serious mental illness. The café ...
Reporting of Ethical Considerations in Qualitative Research Utilizing
Background: The internet community has become a significant source for researchers to conduct qualitative studies analyzing users' views, attitudes, and experiences about public health. However, few studies have assessed the ethical issues in qualitative research using social media data. Objective: This study aims to review the reportage of ethical considerations in qualitative research ...
Choosing a Qualitative Research Approach
Choosing a Qualitative Approach. Before engaging in any qualitative study, consider how your views about what is possible to study will affect your approach. Then select an appropriate approach within which to work. Alignment between the belief system underpinning the research approach, the research question, and the research approach itself is ...
Structured vs. unstructured data: What's the difference?
Unstructured data, typically categorized as qualitative data, cannot be processed and analyzed through conventional data tools and methods. Since unstructured data does not have a predefined data model, it is best managed in non-relational (NoSQL) databases. Another way to manage unstructured data is to use data lakes to preserve it in raw form.

500+ Qualitative Research Titles and Topics

Qualitative Research Titles

Health Science

Business and Management

Environmental Studies

Anthropology

Communication Studies

Information Technology

Tourism and Hospitality

Qualitative Research Topics

About the author

Muhammad Hassan

You may also like

200+ Funny Research Topics

500+ Sports Research Topics

300+ American History Research Paper Topics

500+ Cyber Security Research Topics

500+ Environmental Research Topics

500+ Economics Research Topics

Top 60 Examples of Qualitative Research Topics

Tips on how to choose good qualitative research topics

Align your research topic with your field of interest

Make sure you have all the right research on the topic

Follow your university guidelines!

List of qualitative research topics examples

Readers also enjoyed

WHY WAIT? PLACE AN ORDER RIGHT NOW!

131 Interesting Qualitative Research Topics For High Scoring Thesis

What Is Qualitative Research?

Best Examples Of Qualitative Research Topics

Qualitative Nursing Research Topics

Qualitative Research Topics In Education

Qualitative Research Topics In Public Health

Qualitative Research Topics In Project Management

Qualitative Research Topics In Political Science

Topics For Ethnography Qualitative Research

Get Quality Writing Help Online

Leave a Reply Cancel reply

The Oxford Handbook of Qualitative Research (2nd edn)

Signed in as

Personal account

Institutional access

IP based access

Sign in through your institution

Society Members

Sign in through society site

Sign in using a personal account

Viewing your signed in accounts

Signed in but can't access content

This Feature Is Available To Subscribers Only

Qualitative Research Topics & Ideas For Students

Exceptional Qualitative Research Topics In Social Science

We Are Here for You

Leave a Reply Cancel reply

Qualitative Research

Qualitative Research Focuses on the “Why”

Qualitative Research Methods You Can Use to Get Behind Your Users

Qualitative Research – How to Get Reliable Results

Learn More about Qualitative Research

Answer a Short Quiz to Earn a Gift

Better luck next time!

Congratulations! You did amazing

Check Your Inbox

Literature on Qualitative Research

Learn more about Qualitative Research

All open-source articles on Qualitative Research

How to Visualize Your Qualitative User Research Results for Maximum Impact

Creating Personas from User Research Results

Best Practices for Qualitative User Research

Card Sorting

Contextual Interviews and How to Handle Them

Understand the User’s Perspective through Research for Mobile UX

Ethnography

Semi-structured qualitative studies

Workshops to Establish Empathy and Understanding from User Research Results

How to Moderate User Interviews

Question Everything

Adding Quality to Your Design Research with an SSQS Checklist

Open Access—Link to us!

Privacy Settings